Blood Cancers & Disorders Support Group

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Comments (1,895)

responding to @teedee66. It is my understanding that MGUS is a benign condition that means there...

https://connect.mayoclinic.org/comment/846949/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Apr 21, 2023

Last year routine blood was not my normal results. My kidney numbers were dyalis level. I...

https://connect.mayoclinic.org/comment/1217258/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jan 20 9:13am

I get it. I know (or think I know) what’s going on with me and my...

https://connect.mayoclinic.org/comment/921085/

Discussion: Kappa light chain is elevated: Anyone dealing with this?

Support Group: Blood Cancers & Disorders

Posted: Aug 29, 2023

Welcome Suzye. I was diagnosed with MGUS in 2002, and a couple years later, Multiple Myeloma....

https://connect.mayoclinic.org/comment/264596/

Discussion: Anyone have MGUS and being treated for osteoporosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2019

With MAGUS there are no symptoms. Wait and see approach. M proteins present but not significant....

https://connect.mayoclinic.org/comment/1229132/

Discussion: Could we talk about anxiety with MGUS

Support Group: Blood Cancers & Disorders

Posted: Feb 4 8:26am

I hope that funeral pre-payment is not necessary to utilize for a very long time. With...

https://connect.mayoclinic.org/comment/735245/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2022

@katrinarn24, I added Qunol Turmeric Curcumin Supplement @ 1000mg, twice daily to my regimen after first...

https://connect.mayoclinic.org/comment/1333390/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 23 10:22am

I’ve had MGUS detected in 2021 when getting a full Rhuematology work up for usual bilateral...

https://connect.mayoclinic.org/comment/1192711/

Discussion: MGUS and Myasthenia Gravis - does anyone have both?

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2024

Dear @mguspixi25, thank you so much for this. The fact that you have spent your own...

https://connect.mayoclinic.org/comment/963324/

Discussion: Does anyone have any info on MGUS treatment or risk of progression?

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2023

Welcome to the club, @badnewsforme We just had another new member join the WM group yesterday....

https://connect.mayoclinic.org/comment/912217/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2023

Hi There. My name is Tracey. I was diagnosed at 50,with MGUS. The proper blood tests...

https://connect.mayoclinic.org/comment/828732/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 20, 2023

I was also given a diagnosis of MGUS. This was about nine months ago shortly before...

https://connect.mayoclinic.org/comment/763611/

Discussion: possible Myeloma ? big shocking surprise !!

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2022

I understand your pain. I was prediabetic at one point and doctor put me on metformin...

https://connect.mayoclinic.org/comment/857068/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 9, 2023

@veronica1955 Greetings! I’m going to offer some different reasoning. Each of us has to make our...

https://connect.mayoclinic.org/comment/1108965/

Discussion: should I do more testing?

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2024

I'm not sure if there is any evidence on any specific diet related to Monoclonal gammopathy...

https://connect.mayoclinic.org/comment/760381/

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Oct 12, 2022

I was diagnosed with MGUSand CMT (Charcot-Marie-Tooth Disease), which is a rare peripheral neuropathy in 2022...

https://connect.mayoclinic.org/comment/1245363/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 25 2:34pm

@travelgirl Hi Jackie. Two years ago I was told I had MGUS, and believed that, with...

https://connect.mayoclinic.org/comment/205959/

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Sep 6, 2019

@mikxtr How frustrating! Not sure which specialists these people are, but if not a hematologist oncologist,...

https://connect.mayoclinic.org/comment/1076706/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 28, 2024

Thank you for your message, Patty. My bone marrow biopsy, that resulted in a CCUS diagnosis,...

https://connect.mayoclinic.org/comment/994477/

Discussion: Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?

Support Group: Blood Cancers & Disorders

Posted: Jan 9, 2024

@nsnipes11 , I'm sorry you didn't get to discuss your MGUS concerns with your doctor. It...

https://connect.mayoclinic.org/comment/994142/

Discussion: MGUS I need help understanding my lab report.

Support Group: Blood Cancers & Disorders

Posted: Jan 9, 2024