Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

268 total results

Comments (233)

What’s your classification IgA, IgG or I’m Kappa light chain IgM MGUS. My older brother James...

https://connect.mayoclinic.org/comment/728931/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2022

Hello my name is Mariana and my children's father was diagnosed with Waldenstrom this month. He...

https://connect.mayoclinic.org/comment/691625/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2022

Welcome, Beverly. Being told you have lymphoma and the treatment is watch and wait can be...

https://connect.mayoclinic.org/comment/680909/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2022

I was diagnosed with Waldenstrom macroglobulinemia July of 2021. I went to the emergency room for...

https://connect.mayoclinic.org/comment/663018/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2021

Hi, my goodness, your husband has a lot going on right now and you too, as...

https://connect.mayoclinic.org/comment/624876/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2021

I have Waldenstrom's Macroglobulinemia. The 1st biopsy was for diagnosing, 2nd was to see what progression...

https://connect.mayoclinic.org/comment/1139604/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Sep 10, 2024

Good morning @bigbob5461, so nice to meet you! I am like you in that my mind...

https://connect.mayoclinic.org/comment/1120447/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2024

Hi there. Your lab results are surprisingly similar to what mine were with the exception of...

https://connect.mayoclinic.org/comment/1059648/

Discussion: M-Spike, High Kappa and Kappa/Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2024

I had never heard of Waldenstroms but it looks very much like SMZL! I hope they...

https://connect.mayoclinic.org/comment/1013495/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2024

Welcome, @djf31. It is all too common to dismiss symptoms as a sign of getting older...

https://connect.mayoclinic.org/comment/982760/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2023

Check out Waldenstrom. Related to high protein M spike.

https://connect.mayoclinic.org/comment/977417/

Discussion: Should I be worried about my MGUS diagnosis and my M Spike rising?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2023

Welcome @sagenest. It sounds like your diagnosis of Waldenstrom's is being managed by active surveillance or...

https://connect.mayoclinic.org/comment/963733/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2023

Hello 1oldsoul and thanks for the response. You asked about the determining factor from my biopsy...

https://connect.mayoclinic.org/comment/923949/

Discussion: Should Waldentrom's Patients Get Flu Shots?

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2023

@trixie1, recently (Jan 2023) the FDA approved zanubrutinib (Brukinsa) for the treament of chronic lymphocytic leukemia...

https://connect.mayoclinic.org/comment/912886/

Discussion: Any new treatments for SMZL? What do you take for maintenance?

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2023

Hello Lori and group, IVIG infusions continue for autoimmune condition. Receiving every 3 weeks on a...

https://connect.mayoclinic.org/comment/912685/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2023

I am sorry your husband is experiencing pleural effusion while taking Ibrutinib. I was on Ibrutinib...

https://connect.mayoclinic.org/comment/902391/

Discussion: With Waldenstrom, what side effects did you have with ibrutinib?

Support Group: Blood Cancers & Disorders

Posted: Jul 26, 2023

Hi @belcar45, "The liver is the largest organ in the human body. During development, liver size...

https://connect.mayoclinic.org/comment/856094/

Discussion: Waldenstrom’s Macroglobulinemia Liver size?

Support Group: Blood Cancers & Disorders

Posted: May 7, 2023

I am new here and recently diagnosed with Waldenstrom Macroglobulinamia. I would like to correspond with...

https://connect.mayoclinic.org/comment/70607/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2017

Welcome to Connect, @dcp45. I'd like to introduce you to @azjulie whose husband has Waldenstrom's Macroglobulinemia....

https://connect.mayoclinic.org/comment/70600/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2017

Not being a medical professional I am pretty much as confused as you. I do know...

https://connect.mayoclinic.org/comment/1267919/

Discussion: Dr wants to add immunoglobulins

Support Group: Blood Cancers & Disorders

Posted: Mar 27 9:53am