Blood Cancers & Disorders Support Group

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Comments (540)

@tree7737 I have myelofibrosis

https://connect.mayoclinic.org/comment/1601957/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: 1 day ago

@hanya Thank you for all your information! My hematologist was great for my CML, but I...

https://connect.mayoclinic.org/comment/1580102/

Discussion: Chronic Myeloid Leukemia now Myelofibrosis: Anyone had both?

Support Group: Blood Cancers & Disorders

Posted: May 21 5:11pm

@davi0937 This is a great podcast and source of info for Myelofibrosis. Thank you for posting!

https://connect.mayoclinic.org/comment/1588257/

Discussion: Jakofi or BMT for Myelofibrosis

Support Group: Blood Cancers & Disorders

Posted: Jun 1 9:41am

Hi Dillydally, There are several discussions where members are talking about myelofibrosis and treatments. Here are...

https://connect.mayoclinic.org/comment/675825/

Discussion: Massive spleen and dangerous low platelet count

Support Group: Blood Cancers & Disorders

Posted: Jan 28, 2022

Hello fellow Myelofibrosis patients. Has a physician discussed how Myelofibrosis affects bone health with you? Does...

https://connect.mayoclinic.org/comment/1536368/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 27 8:05am

@mary612 - I’m sorry to be nosey but what was his rare mutation? I have Myelofibrosis...

https://connect.mayoclinic.org/comment/1548582/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Apr 12 9:41am

Hi Scott, while it's good to get a confirmed diagnosis, I'm sorry to hear that you...

https://connect.mayoclinic.org/comment/657819/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2021

Welcome new members,@vas and @erincarrasco2024. As you may have learned as you start on this journey...

https://connect.mayoclinic.org/comment/1103054/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2024

I am in the JNJ-88549968 trial for ET/Myelofibrosis caused by the mutations in the CALR gene.

https://connect.mayoclinic.org/comment/1570736/

Discussion: Is anyone involved in clinical trials for ET, specifically for CALR?

Support Group: Blood Cancers & Disorders

Posted: May 9 3:26pm

@mahmoudbakry, you might also be interested in this related discussion: - Primary Myelofibrosis: Continue watch &...

https://connect.mayoclinic.org/comment/1046374/

Discussion: Anyone with primary myelofibrosis, low risk, asymptomatic?

Support Group: Blood Cancers & Disorders

Posted: Apr 6, 2024

@winniegirl My husband has MDS overlapping Myelofibrosis. His hemoglobin is always below 8, so he has...

https://connect.mayoclinic.org/comment/1580917/

Discussion: Chronic Myeloid Leukemia now Myelofibrosis: Anyone had both?

Support Group: Blood Cancers & Disorders

Posted: May 22 8:02pm

steve, this youtube video offers a good understanding of progression and treatment of myelofibrosis. It doesn't...

https://connect.mayoclinic.org/comment/132649/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 29, 2020

@bijou I was offered that trial but did not qualify due to my Chronic Myeloid Leukemia...

https://connect.mayoclinic.org/comment/1580182/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: May 21 7:46pm

@ang3, I hope you saw the helpful posts from @cindyem and @hanya. You may also be...

https://connect.mayoclinic.org/comment/1261470/

Discussion: Myelofibrosis, Ojjaara and anemia

Support Group: Blood Cancers & Disorders

Posted: Mar 18, 2025

Glad you popped over to this discussion group, Scott. I'm tagging fellow myelofibrosis members like @teriberi123...

https://connect.mayoclinic.org/comment/658685/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Nov 30, 2021

Welcome to Connect @chrisgray. You’re right, there is a lot to take in when you have...

https://connect.mayoclinic.org/comment/1227014/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2025

@bunnygg, you may also be interested in these related discussion about myelofibrosis https://connect.mayoclinic.org/group/blood-cancers-disorders/?search=Myelofibrosis&index=discussions Were you and...

https://connect.mayoclinic.org/comment/1087840/

Discussion: My mother diagnosed with Myelofibrosis: Episodes of abdominal pain

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2024

You are not confused. I was diagnosed with Myelofibrosis in June 2025

https://connect.mayoclinic.org/comment/1349808/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 16, 2025

Hi my brother just diagnososed with myelofibrosis with CALR mutation. If any one of you have...

https://connect.mayoclinic.org/comment/50506/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2017

My husband has myelofibrosis anyone else have this disease?

https://connect.mayoclinic.org/comment/73345/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: May 7, 2016