Blood Cancers & Disorders Support Group

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Comments (1,383)

Welcome to Connect @kwmotley Reading through your comments it looks like you’re taking a daily aspirin...

https://connect.mayoclinic.org/comment/974721/

Discussion: Jak 2 mutations

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2023

My diagnosis is Atypical Chronic myeloid leukemia. JAK2 mutation. There isn’t a protocol to treat it...

https://connect.mayoclinic.org/comment/907572/

Discussion: Massive spleen and dangerous low platelet count

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2023

My son must have had the molecular panel because he does NOT have Jak2, but does...

https://connect.mayoclinic.org/comment/194323/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2019

Hello @livelife, welcome to Connect. You may notice I moved your discussion and combined it with...

https://connect.mayoclinic.org/comment/194359/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 30, 2020

With me they found high platelets and had me see a hematologist who tested for jak2...

https://connect.mayoclinic.org/comment/974148/

Discussion: Jak 2 mutations

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2023

I found an article for you that may help explain about the JAK2 gene and how...

https://connect.mayoclinic.org/comment/1142007/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2024

Welcome to our group. I was very interested to read that you have both ET and...

https://connect.mayoclinic.org/comment/786724/

Discussion: Does anyone else have more than one myeloproliferative disorder?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2022

Wow! You must have a strong stomach to be able to take 325mg of aspirin. I...

https://connect.mayoclinic.org/comment/975891/

Discussion: Jak 2 mutations

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2023

@nohrt4me Thank you for your reply. I do have the JAK2 gene mutation and both my...

https://connect.mayoclinic.org/comment/1404334/

Discussion: My wife tested positive for jak2 and has high platelet count

Support Group: Blood Cancers & Disorders

Posted: Sep 29, 2025

@dreamspinner3 I think mastocytosis is caused by the a KIT mutation. It's fairly easy to differentiate...

https://connect.mayoclinic.org/comment/1404207/

Discussion: My wife tested positive for jak2 and has high platelet count

Support Group: Blood Cancers & Disorders

Posted: Sep 29, 2025

@sarahgault I was diagnosed exactly a year ago...platelets 490. I'm 76 now, have quarterly blood work;...

https://connect.mayoclinic.org/comment/1554522/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Apr 19 1:44pm

Hello, does anyone know if DDR (DNA Damage Repair) can take place on the JAK2 V617F...

https://connect.mayoclinic.org/comment/1011176/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2024

@kjoauch Jak2 positive can be diagnosed from a single lab test. It’s very expensive and takes...

https://connect.mayoclinic.org/comment/1401652/

Discussion: Diagnosed with Polycythemia Vera in August. I was given Hdroxyurea

Support Group: Blood Cancers & Disorders

Posted: Sep 26, 2025

Hi jgjacksonmn1 If you like to read more about Polycythemia Vera (PV): Causes, Symptoms, Diagnosis, and...

https://connect.mayoclinic.org/comment/1519910/

Discussion: This is new, overwhelming. Wife is diagnosed with PV, we need support

Support Group: Blood Cancers & Disorders

Posted: Mar 4 11:35pm

I am currently taking 500 mg Hydroxyurea on Monday/Wednesday/Friday. Headaches are less. I have ET JAK2....

https://connect.mayoclinic.org/comment/940964/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2023

I was diagnosed around 2 1/2 years ago and agree that blood results along with JAK2...

https://connect.mayoclinic.org/comment/937883/

Discussion: Jak2 Detected, Healthy otherwise, What's next?

Support Group: Blood Cancers & Disorders

Posted: Sep 28, 2023

Blood test and 2 biopsies. Yes – JAK2 platelet count 893 – 75mg Aspirin and 500mg...

https://connect.mayoclinic.org/comment/887557/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 30, 2023

ET triple negative is where you do not have any of the 3 mutations of ET....

https://connect.mayoclinic.org/comment/1279571/

Discussion: Does your oncologist acknowledge that ET may cause bone pain?

Support Group: Blood Cancers & Disorders

Posted: Apr 11, 2025

Hello, have just read read posts about sleep apnea. I have had PV with JAK2 for...

https://connect.mayoclinic.org/comment/856718/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: May 8, 2023

Please do not rely on Chinese Herbs ( no disrespect )Please find a specialist to determine...

https://connect.mayoclinic.org/comment/1228037/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Feb 2, 2025