Blood Cancers & Disorders: Discussions | Page 8

Question, does anyone with essential thrombocythemia JAK2 taking 500 mg of Hydroxurea twice a day have...

https://connect.mayoclinic.org/comment/1203402/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Jan 3 9:54pm

I, too, have a JAK2 mutation with a low hemoglobin, slight increase in WBCs and elevated...

https://connect.mayoclinic.org/comment/878925/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2023

Hi, Just diagnosed with Polycythemia Vera on Friday. Negative JAK2 test, but other genetic changes noted...

https://connect.mayoclinic.org/comment/231783/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2019

Interesting that Dr did a DNA analysis. I had a bunch of blood tests and a...

https://connect.mayoclinic.org/comment/812995/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 17, 2023

I just learned that my JAK2 is positive. I spoke with my oncologist before the test...

https://connect.mayoclinic.org/comment/1319637/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Jun 3 4:54pm

I believe my oncologist, a melanoma specialist, was only concerned with the melanoma and did not...

https://connect.mayoclinic.org/comment/646957/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Oct 21, 2021

I wrote a correction today regarding my lab results that I misunderstood . I incorrectly wrote...

https://connect.mayoclinic.org/comment/1281213/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Apr 13 6:57pm

Hello @janemichele, welcome to Connect. It seems as though you have already done your research, but...

https://connect.mayoclinic.org/comment/284520/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2019

Hi I am living with Jak2 mutation. Would love to talk I was just diagnosed in...

https://connect.mayoclinic.org/comment/1293529/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Apr 30 12:21pm

Hello, @lmkmom I’ve been reading through a couple of your previous posts to see that you’ve...

https://connect.mayoclinic.org/comment/1320465/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 4 6:50pm

Hi @gigi05 You’re getting some great question suggestions from our helpful members! I can toss in...

https://connect.mayoclinic.org/comment/1272546/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Apr 2 11:09am

Hi, I was checked for JAK2 by a rheumatologist looking to see if I had rheumatoid...

https://connect.mayoclinic.org/comment/1228592/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 3 11:27am

Hi, I have ET/JAK2 & Dr wants me to start Hydroxyurea 1 per day. I’m concerned...

https://connect.mayoclinic.org/comment/789840/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2022

Most seem to start taking Hydroxyurea and low dose aspirin when first diagnosed with ET JAK2....

https://connect.mayoclinic.org/comment/787993/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2022

I'm taking 1500mg of HU daily along and 325mg aspirin. I'm 74, have ET Jak2. My...

https://connect.mayoclinic.org/comment/861686/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 18, 2023

Hello and I am new to this. My brother just got his JAK2 V617F back and...

https://connect.mayoclinic.org/comment/834314/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2023

Good to know that u are doing good mam. I'm 32 and recently diagnosed with ET...

https://connect.mayoclinic.org/comment/967362/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2023

According to my Heme doc, not all ETs are cancer. I have Jak2, which is not...

https://connect.mayoclinic.org/comment/894419/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 12, 2023

i was taking a baby aspirin before the discovery of the jak2 mutation. my platelet count...

https://connect.mayoclinic.org/comment/1085852/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 12, 2024

Welcome @toriaflo. I hope you saw @loribmt's post with some info related to your question about...

https://connect.mayoclinic.org/comment/737415/

Discussion: Polycythemia vera (PV): Does altitude matter?

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2022

Blood Cancers & Disorders Support Group