Blood Cancers & Disorders Support Group

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Comments (2,258)

The MPN Foundation is the one researching ET extensively. It's free to belong and they have...

https://connect.mayoclinic.org/comment/1014997/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Feb 13, 2024

Or it can just be a bruise. We also can bleed more with ET

https://connect.mayoclinic.org/comment/1314170/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: May 27, 2025

@darginskylisa did you notice persistent hives before your ET diagnosis?? This was something that I struggled...

https://connect.mayoclinic.org/comment/1495900/

Discussion: MPN: How do you deal with out of control hives?

Support Group: Blood Cancers & Disorders

Posted: Feb 1 7:08pm

That paper Colleen cited doesn't have anything to do with ET or PV and does not...

https://connect.mayoclinic.org/comment/1419335/

Discussion: Endometerial cancer with essential throbocythemia (ET) Jak 2 mutation

Support Group: Gynecologic Cancers

Posted: Oct 20, 2025

I’ve heard of Camp Lejeune and how ET and other blood cancers have been traced to...

https://connect.mayoclinic.org/comment/194348/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Oct 21, 2019

When a doctor says "No, that has nothing to do with ET or HU," what it...

https://connect.mayoclinic.org/comment/1473320/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 3 6:15am

Platelet production can be stimulated by extreme blood loss (as from an injury); heavy drinking; or...

https://connect.mayoclinic.org/comment/1522994/

Discussion: Elevated Platelet Count With Extreme Fatigue

Support Group: Blood Cancers & Disorders

Posted: Mar 9 7:15am

Do you mean cholesterol testing? I don't think atherosclerosis has any association with calcium. I have...

https://connect.mayoclinic.org/comment/1217173/

Discussion: Has anyone had heart issues with myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2025

I am new to my diagnosis. I am triple negative ET. It looks like that is...

https://connect.mayoclinic.org/comment/1215431/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2025

Hi Tessa, I'm glad you reached out, seeking others' experience with ET - a rare and...

https://connect.mayoclinic.org/comment/57946/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Jun 26, 2020

I could use any links that you have also. It is hard finding I anything on...

https://connect.mayoclinic.org/comment/1395872/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Sep 18, 2025

I also have jak2 and ET. Good luck with your treatment

https://connect.mayoclinic.org/comment/146298/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2020

Your wife is unlucky to have ET, but very lucky to have you.

https://connect.mayoclinic.org/comment/1145924/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Sep 23, 2024

Unfortunately, headaches are part of ET itself. We're all different, but for me, HU has really...

https://connect.mayoclinic.org/comment/1141761/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2024

@hipsu5 A diagnosis of ET lands like a ton of bricks. Scary things are NOT inevitable!...

https://connect.mayoclinic.org/comment/1466247/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2025

Thanks for replying. I should have said I have ET.

https://connect.mayoclinic.org/comment/1475650/

Discussion: Has anyone experienced vision changes on Hydrea?

Support Group: Blood Cancers & Disorders

Posted: Jan 6 8:35am

Hello all, I’ve also had type 2 diabetes for 12 years. I’ve lost so much weights...

https://connect.mayoclinic.org/comment/1116937/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2024

Yes, ET-CALR, on HU x 7 years, and LDH has been high for past year while...

https://connect.mayoclinic.org/comment/1445270/

Discussion: ET treated with HU and aspirin: How to manage high liver values?

Support Group: Blood Cancers & Disorders

Posted: Nov 23, 2025

I am so sorry you've already been through another cancer. I will let others respond to...

https://connect.mayoclinic.org/comment/1088724/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 17, 2024

@loribmt lmao, I’ve seen everyone: pcp, Urgent care, rheumatologist, allergist, and dermatologist, pharmacist, et al I...

https://connect.mayoclinic.org/comment/1497643/

Discussion: MPN: How do you deal with out of control hives?

Support Group: Blood Cancers & Disorders

Posted: Feb 3 11:01pm