Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

751 total results

Comments (697)

So I have MDs now on chemo drugs to prepare me for SCT hopefully it will...

https://connect.mayoclinic.org/comment/879865/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2023

Have minor mds but getting tranfusions every 2weeks now have high fertin which dr wants me...

https://connect.mayoclinic.org/comment/597339/

Discussion: High ferritin levels and post shoulder tendon operation pain/Exhausted

Support Group: Blood Cancers & Disorders

Posted: Apr 26, 2021

Hi Cindy, not every comment here will be relevant to your husband’s case. But those of...

https://connect.mayoclinic.org/comment/1284004/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Apr 17 12:12pm

@dstraus, did I read correctly that you have myelodysplasia or a myelodysplastic syndrome (MDS)? What concerns...

https://connect.mayoclinic.org/comment/597782/

Discussion: High ferritin levels and post shoulder tendon operation pain/Exhausted

Support Group: Blood Cancers & Disorders

Posted: Apr 27, 2021

jschellhaas. I had MDS. Mu diagnosis last October 2023. The first thing my hematologist did was...

https://connect.mayoclinic.org/comment/1198034/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2024

I'm interested in this topic, because I have MDS. I have been receiving weekly injections of...

https://connect.mayoclinic.org/comment/871577/

Discussion: MDS and cognitive decline

Support Group: Blood Cancers & Disorders

Posted: Jun 3, 2023

Yes. MDS. I have transfusions every 6 weeks. I noticed my RBC count went down when...

https://connect.mayoclinic.org/comment/683647/

Discussion: Does estrogen therapy increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2022

Hi Howard, I’m going to answer this question about SCT in your similar post with the...

https://connect.mayoclinic.org/comment/879911/

Discussion: How does someone “feel” with untreated AML?

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2023

I have MDS/MPN-RS-T which is an extremely rare overlap disease. I have multiple gene mutations on...

https://connect.mayoclinic.org/comment/855780/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: May 7, 2023

Good morning. I just wanted to check in with you to see how your husband is...

https://connect.mayoclinic.org/comment/1067700/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: May 14, 2024

Awaiting bone marrow biopsy for low cbc an low platelets so diagnosis appears to be mds...

https://connect.mayoclinic.org/comment/806870/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2023

Dear @memesedona Hoe you are doing now? I saw your comment how diagnosed with MDS? From...

https://connect.mayoclinic.org/comment/1025781/

Discussion: Low platelet count of around 120,000: What should be looked at?

Support Group: Blood Cancers & Disorders

Posted: Mar 2, 2024

Lori, did you see the report on Robin Roberts GMA on MDS. I didn’t realize she...

https://connect.mayoclinic.org/comment/815302/

Discussion: Any suggestions to alleviate Bone Pain from Multiple Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2023

I have had MDS since 2015 with very low platelets being the essential problem. I have...

https://connect.mayoclinic.org/comment/818995/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Feb 28, 2023

Hi Kathy, I am very sorry to hear about your husband. It sounds like he is...

https://connect.mayoclinic.org/comment/962371/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2023

I have MDS with ring seidoblast I took Procrit for 4 years then went to Inqovi...

https://connect.mayoclinic.org/comment/656252/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Nov 21, 2021

Hi Howard, @tyson1221. It’s been quite a few months and I just wanted to check in...

https://connect.mayoclinic.org/comment/986044/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2023

Go to the MDS Research Foundation website and the MPN Research Foundation website. They have some...

https://connect.mayoclinic.org/comment/284524/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2019

Hello @barbwsm! I imagine you are not feeling great. You do not mention whether your physician...

https://connect.mayoclinic.org/comment/1099071/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2024

My husband has MDs. Low platelets. They were at 28k. I started him on papaya and...

https://connect.mayoclinic.org/comment/1211664/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Jan 14 9:03pm