Blood Cancers & Disorders: Discussions | Page 7

My husband was diagnosed with primary myelofibrosis 1 month ago. The doctor hasn’t stated him on...

https://connect.mayoclinic.org/comment/1249038/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Mar 2 9:42pm

To determine if I still had polycythemia vera or myelofibrosis a bone marrow biopsy was done...

https://connect.mayoclinic.org/comment/876362/

Discussion: Delayed pain after bone marrow biopsy??

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2023

Recently diagnosed with essential thrombocythemia and primary myelofibrosis with MPL mutation. Blood transfusions and iron infusions...

https://connect.mayoclinic.org/comment/764111/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2022

Hi, I,too, took Hydroxyurea for years to combat high platelet count. About three years I was...

https://connect.mayoclinic.org/comment/50507/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2017

Wow. I'm terrible at this posting stuff I guess. I just saw that you had asked...

https://connect.mayoclinic.org/comment/1039752/

Discussion: High platelets, Jak2, ET, and pre-fib new diagnosis

Support Group: Blood Cancers & Disorders

Posted: Mar 25, 2024

This is the first discussion I have seen concerning myelofibrosis. I was diagnosed with Primary myelofibrosis...

https://connect.mayoclinic.org/comment/1209703/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 12 9:10am

Hi Steve, I couldn't find any evidence-based mentions of serrapeptase being used to help treat myelofibrosis....

https://connect.mayoclinic.org/comment/132609/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 24, 2017

I found it online. It's an open access article in Volume 67 (January 2024) of the...

https://connect.mayoclinic.org/comment/1226430/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 31 4:16pm

I was diagnosed with myelofibrosis, mds & mpn in March 2025. Im waiting for a donor...

https://connect.mayoclinic.org/comment/1368766/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Aug 12 2:42am

I couldn't get my Anagralide through hospital was going to cost the earth to get through...

https://connect.mayoclinic.org/comment/1202803/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 3 2:25am

I have just been diagnosed with Myelodysplastic Syndromes ( MDS-a bone marrow decease) & Myelofibrosis (MF-blood...

https://connect.mayoclinic.org/comment/194288/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 20, 2019

Glad to hear that the Besremi is working for folks! Anyone getting depression as a side...

https://connect.mayoclinic.org/comment/1379597/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Aug 26 9:03am

I am seeing Dr. Teffari at Mayo Clinic. He's the lead specialist in the world for...

https://connect.mayoclinic.org/comment/1194113/

Discussion: Primary Myelofibrosis: Continue watch & wait? 2nd opinion?

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2024

Hi @snakebite, If you do not mind my asking, did you have any symptoms when you...

https://connect.mayoclinic.org/comment/1345090/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 10 10:33am

Welcome to Connect, @ronegeorge. Thank you for sharing your encouraging experience with using Hydroxyurea to control...

https://connect.mayoclinic.org/comment/1081066/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2024

Diagnosed with prefibrotic myelofibrosis 7/25. 78 years old with JAK2, ASXL1, ZRSR2 & TET2 mutations. Platelets...

https://connect.mayoclinic.org/comment/1366821/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 9 7:57am

I haven’t experienced any of the symptoms mentioned for ET or myelofibrosis and went through menopause...

https://connect.mayoclinic.org/comment/1358557/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jul 28 1:54pm

I’m a 83-year-old female, diagnosed with lymphoma and myelofibrosis (JAK2 mutation) in June of 2024. I’ve...

https://connect.mayoclinic.org/comment/1252690/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 7 3:11pm

@loribmt - in reference to the pet question above and overall survivorship plan question. I am...

https://connect.mayoclinic.org/comment/1370713/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Aug 14 3:38pm

Over the last few years, studies have shown that reducing the allele burden for PV and...

https://connect.mayoclinic.org/comment/1222127/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jan 26 10:38am

Blood Cancers & Disorders Support Group