Blood Cancers & Disorders Support Group

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Comments (527)

Hydroxyurea tends to lower blood cells, so it's unlikely to help with low platelets. JAK inhibitors...

https://connect.mayoclinic.org/comment/1249599/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2025

Good morning. I’m 71. I was diagnosed with myelofibrosis a few years ago. Was asymptomatic at...

https://connect.mayoclinic.org/comment/1502910/

Discussion: Anyone have Myelofibrosis (CMS-HCC)?

Support Group: Blood Cancers & Disorders

Posted: Feb 11 6:10am

Hi, I hope this discussion restarts! After having high platelets on a routine physical with lab...

https://connect.mayoclinic.org/comment/1351541/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2025

Honestly, I really do not think my O/H knows if I have ET or Myelofibrosis. I...

https://connect.mayoclinic.org/comment/1281668/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2025

I have had high triglycerides for forty years a low HDL. In my case, it had...

https://connect.mayoclinic.org/comment/1226850/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2025

Hi @wellness3070. I'd also like to introduce you to other members who have myelofibrosis or are...

https://connect.mayoclinic.org/comment/132597/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2017

Welcome to Mayo Connect, @chrisatwell. We all occasionally need a lifeline. And sometimes all it takes...

https://connect.mayoclinic.org/comment/1265486/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 24, 2025

Hi @dawnmarieyoung I just wanted to follow-up with you to see if you caught my reply...

https://connect.mayoclinic.org/comment/1368963/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Aug 12, 2025

Hi dunewalker, Since I really do not know what I actually have, a have not taken...

https://connect.mayoclinic.org/comment/1268772/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2025

Welcome to Connect, @jtcat7. Looks like you have a full deck of mutations in your hand....

https://connect.mayoclinic.org/comment/1367613/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2025

I was diagnosed by Mayo with myelofibrosis several years ago. Since then, various clinics have repeatedly...

https://connect.mayoclinic.org/comment/699543/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2022

Hi again @davi0937, You have company as I was diagnosed with that also, but in February...

https://connect.mayoclinic.org/comment/1349931/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 16, 2025

Hi @mahmoudbakry. Sometimes diagnosing a blood condition can be like unraveling a complicated mystery with an...

https://connect.mayoclinic.org/comment/1044404/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2024

Thank you so much for proving this link, sdduan. It's really interesting to hear high-level MPN...

https://connect.mayoclinic.org/comment/1166064/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2024

:Yes I am being treated for myelofibrosis with Jakafi. I was never able to take the...

https://connect.mayoclinic.org/comment/1099091/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2024

You will find on this site lot’s encouraging and people with words of wisdom on your...

https://connect.mayoclinic.org/comment/1312965/

Discussion: Primary Myelofibrosis: What is life going to be like now?

Support Group: Blood Cancers & Disorders

Posted: May 26, 2025

Thank you so much for your positive comments on Ojjaara. For two years I have not...

https://connect.mayoclinic.org/comment/1167877/

Discussion: Primary Myelofibrosis with JAK2: Anyone have Ojjaara (momelotinib)?

Support Group: Blood Cancers & Disorders

Posted: Nov 4, 2024

Hi @samlupowitz I'm curious... When you say "...was diagnosed with myelofibrosis a few years ago. Was...

https://connect.mayoclinic.org/comment/1503296/

Discussion: Anyone have Myelofibrosis (CMS-HCC)?

Support Group: Blood Cancers & Disorders

Posted: Feb 11 2:20pm

I'm just starting on Jakafi and am anxious about the side effects and the necessity of...

https://connect.mayoclinic.org/comment/1381817/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 29, 2025

Hi, @toste. I was diagnosed with prefibrotic myelofibrosis in June. JAK2, ASXL1, ZRSR2 & TET2 mutations....

https://connect.mayoclinic.org/comment/1433724/

Discussion: Are there support groups for Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2025

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