Blood Cancers & Disorders Support Group

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Comments (940)

@pmm It seems the neuropathy is related to my multiple myeloma, and the spine/hip issues from...

https://connect.mayoclinic.org/comment/882571/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2023

Diagnosed (MM) Multiple Myeloma Jan '25 started Revlimid with my treatments- no side effects and my...

https://connect.mayoclinic.org/comment/1277892/

Discussion: What are your experiences with lenalidomide (Revlimid) for MDS?

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2025

I am 79 with MGUS..father died of multiple myeloma. RBC is slightly lower..will be tested again...

https://connect.mayoclinic.org/comment/1149117/

Discussion: Does MGUS cause red blood cells (RBCs) to drop?

Support Group: Blood Cancers & Disorders

Posted: Sep 29, 2024

FLC is free light chains (kappa and lambda). Measurement of these is used to help diagnoses...

https://connect.mayoclinic.org/comment/1144049/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 19, 2024

@pro Welcome to Mayo Connect! We're glad you found us. We are patients/caregivers/family members here, offering...

https://connect.mayoclinic.org/comment/81213/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2020

My mother after 10 yrs of kidney transplant now diagnosed with multiple myeloma at very initial...

https://connect.mayoclinic.org/comment/1586453/

Discussion: MGUS and pain

Support Group: Blood Cancers & Disorders

Posted: May 30 1:59am

@kjoed53 Well these forums are a great place for info. There is one specifically geared toward...

https://connect.mayoclinic.org/comment/1565758/

Discussion: Smoldering Multiple Myeloma SMM Bloodwork numbers

Support Group: Blood Cancers & Disorders

Posted: May 3 4:16pm

I met a hem/onc who has studied diet in multiple myeloma patients, so perhaps her research...

https://connect.mayoclinic.org/comment/952966/

Discussion: New to CLL-no treatment-what to eat?

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2023

@ericgray, you're right that POEMS often is misdiagnosed or delayed in diagnosis because of a wide-range...

https://connect.mayoclinic.org/comment/1542704/

Discussion: Husband with POEMS Syndrome

Support Group: Caregivers

Posted: Apr 4 12:38pm

I had test that showed m spike 1.1....does it always mean multiple myeloma cancer? Go to...

https://connect.mayoclinic.org/comment/109728/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2019

Totally my screw up. I have both multiple myeloma MM stage 1 and systemic mastocytosis. Those...

https://connect.mayoclinic.org/comment/665077/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2021

I had some large wbc's and the specialists say they r related to multiple myeloma. However...

https://connect.mayoclinic.org/comment/1365715/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2025

I have MGUS and found this worth sharing: MMRF Patient Webinar Series – Multiple Myeloma Precursor...

https://connect.mayoclinic.org/comment/843209/

Discussion: I have MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2023

@tml What milligram level of Revlimid are you being prescribed? Also, I forgot which form of...

https://connect.mayoclinic.org/comment/688373/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Mar 10, 2022

Thank you I was not familiar with MPN. However I do watch videos on Multiple Myeloma,...

https://connect.mayoclinic.org/comment/1431439/

Discussion: Asked chatGPT about how long to be on treatment for Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2025

@redgiles Welcome to Mayo Clinic Connect. First, congratulations on your 24 year thriver of breast cancer!...

https://connect.mayoclinic.org/comment/754486/

Discussion: possible Myeloma ? big shocking surprise !!

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2022

@kkieft My mother after 10 yrs of kidney transplant now diagnosed with multiple myeloma at very...

https://connect.mayoclinic.org/comment/1586452/

Discussion: MGUS and pain

Support Group: Blood Cancers & Disorders

Posted: May 30 1:59am

I want to stay in the Multiple Myeloma Group also, need to hear how other patients...

https://connect.mayoclinic.org/comment/109633/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Sep 11, 2016

Get a second opinion. UW Health, Madison, Wisconsin, has Dr. Natallie Callandar, an Elite doctor and...

https://connect.mayoclinic.org/comment/1438390/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Nov 14, 2025

Yes I'm connected to the international multiple myeloma org. And i do contact them for queries....

https://connect.mayoclinic.org/comment/806963/

Discussion: Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2023

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