Blood Cancers & Disorders: Discussions | Page 7

Hi circawdm, I would agree with what you said if one has ET. My O/H told...

https://connect.mayoclinic.org/comment/1316170/

Support Group: Blood Cancers & Disorders

Posted: May 30 12:50am

@pesterthief, I found this information: "Primary idiopathic myelofibrosis is a rare myeloproliferative condition which can present...

https://connect.mayoclinic.org/comment/1168109/

Discussion: Any suggestions on what time of day is best for taking Hydroxyurea?

Support Group: Blood Cancers & Disorders

Posted: Nov 4, 2024

This is pretty normal - I had pain in that area for about a month -...

https://connect.mayoclinic.org/comment/889844/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

Maybe your doctor should look on CDC, NIH and World Health Org..... In hematology, essential thrombocythemia...

https://connect.mayoclinic.org/comment/1280701/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Apr 13 9:43am

Hi davi0937, Like you, I was diagnosed with primary myelofibrosis but that was one month after...

https://connect.mayoclinic.org/comment/1338448/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 30 10:53am

Hello everybody,so this picture is my bone marrow biopsy results,I went to the doc and he...

https://connect.mayoclinic.org/comment/1039033/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2024

HI The only side affect I have had is tiredness, I avoid sitting in the sun...

https://connect.mayoclinic.org/comment/940309/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 2, 2023

Good evening I was diagnosed with primary myelofibrosis about a month ago. The bone marrow biopsy...

https://connect.mayoclinic.org/comment/1338019/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 29 5:32pm

derikburger @derikburg My PV caused Myelofibrosis, I was diagnosed Dec. 30, 2022 . Jakafi, Hydroxyurea ,...

https://connect.mayoclinic.org/comment/817148/

Discussion: Massive spleen and dangerous low platelet count

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2023

Greetings, I don't like the idea of looking towards an 'end stage'. That sounds like disaster....

https://connect.mayoclinic.org/comment/1049371/

Discussion: Anyone have information about late stages of primary myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2024

Have you had a bone marrow biopsy to be sure that what you’re dealing with is...

https://connect.mayoclinic.org/comment/1215424/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 18 8:07am

jseeker. Have you message The Moffitt center or her current dr for help with this symptom?...

https://connect.mayoclinic.org/comment/1210759/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 13 3:37pm

Glad that you share faith in Jesus Christ. Two things I observe: 1. It was a...

https://connect.mayoclinic.org/comment/1139944/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Sep 11, 2024

Thanks Coleen for your input. My husband's disease is not considered leukemia but a disease of...

https://connect.mayoclinic.org/comment/101842/

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: May 28, 2016

Hi withhope, I am very sorry you have had such a bad experience with all that....

https://connect.mayoclinic.org/comment/1305421/

Discussion: Getting nowhere with current Hematologist

Support Group: Blood Cancers & Disorders

Posted: May 16 11:08am

I am also inerested in what medication you are currently taking. I was on Anagrelide for...

https://connect.mayoclinic.org/comment/1203927/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 4 4:39pm

I have been taking Jakafi for post essential thrombocytosis (PET) Myelofibrosis since Nov 2020 and had...

https://connect.mayoclinic.org/comment/1091493/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2024

Hi @sonja239. I understand your duress with having received news that you have two myeloproliferative blood...

https://connect.mayoclinic.org/comment/1097321/

Discussion: Why is a new bone marrow biopsy necessary?

Support Group: Blood Cancers & Disorders

Posted: Jul 1, 2024

Hi @marygantt, I totally relate to feeling confused by doctor’s recommendations! I was diagnosed with ET...

https://connect.mayoclinic.org/comment/1325811/

Discussion: I am looking for advice on lab work and how to address my Dr about it

Support Group: Blood Cancers & Disorders

Posted: Jun 12 3:34pm

Yes unfortunately that is true. For years after my mom passed from Myelofibrosis I donate to...

https://connect.mayoclinic.org/comment/982569/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2023

Blood Cancers & Disorders Support Group