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Comments (1,465)

Hi @kaysel. Thank you for sharing your experience with how you were finally diagnosed with MGUS....

https://connect.mayoclinic.org/comment/972173/

Discussion: MGUS & Rash

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2023

I have BIg kappa light chain too but said I had mgus??!!

https://connect.mayoclinic.org/comment/81214/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 1, 2020

What are you doing for the itching? I have the same t-cell lymphoma and MGUS.

https://connect.mayoclinic.org/comment/886704/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Jun 28, 2023

@sallylynn I had very slight neuropathy, no other symptoms. My primary care provider said, I'm going...

https://connect.mayoclinic.org/comment/948532/

Discussion: Don't know what to think and feeling uncertain at this point

Support Group: Blood Cancers & Disorders

Posted: Oct 16, 2023

Good to hear that at 8 years you are still MGUS levels. Good to see your...

https://connect.mayoclinic.org/comment/1144760/

Discussion: Free light chain ratio in MGUS

Support Group: Blood Cancers & Disorders

Posted: Sep 20 6:08pm

@joyelizabeth Have you been formally diagnosed with MGUS? What tests were done, and by whom? If...

https://connect.mayoclinic.org/comment/1018739/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 19 3:48pm

I too have been recently diagnosed with MGUS. It was found when I was being tested...

https://connect.mayoclinic.org/comment/812215/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2023

It can disappear with treatment, because that is how they monitor my husbands disease. I do...

https://connect.mayoclinic.org/comment/109733/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2019

No one really knows what is going on. There is so much we have yet to...

https://connect.mayoclinic.org/comment/1112823/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 27 2:30pm

They have you on chemo with a negative biopsy? Are the meds for symptoms associated with...

https://connect.mayoclinic.org/comment/933604/

Discussion: MGUS and Chemotherapy

Support Group: Blood Cancers & Disorders

Posted: Sep 21, 2023

Hi Colleen, thank you - I will check on that. Thanks for adding others with MGUS.

https://connect.mayoclinic.org/comment/632387/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Sep 3, 2021

Thank you Chris for information on diet. I am newly diagnosed MGUS.

https://connect.mayoclinic.org/comment/658728/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Nov 30, 2021

Had MGUS for 15 years. Five years ago became multiple myeloma.

https://connect.mayoclinic.org/comment/882016/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 20, 2023

I'm 70 and my Kappa is about 300 and Kappa/Lambda is 29. Still in the asymptomatic...

https://connect.mayoclinic.org/comment/1175389/

Discussion: Kappa light chains: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: 6 days ago

hi, I am not really understanding Chip either. It’s similar to MGS because they are both...

https://connect.mayoclinic.org/comment/1116759/

Discussion: Diagnosed with MGUS and CHIP with M spike

Support Group: Blood Cancers & Disorders

Posted: Aug 2 11:36pm

Wondering if MGUS is related to Cold Agglutinin Disease. I have both and also ITP, another...

https://connect.mayoclinic.org/comment/665531/

Discussion: MGUS associated with Type I Cryoglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2021

My MGUS levels are not a concern at this time, so they’re being watched by myhemotologist-oncologist....

https://connect.mayoclinic.org/comment/943824/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2023

@pnpam75 MM is shorthand for Multiple Myeloma. MGUS is often considered a precursor to this, a...

https://connect.mayoclinic.org/comment/1062610/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 5 11:11am

Why don't you think MGUS aren't causing your nerve related problems?

https://connect.mayoclinic.org/comment/943951/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 8, 2023

@samraz, I thought I'd tag you on this discussion to connect you with others living with...

https://connect.mayoclinic.org/comment/817673/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2023