Blood Cancers & Disorders Support Group

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Comments (418)

I was really surprised to find out that my primary doctor, dermatologist , ENT, eye doctor...

https://connect.mayoclinic.org/comment/1086360/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2024

Agree with the itching...this article made me chuckle because I asked my kid to get me...

https://connect.mayoclinic.org/comment/1315205/

Discussion: Developed Rash on Hydroxyurea (HU)

Support Group: Blood Cancers & Disorders

Posted: May 28 6:10pm

Hi I am 75 also and diagnosed maybe in 2019. Anyhow I have only done baby...

https://connect.mayoclinic.org/comment/1368778/

Discussion: How bad is a diagnosis of Polycythemia Vera?

Support Group: Blood Cancers & Disorders

Posted: Aug 12 3:46am

Thank you for your response. I had to take Hydrea for 18 months before I was...

https://connect.mayoclinic.org/comment/821980/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2023

I too experience chronic itching, primarily on my back and in the evening. I understand that...

https://connect.mayoclinic.org/comment/819136/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2023

Hi @littlebluebird I’m so sorry your mom is having the nasty itchiness associated with MDS. As...

https://connect.mayoclinic.org/comment/1202303/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Jan 2 9:40am

Thank you Lori. I will do my blood work next week to see if the white...

https://connect.mayoclinic.org/comment/1330041/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 18 3:27pm

I have PCV with Jak 2 . I take 2 baby aspirin a day and phlebotomy...

https://connect.mayoclinic.org/comment/919662/

Discussion: PV with high blood pressure and now edema??

Support Group: Blood Cancers & Disorders

Posted: Aug 27, 2023

Fatigue is a major complaint. I nap almost every day. Taking 1000mg of hydroxyurea and baby...

https://connect.mayoclinic.org/comment/869738/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: May 31, 2023

I get Procrit shots for my myelodysplastic syndrome which help a lot, BUT I'm also having...

https://connect.mayoclinic.org/comment/240723/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2019

Good evening @trillium. I just follow itching because I have now been suffering from the "itch"...

https://connect.mayoclinic.org/comment/337171/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Mar 18, 2021

For me it was the hemoglobin always within range (17-19) , I also feel tired most...

https://connect.mayoclinic.org/comment/1022926/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2024

Were you started on that dose oh HU or was it increased gradually? I was started...

https://connect.mayoclinic.org/comment/1177357/

Discussion: palmar-plantar erythrodysesthesia and ET

Support Group: Blood Cancers & Disorders

Posted: Nov 21, 2024

Doing very well, thanks for asking, and the info. If I had to guess, itching ranks...

https://connect.mayoclinic.org/comment/769693/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2022

My sister has CTCL and I’m looking for ways to help her. She has been having...

https://connect.mayoclinic.org/comment/1340602/

Discussion: Cutaneous T-cell lymphoma consistent with mycosis fungoides

Support Group: Blood Cancers & Disorders

Posted: Jul 3 5:12pm

Thank you for sharing this info I too have PV and am on hydroxy and blood...

https://connect.mayoclinic.org/comment/1086170/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2024

@swhitman410 It is really nice that you are trying to help your Mom deal with her...

https://connect.mayoclinic.org/comment/744189/

Discussion: Hemochromatosis: How do you deal with extreme itchiness?

Support Group: Skin Health

Posted: Sep 1, 2022

Hi. I have ET and I have been taking Hydroxyuria for almost two years. It is...

https://connect.mayoclinic.org/comment/805626/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Feb 2, 2023

I should have stuck with Hydroxyurea. The first Besremi shot in Feb. Biweekly thereafter. Starter dose...

https://connect.mayoclinic.org/comment/1386975/

Discussion: After 3 months on hydroxyurea, I am going to ask to switch to Besremi

Support Group: Blood Cancers & Disorders

Posted: 1 day ago

I have Polycythemia Vera with Jak2 an 76 years old and diagnosed 3 yrs ago. My...

https://connect.mayoclinic.org/comment/1222785/

Discussion: Polycythemia Vera and low iron

Support Group: Blood Cancers & Disorders

Posted: Jan 27 7:38am