Blood Cancers & Disorders: Discussions | Page 8

@pesterthief, I found this information: "Primary idiopathic myelofibrosis is a rare myeloproliferative condition which can present...

https://connect.mayoclinic.org/comment/1168109/

Discussion: Any suggestions on what time of day is best for taking Hydroxyurea?

Support Group: Blood Cancers & Disorders

Posted: Nov 4, 2024

This is pretty normal - I had pain in that area for about a month -...

https://connect.mayoclinic.org/comment/889844/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

Maybe your doctor should look on CDC, NIH and World Health Org..... In hematology, essential thrombocythemia...

https://connect.mayoclinic.org/comment/1280701/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Apr 13 9:43am

Hello everybody,so this picture is my bone marrow biopsy results,I went to the doc and he...

https://connect.mayoclinic.org/comment/1039033/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2024

HI The only side affect I have had is tiredness, I avoid sitting in the sun...

https://connect.mayoclinic.org/comment/940309/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 2, 2023

derikburger @derikburg My PV caused Myelofibrosis, I was diagnosed Dec. 30, 2022 . Jakafi, Hydroxyurea ,...

https://connect.mayoclinic.org/comment/817148/

Discussion: Massive spleen and dangerous low platelet count

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2023

Greetings, I don't like the idea of looking towards an 'end stage'. That sounds like disaster....

https://connect.mayoclinic.org/comment/1049371/

Discussion: Anyone have information about late stages of primary myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2024

Have you had a bone marrow biopsy to be sure that what you’re dealing with is...

https://connect.mayoclinic.org/comment/1215424/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 18 8:07am

jseeker. Have you message The Moffitt center or her current dr for help with this symptom?...

https://connect.mayoclinic.org/comment/1210759/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 13 3:37pm

Glad that you share faith in Jesus Christ. Two things I observe: 1. It was a...

https://connect.mayoclinic.org/comment/1139944/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Sep 11, 2024

Thanks Coleen for your input. My husband's disease is not considered leukemia but a disease of...

https://connect.mayoclinic.org/comment/101842/

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: May 28, 2016

I have been taking Jakafi for post essential thrombocytosis (PET) Myelofibrosis since Nov 2020 and had...

https://connect.mayoclinic.org/comment/1091493/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2024

Hi @sonja239. I understand your duress with having received news that you have two myeloproliferative blood...

https://connect.mayoclinic.org/comment/1097321/

Discussion: Why is a new bone marrow biopsy necessary?

Support Group: Blood Cancers & Disorders

Posted: Jul 1, 2024

I am also inerested in what medication you are currently taking. I was on Anagrelide for...

https://connect.mayoclinic.org/comment/1203927/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 4 4:39pm

Thank you , your post was a Godsend. After a down day yesterday with my husband’s...

https://connect.mayoclinic.org/comment/1252374/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Mar 7 8:56am

Bonnie, You will be amazed at how it will all come together with planning. Having such...

https://connect.mayoclinic.org/comment/1324245/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 10 10:56am

Yes unfortunately that is true. For years after my mom passed from Myelofibrosis I donate to...

https://connect.mayoclinic.org/comment/982569/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2023

Erikaerika, I just looked at NIH.gov and as of 2020 the median survival age of people...

https://connect.mayoclinic.org/comment/799775/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Jan 21, 2023

Hi @casevin7 JAK2 is an acquired mutation so it is possible to develop it in the...

https://connect.mayoclinic.org/comment/870437/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2023

Hi @davi0937, I am not of any help as I really do not know what “type”...

https://connect.mayoclinic.org/comment/1348648/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 15 9:33am

Blood Cancers & Disorders Support Group