Blood Cancers & Disorders Support Group

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Comments (236)

@miketllc3 -Just updating my response from last year. I have been on Vidaza for 4 years...

https://connect.mayoclinic.org/comment/1536691/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Mar 27 1:37pm

Jenn2458 Something very important I forgot to mention....vidaza and venetoclax work in combination to kill and...

https://connect.mayoclinic.org/comment/1241013/

Discussion: MDS 80 yr old male

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2025

I am a 79 year old male who was exposed to agent orange having bolunteered for...

https://connect.mayoclinic.org/comment/1176756/

Discussion: Venetoclax plus decitabine not working?

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2024

Do you know what might be recommended when Revlimid for a 5q deletion patient fails? Procrit...

https://connect.mayoclinic.org/comment/856002/

Discussion: I have been diagnosed and under treatment for MDS

Support Group: Blood Cancers & Disorders

Posted: May 7, 2023

I had the itching tesllly bad and took loratadine which eventually kicked in. I was on...

https://connect.mayoclinic.org/comment/1430231/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Nov 3, 2025

Thank you for the message and information. 🙏 it means so much to my husband and...

https://connect.mayoclinic.org/comment/1255061/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Mar 10, 2025

That’s excellent news! There have been so many positive changes in the advancement for treating MDS...

https://connect.mayoclinic.org/comment/1250925/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2025

Thank you for this post. It is very helpful to me. My husband was diagnosed with...

https://connect.mayoclinic.org/comment/995350/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jan 11, 2024

Like u I been on vidaza an 50 mgs of the other drug for 14 days...

https://connect.mayoclinic.org/comment/895345/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2023

Yes. My husband has MDS 5q deletion. He developed raised welts and rash on his torso,...

https://connect.mayoclinic.org/comment/1611747/

Discussion: Myelodysplastic Syndrome (MDS) classification and staging

Support Group: Blood Cancers & Disorders

Posted: 5 days ago

Hi, Lori and @lindagi!: When I was on Venclexta and Vidaza, I did not have many...

https://connect.mayoclinic.org/comment/887985/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Jun 30, 2023

You are lucky to get blood transfusions when the hemoglobin drops below 8 . My husband...

https://connect.mayoclinic.org/comment/1578990/

Discussion: How's your quality of life living with MDS?

Support Group: Blood Cancers & Disorders

Posted: May 20 9:37am

Welcome to Connect @shot. You sure got off to a rocky start with your chemo. I’m...

https://connect.mayoclinic.org/comment/1273912/

Discussion: I'm about to begin treatments with Vidaza, what should I know?

Support Group: Blood Cancers & Disorders

Posted: Apr 4, 2025

Update: My husband is still in remission. He finished up his second 7 day round of...

https://connect.mayoclinic.org/comment/931995/

Discussion: Acute Myeloid Leukemia (AML) - Treatment of 75 year old is working!

Support Group: Blood Cancers & Disorders

Posted: Sep 18, 2023

@ray666 While you may have already made your decision, I'll offer my experience in case it...

https://connect.mayoclinic.org/comment/1387289/

Discussion: High Risk Myelodysplastic Syndrome: What to Expect?

Support Group: Blood Cancers & Disorders

Posted: Sep 5, 2025

Hi group of hope, My father was diagnosed as an AML patient 1 week ago. We...

https://connect.mayoclinic.org/comment/1228186/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2025

Hi @doitbob How old are all these patients? Well, in this particular discussion most of the...

https://connect.mayoclinic.org/comment/1518676/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Mar 3 1:02pm

Yes, every day is a blessed day from our creator! My husband (83 yrs.) was diagnosed...

https://connect.mayoclinic.org/comment/1442504/

Discussion: MDS 80 yr old male

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2025

My husband was diagnosed with myelofibrosis in January this year2025. His platelets stay low most of...

https://connect.mayoclinic.org/comment/1439773/

Discussion: Idiopathic Thrombocytopenia: Anyone had platelet randomly drop?

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2025

Hello @jaylevel1. You may notice I moved your discussion and combined it with your original discussion...

https://connect.mayoclinic.org/comment/226236/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Sep 3, 2019

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