Blood Cancers & Disorders Support Group

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Comments (337)

Welcome to Mayo Connect, @ausableriver I’m happy you found us and decided to bypass Dr Google....

https://connect.mayoclinic.org/comment/875590/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2023

I was diagnosed with Polycythemia Vera 3 years ago. My treatment included regular phlebotomies every couple...

https://connect.mayoclinic.org/comment/1185667/

Discussion: Blood Donor: Is it safe to donate blood if you have a blood condition?

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2024

I was diagnosed with Polycythemia Vera about three years ago. It was explained to me that...

https://connect.mayoclinic.org/comment/1163233/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 26, 2024

Hello, I have Polycythemia Vera and see a local Oncologist and an MPN Specialist at the...

https://connect.mayoclinic.org/comment/1021606/

Discussion: Finding the right cancer care team

Support Group: Blood Cancers & Disorders

Posted: Feb 24, 2024

When I was diagnosed with a blood disorder, and very hi Hemocrit levels, my Hemotologist did...

https://connect.mayoclinic.org/comment/1002254/

Discussion: At my wits end. Not sure where to go from here.

Support Group: Blood Cancers & Disorders

Posted: Jan 23, 2024

Hi @suanne90. You’ve popped into a conversation in the Blood Cancers & Disorders Support Group. The...

https://connect.mayoclinic.org/comment/1166282/

Discussion: Any suggestions on what time of day is best for taking Hydroxyurea?

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2024

@trillium, yes I would call the appointment line in Phoenix again and explain the situation regarding...

https://connect.mayoclinic.org/comment/336439/

Discussion: JAK2 negative with high platelets

Support Group: Heart & Blood Health

Posted: Mar 6, 2021

My Polycythemia Vera and JAK2 positive test and diagnosis was on Nov. 25, 2022. After starting...

https://connect.mayoclinic.org/comment/803537/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 29, 2023

Per MayoClinicLabs Vitamin B12 Assay, Serum Many other conditions are known to cause an increase in...

https://connect.mayoclinic.org/comment/734618/

Discussion: High Levels of Vitamin B12 and Ferritin: Any pointers?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2022

You may find that despite having the JAK2 mutation, your life may not be any noticeably...

https://connect.mayoclinic.org/comment/194269/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2018

Good morning, @taisaint. Welcome you to Mayo Connect. You’ve recently been diagnosed Essential thrombocythemia and Polycythemia...

https://connect.mayoclinic.org/comment/967884/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2023

Hi Nicole, I thought I'd post a link to your previous discussion for people who may...

https://connect.mayoclinic.org/comment/601872/

Discussion: Polycythemia Vera: Is there anything I can do for fatigue at home?

Support Group: Blood Cancers & Disorders

Posted: May 14, 2021

I have been on low dose Hydroxy for 2 months now - do notice small mouth...

https://connect.mayoclinic.org/comment/966488/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 17, 2023

Hi, @nicolekapr . @colleenyoung asked if maybe I had some helpful info on fatigue for you....

https://connect.mayoclinic.org/comment/336628/

Discussion: Polycythemia Vera: Is there anything I can do for fatigue at home?

Support Group: Blood Cancers & Disorders

Posted: Mar 8, 2021

Hey Lisa! I have pretty Much all The same Symptoms and am JAK2 pos. My platelets...

https://connect.mayoclinic.org/comment/1162393/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2024

I was diagnosed with Polycythemia Vera (PV) a year ago. The pruritus was a symptom before...

https://connect.mayoclinic.org/comment/1236497/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2025

I was exposed to Agent Orange in 1968-69, at the height of the Vietnam War. I...

https://connect.mayoclinic.org/comment/1434552/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Nov 9, 2025

Polycythemia vera (PV) is primarily classified as a blood disorder, but it has characteristics of a...

https://connect.mayoclinic.org/comment/1114380/

Discussion: Been struggling with Polycythemia Vera for 2 years

Support Group: Blood Cancers & Disorders

Posted: Jul 30, 2024

I have posted before about having JAK2 mutation - I have been followed by Hemo-oncologist for...

https://connect.mayoclinic.org/comment/975372/

Discussion: Jak 2 mutations

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2023

Hi @lavender28 Welcome to Mayo Connect. It helps to know you’re not alone in a diagnosis....

https://connect.mayoclinic.org/comment/858668/

Discussion: Polycythemia vera (PV): Does altitude matter?

Support Group: Blood Cancers & Disorders

Posted: May 12, 2023