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Comments (251)

Thank you very much I will re read the information The last diagnosis from the oncologist...

https://connect.mayoclinic.org/comment/748997/

Discussion: Low T-Cell - Bone Marrow Biopsy

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2022

After receiving a chemo treatment last February, he had an infusion reaction that required a 3...

https://connect.mayoclinic.org/comment/645353/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Oct 15, 2021

Thank you so much for sending all of this information I will read and look at...

https://connect.mayoclinic.org/comment/715963/

Discussion: Low T-Cell - Bone Marrow Biopsy

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2022

Good morning. Hoping this message finds you well. I found your message and wanted to share...

https://connect.mayoclinic.org/comment/874720/

Discussion: Diagnosed with both multiple myeloma and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Jun 8, 2023

Hey Emily, my name is Jennifer. I am currently being tested for Amyloidosis which can cause...

https://connect.mayoclinic.org/comment/858521/

Discussion: Abnormal bloodwork questions

Support Group: Blood Cancers & Disorders

Posted: May 12, 2023

@mgm4kc, I'm tagging a few other members like @cemeterygal01 @mkempson42 @naiviv @tlcox49, who also have experience...

https://connect.mayoclinic.org/comment/1107770/

Discussion: Newly diagnosed Multiple Myeloma and AL Amyloidosis - Standard of Care

Support Group: Blood Cancers & Disorders

Posted: Jul 18 1:47pm

I am so sorry he had to go through all that! I haven’t heard of Amyloidosis....

https://connect.mayoclinic.org/comment/906869/

Discussion: Looking for advice: Could this be MGUS, because of low m-spike?

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2023

This might be a little different than yours, but I had my diagnosis for amyloidosis on...

https://connect.mayoclinic.org/comment/1079509/

Discussion: How long from diagnosis of AML typically comes the BMT?

Support Group: Blood Cancers & Disorders

Posted: Jun 2 12:29pm

CRISPR doesn't exist yet for treating MGUS/SMM/MM which can be associated with a number of genetic...

https://connect.mayoclinic.org/comment/1163333/

Discussion: Can MGUS be cured by CRISPR?

Support Group: Blood Cancers & Disorders

Posted: Oct 27 8:26am

Well Lori, I made contact with my Oncologist like you suggested. It was something she said...

https://connect.mayoclinic.org/comment/738564/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2022

I researched and found out the purpose. My hemo/onc had my gastroenterologist do a biopsy for...

https://connect.mayoclinic.org/comment/754121/

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Sep 26, 2022

I had neuropathy in my left foot/toes and terrible nerve pain. The mm and amyloidosis were...

https://connect.mayoclinic.org/comment/104687/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2016

@crissy2450 of the eight siblings of my family, and a dozen or so of their grown...

https://connect.mayoclinic.org/comment/217290/

Discussion: Chemo side effects

Support Group: Blood Cancers & Disorders

Posted: Sep 18, 2018

Now that he has had the PD surgery and waiting for it to heal before they...

https://connect.mayoclinic.org/comment/213106/

Discussion: AL amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Sep 24, 2018

Sounds very frustrating for you. Seems every institution including Mayo has a “watch and wait” protocol...

https://connect.mayoclinic.org/comment/883525/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2023

Hi @jebcyn. That’s a really inspirational story! It’s amazing how just the change in chemo regimens...

https://connect.mayoclinic.org/comment/782599/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2022

Peggyjean- Thank you so much for sharing your hard ordeals with me. All the information you...

https://connect.mayoclinic.org/comment/1120375/

Discussion: Diagnosing amyloidosis: Why monitor (PYP scan) instead of biopsy?

Support Group: Blood Cancers & Disorders

Posted: Aug 8 10:57pm

@pro Welcome to Mayo Connect! We're glad you found us. We are patients/caregivers/family members here, offering...

https://connect.mayoclinic.org/comment/81213/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2020

I understand every feeling you're having and relate to the fact hat it's difficult to find...

https://connect.mayoclinic.org/comment/104705/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Aug 31, 2017

Hello @bob100, I’m truly sorry to hear about your wife’s diagnosis, but I also quickly want...

https://connect.mayoclinic.org/comment/88315/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2019