248 total results
Comments (224)
Hi Dillydally, There are several discussions where members are talking about myelofibrosis and treatments. Here are...
https://connect.mayoclinic.org/comment/675825/
Hi Scott, while it's good to get a confirmed diagnosis, I'm sorry to hear that you...
https://connect.mayoclinic.org/comment/657819/
Welcome new members,@vas and @erincarrasco2024. As you may have learned as you start on this journey...
https://connect.mayoclinic.org/comment/1103054/
@mahmoudbakry, you might also be interested in this related discussion: - Primary Myelofibrosis: Continue watch &...
https://connect.mayoclinic.org/comment/1046374/
@bunnygg, you may also be interested in these related discussion about myelofibrosis https://connect.mayoclinic.org/group/blood-cancers-disorders/?search=Myelofibrosis&index=discussions Were you and...
https://connect.mayoclinic.org/comment/1087840/
steve, this youtube video offers a good understanding of progression and treatment of myelofibrosis. It doesn't...
https://connect.mayoclinic.org/comment/132649/
Glad you popped over to this discussion group, Scott. I'm tagging fellow myelofibrosis members like @teriberi123...
https://connect.mayoclinic.org/comment/658685/
My husband has myelofibrosis anyone else have this disease?
https://connect.mayoclinic.org/comment/73345/
Hi my brother just diagnososed with myelofibrosis with CALR mutation. If any one of you have...
https://connect.mayoclinic.org/comment/50506/
Was informed today from Incyte that Jakafi is for all myelofibrosis patients, with and without JAK2...
https://connect.mayoclinic.org/comment/50503/
Hi @bmarkable. Myelofibrosis (MF) and Myelodyplastic syndrome are two different blood conditons. Myelofibrosis (MF) is disorder...
https://connect.mayoclinic.org/comment/1084232/
My mom had myelofibrosis and lived with it for over 30 years. So it can be...
https://connect.mayoclinic.org/comment/893809/
I was diagnosed with myelofibrosis about 4 1/2 years ago. I formerly was diagnosed with essential...
https://connect.mayoclinic.org/comment/132598/
Took Hydroxyurea for years to control platelet count. But ,is there a relationship between that drug...
https://connect.mayoclinic.org/comment/50505/
Myelofibrosis JAK2 I’m currently on Jakafi and just completed cycle one of vidaza. White cells keep...
https://connect.mayoclinic.org/comment/813524/
Hello @sunnyside17. Mayo Clinic does discuss some of the diseases and disorders that the Myeloproliferative Group...
https://connect.mayoclinic.org/comment/272989/
Good luck at Mayo. Would really appreciate hearing about info. received at Mayo re.. Myelofibrosis. Important...
https://connect.mayoclinic.org/comment/50511/
Hi @cindyem, I’m just double checking your reference to PMDS. Do you possibly mean myelofibrosis (MF)...
https://connect.mayoclinic.org/comment/1043541/
I had horrible thorax itching years before being diagnosed with Myelofibrosis. No specialist could determine the...
https://connect.mayoclinic.org/comment/875274/
I suffer from a mild myelofibrosis. From time to time, I am experiencing night sweats. Has...
https://connect.mayoclinic.org/comment/1193740/
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