Blood Cancers & Disorders Support Group

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Comments (495)

Hello fellow Myelofibrosis patients. Has a physician discussed how Myelofibrosis affects bone health with you? Does...

https://connect.mayoclinic.org/comment/1536368/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 27 8:05am

Hi Dillydally, There are several discussions where members are talking about myelofibrosis and treatments. Here are...

https://connect.mayoclinic.org/comment/675825/

Discussion: Massive spleen and dangerous low platelet count

Support Group: Blood Cancers & Disorders

Posted: Jan 28, 2022

@meredithes, I have added your discussion about primary autoimmune myelofibrosis to the Blood Cancers & Disorders...

https://connect.mayoclinic.org/comment/1523456/

Discussion: Anyone out there living with primary autoimmune myelofibrosis?

Support Group: Autoimmune Diseases

Posted: Mar 9 5:12pm

Hi Scott, while it's good to get a confirmed diagnosis, I'm sorry to hear that you...

https://connect.mayoclinic.org/comment/657819/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2021

Welcome new members,@vas and @erincarrasco2024. As you may have learned as you start on this journey...

https://connect.mayoclinic.org/comment/1103054/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2024

@joaniech2004 I have Myelofibrosis. I had the horrible itching prior to being diagnosed with Myelofibrosis. Unbelievable...

https://connect.mayoclinic.org/comment/1537708/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: 5 days ago

steve, this youtube video offers a good understanding of progression and treatment of myelofibrosis. It doesn't...

https://connect.mayoclinic.org/comment/132649/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 29, 2020

@mahmoudbakry, you might also be interested in this related discussion: - Primary Myelofibrosis: Continue watch &...

https://connect.mayoclinic.org/comment/1046374/

Discussion: Anyone with primary myelofibrosis, low risk, asymptomatic?

Support Group: Blood Cancers & Disorders

Posted: Apr 6, 2024

@ang3, I hope you saw the helpful posts from @cindyem and @hanya. You may also be...

https://connect.mayoclinic.org/comment/1261470/

Discussion: Myelofibrosis, Ojjaara and anemia

Support Group: Blood Cancers & Disorders

Posted: Mar 18, 2025

Glad you popped over to this discussion group, Scott. I'm tagging fellow myelofibrosis members like @teriberi123...

https://connect.mayoclinic.org/comment/658685/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Nov 30, 2021

Hi @mirakrye Well, that’s a heckuva way to ring in the new year with a change...

https://connect.mayoclinic.org/comment/1479514/

Discussion: Are there support groups for Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 11 10:03am

Welcome to Connect @chrisgray. You’re right, there is a lot to take in when you have...

https://connect.mayoclinic.org/comment/1227014/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2025

@bunnygg, you may also be interested in these related discussion about myelofibrosis https://connect.mayoclinic.org/group/blood-cancers-disorders/?search=Myelofibrosis&index=discussions Were you and...

https://connect.mayoclinic.org/comment/1087840/

Discussion: My mother diagnosed with Myelofibrosis: Episodes of abdominal pain

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2024

@tree7737 JAK 2v617F is an indicator for myelofibrosis, which is my diagnosis - I also had...

https://connect.mayoclinic.org/comment/1518069/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Mar 2 4:52pm

@nisi I have been taking Jakafi (Ruxolitinib 10 mg. 2x per day) for about 6 months...

https://connect.mayoclinic.org/comment/1524013/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 10 1:08pm

You are not confused. I was diagnosed with Myelofibrosis in June 2025

https://connect.mayoclinic.org/comment/1349808/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 16, 2025

Hi my brother just diagnososed with myelofibrosis with CALR mutation. If any one of you have...

https://connect.mayoclinic.org/comment/50506/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2017

My husband has myelofibrosis anyone else have this disease?

https://connect.mayoclinic.org/comment/73345/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: May 7, 2016

Hi @bmarkable. Myelofibrosis (MF) and Myelodyplastic syndrome are two different blood conditons. Myelofibrosis (MF) is disorder...

https://connect.mayoclinic.org/comment/1084232/

Discussion: Is Myelofibrosis (MF) the same as Myelodyplastic syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2024

Took Hydroxyurea for years to control platelet count. But ,is there a relationship between that drug...

https://connect.mayoclinic.org/comment/50505/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Jan 7, 2017