Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

432 total results

Comments (412)

Hello Harley, I’m glad you joined the discussion. I’m learning a lot about MGUS from our...

https://connect.mayoclinic.org/comment/912845/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2023

The wait and see approach is difficult. Feel fine is great physically but it’s the mental...

https://connect.mayoclinic.org/comment/1249751/

Discussion: I may have low grade lymphoma or it could be from inflammation

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2025

@paul1940 Good morning! Glad to hear you and your friend are doing well. Unfortunately, I do...

https://connect.mayoclinic.org/comment/1463212/

Discussion: T cell large granulocytic leukemia

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2025

I was diagnosed in 2013 at 42 years old. I am now 53. I was told...

https://connect.mayoclinic.org/comment/1203888/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2025

I have CLL, not smoldering CLL, and my WBC was never above 17 that I know...

https://connect.mayoclinic.org/comment/1026790/

Discussion: CLL: How do you evaluate well-meaning tips from friends?

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2024

@wyom1998 Multiple myeloma is abbreviated to mm by many people. I believe what you are asking...

https://connect.mayoclinic.org/comment/664992/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2021

Thank you, Ginger. I know MGUS can lay dormant for one’s whole life. What I’m wondering...

https://connect.mayoclinic.org/comment/708550/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: May 15, 2022

Speaking to your need to find a new physician. Since 1980 (I just dated myself!) I...

https://connect.mayoclinic.org/comment/1046089/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Apr 6, 2024

@loribmt Thanks, Lori. Just had my first full dose yesterday; will share my experience with folks...

https://connect.mayoclinic.org/comment/1042514/

Discussion: Abnormal bloodwork questions

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2024

I have certainly had good days and bad. I think the MGUS diagnosis was easier as...

https://connect.mayoclinic.org/comment/868908/

Discussion: MGUS and Curcumin/Tumeric

Support Group: Blood Cancers & Disorders

Posted: May 29, 2023

I read several studies on BCMA levels and MGUS progression. sBCMA levels were noticed to increase...

https://connect.mayoclinic.org/comment/672449/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2022

@barbarian1 Last week my IgM results dropped to 2100. Kappa Lt chn ratio has always been...

https://connect.mayoclinic.org/comment/1435850/

Discussion: Bone marrow biopsy and/or blood tests for MGUS

Support Group: Blood Cancers & Disorders

Posted: Nov 11, 2025

Thank you sstillwell for your comments on diet. Very helpful info. I have somewhat high IgM...

https://connect.mayoclinic.org/comment/654634/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2021

@susanp2139 hello Susan, my best advice came from a man named Mike Katz who lived, I...

https://connect.mayoclinic.org/comment/1521314/

Discussion: Myeloma newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 6 10:38pm

@psue4 Welcome to Mayo Clinic Connect. As you read through the posts here, you will find...

https://connect.mayoclinic.org/comment/823656/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2023

@henriques I will be 70 this year. I was diagnosed with MGUS November 2017, smoldering myeloma...

https://connect.mayoclinic.org/comment/811612/

Discussion: Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2023

@tominga I’m so glad that you posted. Welcome to Mayo Clinic’s Connect. I believe that MGUS...

https://connect.mayoclinic.org/comment/1442519/

Discussion: Smoldering Myeloma: Coping with the emotional toll and acceptance

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2025

I had it done two weeks ago, following the suggestion of folks here to get a...

https://connect.mayoclinic.org/comment/1199440/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2024

@kappaking I have Smoldering Myeloma. IgA at about 1300. Neither my Kappa Chains nor Kappa/Lamba ratio...

https://connect.mayoclinic.org/comment/1030816/

Discussion: M-Spike, High Kappa and Kappa/Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Mar 10, 2024

Welcome, @vera101. Sometimes when multiple myeloma doesn't cause any symptoms, treatment is not necessary right away....

https://connect.mayoclinic.org/comment/999656/

Discussion: Multiple myeloma: When to treat? When not to treat?

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2024