Blood Cancers & Disorders Support Group

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Comments (905)

I am 79 with MGUS..father died of multiple myeloma. RBC is slightly lower..will be tested again...

https://connect.mayoclinic.org/comment/1149117/

Discussion: Does MGUS cause red blood cells (RBCs) to drop?

Support Group: Blood Cancers & Disorders

Posted: Sep 29, 2024

FLC is free light chains (kappa and lambda). Measurement of these is used to help diagnoses...

https://connect.mayoclinic.org/comment/1144049/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 19, 2024

I met a hem/onc who has studied diet in multiple myeloma patients, so perhaps her research...

https://connect.mayoclinic.org/comment/952966/

Discussion: New to CLL-no treatment-what to eat?

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2023

@pro Welcome to Mayo Connect! We're glad you found us. We are patients/caregivers/family members here, offering...

https://connect.mayoclinic.org/comment/81213/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2020

I had test that showed m spike 1.1....does it always mean multiple myeloma cancer? Go to...

https://connect.mayoclinic.org/comment/109728/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2019

Totally my screw up. I have both multiple myeloma MM stage 1 and systemic mastocytosis. Those...

https://connect.mayoclinic.org/comment/665077/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2021

I had some large wbc's and the specialists say they r related to multiple myeloma. However...

https://connect.mayoclinic.org/comment/1365715/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2025

I have MGUS and found this worth sharing: MMRF Patient Webinar Series – Multiple Myeloma Precursor...

https://connect.mayoclinic.org/comment/843209/

Discussion: I have MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2023

@tml What milligram level of Revlimid are you being prescribed? Also, I forgot which form of...

https://connect.mayoclinic.org/comment/688373/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Mar 10, 2022

Thank you I was not familiar with MPN. However I do watch videos on Multiple Myeloma,...

https://connect.mayoclinic.org/comment/1431439/

Discussion: Asked chatGPT about how long to be on treatment for Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2025

@redgiles Welcome to Mayo Clinic Connect. First, congratulations on your 24 year thriver of breast cancer!...

https://connect.mayoclinic.org/comment/754486/

Discussion: possible Myeloma ? big shocking surprise !!

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2022

I want to stay in the Multiple Myeloma Group also, need to hear how other patients...

https://connect.mayoclinic.org/comment/109633/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Sep 11, 2016

Get a second opinion. UW Health, Madison, Wisconsin, has Dr. Natallie Callandar, an Elite doctor and...

https://connect.mayoclinic.org/comment/1438390/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Nov 14, 2025

Yes I'm connected to the international multiple myeloma org. And i do contact them for queries....

https://connect.mayoclinic.org/comment/806963/

Discussion: Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2023

she had a stem cell transplant2012 for multiple myeloma been in remission since,been on 5 mg...

https://connect.mayoclinic.org/comment/663182/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Dec 17, 2021

@wesleym good information! I thank you for those and would add that I found this informative....

https://connect.mayoclinic.org/comment/1357711/

Discussion: Question to ask about MGUS Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2025

Can someone explain the IgG, IgM, IgA... and the significance of Kappa light chains, Lambda light...

https://connect.mayoclinic.org/comment/715836/

Discussion: Low T-Cell - Bone Marrow Biopsy

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2022

After 5 phone calls, we have learned that the test results are negative for multiple myeloma....

https://connect.mayoclinic.org/comment/172451/

Discussion: Waiting on Multiple Myeloma testing

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2017

Hi Wyom1998, welcome to Mayo Clinic Connect. You asked to connect with someone who has both...

https://connect.mayoclinic.org/comment/637877/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2021

My sister had this disease from 1988-1991. My niece has just be diagnosed with multiple myeloma...

https://connect.mayoclinic.org/comment/1357557/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2025