Blood Cancers & Disorders Support Group | Page 8

Welcome to Connect, @platlite7. This is a bit of a conundrum for you with the conflict...

https://connect.mayoclinic.org/comment/1096235/

Discussion: Type 1 diabetes and essential thrombocythemia: Anyone have both?

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2024

Do you know if you have any acquired gene mutations that have caused you to have...

https://connect.mayoclinic.org/comment/1091461/

Discussion: I have ET a blood Cancer and I need advice.. Terry

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2024

Thanks for the info. I will be more diligent about my annual eye exam, as the...

https://connect.mayoclinic.org/comment/1080017/

Discussion: Is my treatment a bit aggressive?

Support Group: Blood Cancers & Disorders

Posted: Jun 3, 2024

It's been a while since the last post, but since I just picked up my prescription...

https://connect.mayoclinic.org/comment/1567502/

Discussion: Anyone with Essential Thrombocythemia & Sjogrens or autoimmune?

Support Group: Blood Cancers & Disorders

Posted: May 5 4:55pm

Hi @mamsgirl1998 As @eloise999, mentioned, Aggrenox isn’t a substitute for hydroxyurea. It is a combination of...

https://connect.mayoclinic.org/comment/1347018/

Discussion: Has anyone been switched from Hydrea to Aggrenox?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2025

Hi @jola13 Headaches are so miserable and it sounds like you have a doozy. I looked...

https://connect.mayoclinic.org/comment/896933/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 16, 2023

Hi, @lea123. Welcome to Mayo Connect. I’m happy you found our great community forum. I wish...

https://connect.mayoclinic.org/comment/668147/

Discussion: Delayed pain after bone marrow biopsy??

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2022

Hello @kapow and @winmil99. Welcome to Mayo Connect! I thought I’d include both of you in...

https://connect.mayoclinic.org/comment/887257/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2023

Welcome to @laurenashleyy. My daughter is just a couple years older than you are and I...

https://connect.mayoclinic.org/comment/895467/

Discussion: Overwhelmed- diagnosed with Thrombocytosis & Leukocytosis

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2023

ET, cancer or not? I realize doctors disagree. But be aware that if you are applying...

https://connect.mayoclinic.org/comment/1048393/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2024

Hi @kroolivera. You bring up a valid concern regarding your diagnosis and childbearing. As it just...

https://connect.mayoclinic.org/comment/203942/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2018

Hi @julmo Welcome to Mayo Connect. Thank you for sharing your story with having ET and...

https://connect.mayoclinic.org/comment/1516539/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Feb 28 12:04pm

I have essential thrombocythemia, with JAK2 gene. Diagnosed in 2022 after a emergency gall bladder operation....

https://connect.mayoclinic.org/comment/1020141/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Feb 21, 2024

Hi @milestogo Although it is more common for people over 50-ish to develop blood conditions such...

https://connect.mayoclinic.org/comment/1524561/

Discussion: ET under 50: I’m always the baby in these groups.

Support Group: Blood Cancers & Disorders

Posted: Mar 11 10:16am

Hi @kapow. While you’re waiting for other members taking hydroxy to Essential thrombocythemia can also impact...

https://connect.mayoclinic.org/comment/1026013/

Discussion: Pain in Upper Left Abdomen

Support Group: Blood Cancers & Disorders

Posted: Mar 2, 2024

Welcome back @esperanzam. You'll notice that I moved your message to this existing discussion about Essential...

https://connect.mayoclinic.org/comment/146321/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2021

essential thrombocythemia (ET) can sometimes be diagnosed without a bone marrow biopsy if a driver mutation...

https://connect.mayoclinic.org/comment/1507899/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 17 8:14am

@nolablance This is an interesting find! I do have Granuloma Anulare on my forearms and elbows...

https://connect.mayoclinic.org/comment/1495639/

Discussion: Please is there anyone diagnosed with chronic granulomatous disease?

Support Group: Blood Cancers & Disorders

Posted: Feb 1 11:19am

I have ET, and have tested negative for the JAC2. I've been taking Hydrea 500mg for...

https://connect.mayoclinic.org/comment/194260/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2018

Hi @suanne90. You’ve popped into a conversation in the Blood Cancers & Disorders Support Group. The...

https://connect.mayoclinic.org/comment/1166282/

Discussion: Any suggestions on what time of day is best for taking Hydroxyurea?

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2024