Blood Cancers & Disorders Support Group

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Comments (260)

Thank you, Janet. I did not realize that the COVID vaccine had an impact. My numbers...

https://connect.mayoclinic.org/comment/1328219/

Discussion: Getting nowhere with current Hematologist

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2025

I have not had any depression since taking Besremi. Like others, I have some fatigue the...

https://connect.mayoclinic.org/comment/1381399/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Aug 28, 2025

Hi Lori, I'm waiting to hear the results of a "financial aid" application for Besremi. I...

https://connect.mayoclinic.org/comment/912216/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2023

I have now had 7 Besremi injections, number 8 coming up on Wednesday. The side effects...

https://connect.mayoclinic.org/comment/1321409/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2025

@anavleek Need a break from the HU and Besremi will work on my potential to develop...

https://connect.mayoclinic.org/comment/1412061/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Oct 9, 2025

I was taking 500mg/day for several months and saw my platelets drop from over 800 down...

https://connect.mayoclinic.org/comment/1612579/

Discussion: Hydroxyurea: what side effects were so bad you had to stop taking it?

Support Group: Blood Cancers & Disorders

Posted: Jul 4 10:55am

66 year old male, diagnosed ET with JAK2, June 2024. Last week my haematologist gave me...

https://connect.mayoclinic.org/comment/1211108/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2025

Recently diagnosed with ET/mild PV, I too am about to start treatment for the first time....

https://connect.mayoclinic.org/comment/799853/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Jan 21, 2023

My daughter is 24 diagnosed last July with ETJak2. She has a number of symptoms the...

https://connect.mayoclinic.org/comment/1586484/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: May 30 5:18am

I am on Besremi for Pre Fibrotic Primary Myelofibrosis. It is in second phase clinical trials...

https://connect.mayoclinic.org/comment/1573108/

Discussion: After 3 months on hydroxyurea, I am going to ask to switch to Besremi

Support Group: Blood Cancers & Disorders

Posted: May 12 1:18pm

Welcome to Connect @rhollis I think a good place to begin this morning is with a...

https://connect.mayoclinic.org/comment/1201587/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 1, 2025

Hi @bharty615 Generally, a bone marrow transplant is reserved for extreme conditions such as leukemia, MDS,...

https://connect.mayoclinic.org/comment/1079339/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 2, 2024

My iron is also very low and I’m anemic from phlebotomies at 5. I’m on Besremi...

https://connect.mayoclinic.org/comment/1223016/

Discussion: Polycythemia Vera and low iron

Support Group: Blood Cancers & Disorders

Posted: Jan 27, 2025

Aloha.. I have been taking Hydroxyurea 500mg daily for over 20 years. I still have my...

https://connect.mayoclinic.org/comment/1321243/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2025

I started using Besremi (I do not live in the U.S.) in March. My platelets were...

https://connect.mayoclinic.org/comment/1296284/

Discussion: Anyone used Interferon instead of HU for ET: Benefits? Side effects?

Support Group: Blood Cancers & Disorders

Posted: May 4, 2025

I’ve had ET for over 30 years now and have done quite well just on hydroxyurea....

https://connect.mayoclinic.org/comment/1321109/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2025

I'd be interested in knowing more about why yr doc is suggesting the switch. Am on...

https://connect.mayoclinic.org/comment/1294006/

Discussion: Anyone used Interferon instead of HU for ET: Benefits? Side effects?

Support Group: Blood Cancers & Disorders

Posted: May 1, 2025

@dmcj Hydroxyurea (HU) is the go-to drug for ET. It's been in wide use for generations,...

https://connect.mayoclinic.org/comment/1587306/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: May 31 8:24am

@hudson2019 Just a nosy question, so feel free to ignore: If you are in the States,...

https://connect.mayoclinic.org/comment/1532714/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Mar 22 9:47am

They probably want me to do the biopsy first, so that will take several weeks. Several...

https://connect.mayoclinic.org/comment/1157114/

Discussion: After 3 months on hydroxyurea, I am going to ask to switch to Besremi

Support Group: Blood Cancers & Disorders

Posted: Oct 14, 2024

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