Blood Cancers & Disorders Support Group

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Comments (486)

@colleenyoung Good Morning friends , I JUST READTHIS AND OTHER POSTS WHERE FRIENDS ARE SUFFERING FROM...

https://connect.mayoclinic.org/comment/1416633/

Discussion: Developed Rash on Hydroxyurea (HU)

Support Group: Blood Cancers & Disorders

Posted: Oct 16, 2025

@ina2022 No rash, but a lot of burning, itching in lower legs and feet, esp at...

https://connect.mayoclinic.org/comment/1516963/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Mar 1 7:34am

trillium @trillium, Uncontrollable itchy Itch (also known as pruritus) As child, use to scream all night...

https://connect.mayoclinic.org/comment/817073/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2023

I have been diagnosed with MDS 2016. Now I have been diagnosed with CMML. 3 yrs...

https://connect.mayoclinic.org/comment/1328601/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2025

@niki101, what type of chemo is your family member getting? Did they tell their cancer care...

https://connect.mayoclinic.org/comment/312760/

Discussion: Hodgkin's lymphoma and itching and other side effects

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2020

Thank you! This is a recent development but it is everywhere mostly torso upper legs and...

https://connect.mayoclinic.org/comment/1094402/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Jun 26, 2024

25 mg since March 3. 14 days on , 7 off in 21 day cycles. I...

https://connect.mayoclinic.org/comment/1286157/

Discussion: Is anyone here taking Revlimid? If so please share with me

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2025

Thank you for sharing that bit of great news, @hlmcneely! You might just be a hero...

https://connect.mayoclinic.org/comment/1202641/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Jan 2, 2025

Ginger, appreciate your concern for my itching relief. Went back on the Dexa as it was...

https://connect.mayoclinic.org/comment/1008176/

Discussion: Dexamethasone, anyone prescribed this drug for itchiness?

Support Group: Blood Cancers & Disorders

Posted: Feb 2, 2024

I’m 76 and was diagnosed with PV/ Jak 2. 3 yrs ago .I have been on...

https://connect.mayoclinic.org/comment/1236551/

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2025

Thank You for sharing I am just wanting to understand more of what to expect. I...

https://connect.mayoclinic.org/comment/924443/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 5, 2023

Hello I was diagnosed 5 years ago. I am a 59 y/o female. My platelets are...

https://connect.mayoclinic.org/comment/749288/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Sep 14, 2022

Good morning, I too suffer from T-Cell Lymphoma, my subtype is known as Sezary Syndrome. My...

https://connect.mayoclinic.org/comment/951268/

Discussion: What helps with the pain of T cell lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Oct 21, 2023

I have polycythemia Vera and was diagnosed in May of 2023. I had the itching 3...

https://connect.mayoclinic.org/comment/818912/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Feb 28, 2023

Itching is often mentioned I haven't had that issue Does make you more susceptible to basal...

https://connect.mayoclinic.org/comment/1463726/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2025

I appreciate your comments. Helps me a lot. I've only had one infusion so far. I...

https://connect.mayoclinic.org/comment/1346428/

Discussion: Anyone have Rituximab infusion for lymphoma treatment? Did it help?

Support Group: Blood Cancers & Disorders

Posted: Jul 12, 2025

Diagnosed a year ago my symptoms leading up to that were headaches, itching and red triangles...

https://connect.mayoclinic.org/comment/886963/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2023

I had a lot of tingling in my hands and feet. Headaches and a red face...

https://connect.mayoclinic.org/comment/887284/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2023

@ubear56 Headaches, red face, itching which I’m an outlier for that luckily and some stinging in...

https://connect.mayoclinic.org/comment/1402442/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2025

This is a follow-up to my first post here about my 80 year old husband. He...

https://connect.mayoclinic.org/comment/955890/

Discussion: Immune Thrombocytopenia Purpura (ITP): What helps?

Support Group: Blood Cancers & Disorders

Posted: Oct 29, 2023