Blood Cancers & Disorders Support Group

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Comments (469)

https://www.myelomacentral.com/livingwithmm/multiple-myeloma-treatment-monitoring/understanding-multiple-myeloma-lab-test-results

https://connect.mayoclinic.org/comment/1364477/

Discussion: blood disorder

Support Group: Blood Cancers & Disorders

Posted: Aug 5, 2025

@pghparrothead, welcome. You're advice to @faithgirl30 is wise. "They will be happy to dismiss you if...

https://connect.mayoclinic.org/comment/328627/

Discussion: Newly diagnosed with “Thick Blood”. Should I be concerned?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2020

Hello @tristram, Welcome to Connect. I saw your post in the GBS (Guillain-Barre Syndrome) discussion and...

https://connect.mayoclinic.org/comment/784483/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Dec 13, 2022

Hi Ginger, yes I have spent a lot of time reading posts :). I hope your...

https://connect.mayoclinic.org/comment/632399/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Sep 3, 2021

@treinbold Going onto treatment for a condition, when that condition has not been diagnosed, can be...

https://connect.mayoclinic.org/comment/915138/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 18, 2023

I’ve been taking same dose for about 3-4 yrs for afib as prescribed by my cardiologist....

https://connect.mayoclinic.org/comment/1579783/

Discussion: Prescribed Eliquis 5mg 2 x a day

Support Group: Blood Cancers & Disorders

Posted: May 21 9:50am

@vera101 If you are not under the care of a hematologist oncologist, please consider getting an...

https://connect.mayoclinic.org/comment/1000202/

Discussion: Multiple myeloma: When to treat? When not to treat?

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2024

@treehouse5437 I take a steroid dose every Saturday morning, as part of my myeloma treatment plan....

https://connect.mayoclinic.org/comment/1268889/

Discussion: Steroids: How did they affect your food cravings, sleep, etc?

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2025

I find this helpful. Although remember, MGUS is not multiple myeloma, and is not cancer. But...

https://connect.mayoclinic.org/comment/1191014/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 15, 2024

@treehouse5437 I have been on Revlimid + dexamethasone pretty consistently since Aug 2021. I am also...

https://connect.mayoclinic.org/comment/1251032/

Discussion: Myeloma: how long after treatment were you able to go back to work?

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2025

@becky1024 Good for you for staying up-to-date with your blood values! I do the same, and...

https://connect.mayoclinic.org/comment/732412/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jul 30, 2022

@cytogirl Welcome to Mayo Clinic Connect. Sometimes we need to consider our co-morbidities when dealing with...

https://connect.mayoclinic.org/comment/1252578/

Discussion: Myeloma newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2025

@ginorio You might want to ask your oncologist the reason for being so aggressive if your...

https://connect.mayoclinic.org/comment/1005243/

Discussion: How to know whether smoldering myeloma or multiple myeloma?

Support Group: Blood Cancers & Disorders

Posted: Jan 28, 2024

Hi, Patrick. My name is Millicent and I live in STL. I've been on Revlimid since...

https://connect.mayoclinic.org/comment/1236270/

Discussion: Is anyone here taking Revlimid? If so please share with me

Support Group: Blood Cancers & Disorders

Posted: Feb 13, 2025

Greetings, nothing I have read on MGUS connects dots between the COVID vaccines and MGUS. I’ll...

https://connect.mayoclinic.org/comment/824352/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 11, 2023

@carlabaz hi there. I have not yet learned to read my lab results beyond the basics...

https://connect.mayoclinic.org/comment/1516390/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 28 9:43am

@cytogirl Good for you, being okay with your decision. In my experience and talking to others,...

https://connect.mayoclinic.org/comment/1253814/

Discussion: Myeloma newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2025

First of all, your physicians are being cautious and checking everything! That’s good. The “normal” range...

https://connect.mayoclinic.org/comment/1062338/

Discussion: New to kappa light chain testing

Support Group: Blood Cancers & Disorders

Posted: May 4, 2024

They caught mine on a yearly physical but it had progressed to smoldering myeloma. About a...

https://connect.mayoclinic.org/comment/1303526/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: May 13, 2025

They take the blood test once a year, and nobody tells the results, only : "the...

https://connect.mayoclinic.org/comment/1015144/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Feb 13, 2024