Blood Cancers & Disorders Support Group

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Comments (420)

Also did Jakafi help? Side effects? Wondering if 5 mg of Jakafi will even do anything?

https://connect.mayoclinic.org/comment/1523258/

Discussion: ET management, Is anyone here taking Jakafi or Pegasus?

Support Group: Blood Cancers & Disorders

Posted: Mar 9 12:21pm

I’m on Jakafi 5mg to start out. Blood work done once a week to monitor on...

https://connect.mayoclinic.org/comment/1102970/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2024

@nisi I just posted this to someone asking about Jakafi and ET: “ I was placed...

https://connect.mayoclinic.org/comment/1527366/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 15 10:17am

@learnandlive, I moved your question about Jakafi to this existing discussion where many members are sharing...

https://connect.mayoclinic.org/comment/1447859/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2025

@mcvorbs, you might also be interested in these related discussions: - What's the latest Jakafi (ruxolitinib)...

https://connect.mayoclinic.org/comment/1178780/

Discussion: Anyone had adverse effects from Jakafi (ruxolitinib) for PV?

Support Group: Blood Cancers & Disorders

Posted: Nov 23, 2024

Joe @mayo2290, Here's some information I found on financial assistance for the drug. "How to afford...

https://connect.mayoclinic.org/comment/936626/

Discussion: Has anyone heard of VEXAS syndrome?

Support Group: Blood Cancers & Disorders

Posted: Sep 26, 2023

@pamdg, you may be interested in these related discussions: - What's the latest Jakafi (ruxolitinib) for...

https://connect.mayoclinic.org/comment/1444333/

Discussion: JAKAFI anyone! I've been on it for 5 years

Support Group: Blood Cancers & Disorders

Posted: Nov 21, 2025

Hello albertedward, was wondering what your new drug was ? I recently started Jakafi and it...

https://connect.mayoclinic.org/comment/813143/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 17, 2023

Hi @mayo2290, Joe, I hope you saw the helpful information that @johnbishop provided about the financial...

https://connect.mayoclinic.org/comment/941931/

Discussion: Has anyone heard of VEXAS syndrome?

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2023

Welcome @papa6275, I'm tagging fellow members @draney @chattiek @pamdg @lwengel @raremiracle2 to share their experiences with...

https://connect.mayoclinic.org/comment/908365/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2023

After being prescribed Jakafi I have no more itching. It took about 30 days before itching...

https://connect.mayoclinic.org/comment/1304817/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: May 15, 2025

How is the Jakafi going?

https://connect.mayoclinic.org/comment/1192180/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Dec 17, 2024

I’m on sirolimus and Jakafi. I’m slowly coming off sirolimus, but my doctor wants to keep...

https://connect.mayoclinic.org/comment/926607/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Sep 8, 2023

My heart doctor put me on jakafi for a blood thinner

https://connect.mayoclinic.org/comment/887410/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2023

Yes my oncologist did! He was emphatic that Clonidine was “famous” for interfering with the Jakafi....

https://connect.mayoclinic.org/comment/870678/

Discussion: Does Jardiance have serious interactions with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2023

@colran When I was originally diagnosed with ET in 2005 at the age of 50, I...

https://connect.mayoclinic.org/comment/1527344/

Discussion: ET management, Is anyone here taking Jakafi or Pegasus?

Support Group: Blood Cancers & Disorders

Posted: Mar 15 9:58am

Have not heard alot about Jakafi. I have had PV/JAK2 for 7 years, on Hydroxyurea for...

https://connect.mayoclinic.org/comment/1447775/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2025

Can Jakafi cause irregular heartbeat?

https://connect.mayoclinic.org/comment/699081/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2022

How are you feeling today, @ann7449, after being on Jakafi for a couple of days?

https://connect.mayoclinic.org/comment/1012286/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Feb 9, 2024

Would like to see group. I’m on Jakafi. Still messing around with dosage.

https://connect.mayoclinic.org/comment/1413021/

Discussion: Myelofibrosis: Anyone have experience with Vonjo (pacritinib)?

Support Group: Blood Cancers & Disorders

Posted: Oct 11, 2025