Blood Cancers & Disorders Support Group | Page 8

@lynns51 Each of us experiences ET and HU differently. So please understand, this is just my...

https://connect.mayoclinic.org/comment/1553330/

Discussion: Anyone diagnosed with Essential Thrombocythemia (ET) with CALR?

Support Group: Blood Cancers & Disorders

Posted: 6 days ago

I am 25 years old and have just been diagnosed with both ET and Crohn’s disease...

https://connect.mayoclinic.org/comment/802478/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jan 27, 2023

Hi, After you visited your ENT, was there any connection between frequent sinus infections and your...

https://connect.mayoclinic.org/comment/1211641/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2025

70 yrs old, oral chemo for six years for ET. No libido side effects here, but...

https://connect.mayoclinic.org/comment/1056990/

Discussion: Sex drive

Support Group: Blood Cancers & Disorders

Posted: Apr 25, 2024

Has anyone found Vitamin D helpful for ET?

https://connect.mayoclinic.org/comment/1073097/

Discussion: Polycythemia Vera or Essential Thrombocythemia ?

Support Group: Blood Cancers & Disorders

Posted: May 23, 2024

ET is not supposed to reduce life expectancy, but it MAY reduce quality of life, either...

https://connect.mayoclinic.org/comment/1018460/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2024

@sdcgcarroll Sadly, you will not find a comprehensive list of symptoms and side effects because they...

https://connect.mayoclinic.org/comment/1538563/

Discussion: Essential Thrombocytosis General Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 30 8:36am

Does anyone know if there is a correlation between ET and gluten sensitivity?

https://connect.mayoclinic.org/comment/1009096/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2024

Do you think it is for ET reasonable as well to take interferon?

https://connect.mayoclinic.org/comment/1488466/

Discussion: New study: Early treatment with interferon can delay myelofibrosis

Support Group: Blood Cancers & Disorders

Posted: Jan 22 12:47am

The way I understand it MPN specialists are hematologists with sub speciality of MPN’s such as...

https://connect.mayoclinic.org/comment/797781/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jan 16, 2023

I have started teriparatide for osteoporosis treatment, I also have had essential thrombocytosis (ET) a, myeloproliferative...

https://connect.mayoclinic.org/comment/859231/

Discussion: Teriparatide and ET are there associated risks with this treatment?

Support Group: Blood Cancers & Disorders

Posted: May 13, 2023

@milestogo, along with @vivoconte, I'm tagging a few other "babies" like @tinak123 @nancyra and @lynnevb who...

https://connect.mayoclinic.org/comment/1526898/

Discussion: ET under 50: I’m always the baby in these groups.

Support Group: Blood Cancers & Disorders

Posted: Mar 14 2:47pm

I've been having bone pain for 3 years before I was officially diagnosed with ET and...

https://connect.mayoclinic.org/comment/1141971/

Discussion: Does your oncologist acknowledge that ET may cause bone pain?

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2024

Also prescribed teriparatide. Worried about it increasing my ET

https://connect.mayoclinic.org/comment/1214982/

Discussion: Teriparatide and ET are there associated risks with this treatment?

Support Group: Blood Cancers & Disorders

Posted: Jan 17, 2025

Hi @sarahgault, Welcome to Connect. I’m glad your best friend found this forum for you! They’re...

https://connect.mayoclinic.org/comment/1551911/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Apr 16 10:09am

Hi, John! Nice to hear from you. I guess I'm not clear on why docs thought...

https://connect.mayoclinic.org/comment/1000898/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2024

@mmkennedy Thanks for sharing your story. I too am ET triple negative. I have had this...

https://connect.mayoclinic.org/comment/1535074/

Discussion: ET: untreated elevated platelets for over 13 years

Support Group: Blood Cancers & Disorders

Posted: Mar 25 11:13am

@msmac3 Also in Michigan, now lower part of the state instead of UP. Yes, weather changes...

https://connect.mayoclinic.org/comment/1550148/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Apr 14 7:19am

thank you this is very informative. Were you diagnosed with ET?

https://connect.mayoclinic.org/comment/1010482/

Discussion: How bad is a diagnosis of Polycythemia Vera? What to expect?

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2024

I have had ET for about 3 yrs . Had bone marrow biopsy cause platelets so...

https://connect.mayoclinic.org/comment/641259/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2021