Blood Cancers & Disorders Support Group

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Comments (277)

Thanks for the info. I will be more diligent about my annual eye exam, as the...

https://connect.mayoclinic.org/comment/1080017/

Discussion: Is my treatment a bit aggressive?

Support Group: Blood Cancers & Disorders

Posted: Jun 3, 2024

Hi @jola13 Headaches are so miserable and it sounds like you have a doozy. I looked...

https://connect.mayoclinic.org/comment/896933/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 16, 2023

Hi Lynne, I see @janemc's wise words about the lack of information. There are a couple...

https://connect.mayoclinic.org/comment/1282117/

Discussion: Like to know more. Just told I have Triple Negative MPN.

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2025

Hi @rch552320 Your mom was recently diagnosed with thrombocytosis which is an excess of platelets in...

https://connect.mayoclinic.org/comment/1067044/

Discussion: 70 + year women with Thrombosis

Support Group: Blood Cancers & Disorders

Posted: May 13, 2024

Hi @mamsgirl1998 As @eloise999, mentioned, Aggrenox isn’t a substitute for hydroxyurea. It is a combination of...

https://connect.mayoclinic.org/comment/1347018/

Discussion: Has anyone been switched from Hydrea to Aggrenox?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2025

Welcome back @esperanzam. You'll notice that I moved your message to this existing discussion about Essential...

https://connect.mayoclinic.org/comment/146321/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2021

Hi @kapow. While you’re waiting for other members taking hydroxy to Essential thrombocythemia can also impact...

https://connect.mayoclinic.org/comment/1026013/

Discussion: Pain in Upper Left Abdomen

Support Group: Blood Cancers & Disorders

Posted: Mar 2, 2024

I have ET, and have tested negative for the JAC2. I've been taking Hydrea 500mg for...

https://connect.mayoclinic.org/comment/194260/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2018

ET, cancer or not? I realize doctors disagree. But be aware that if you are applying...

https://connect.mayoclinic.org/comment/1048393/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2024

Hi @kroolivera. You bring up a valid concern regarding your diagnosis and childbearing. As it just...

https://connect.mayoclinic.org/comment/203942/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2018

Hi @lindagualtieri, Welcome to Connect. Looks like you’ve been dubbed with a new diagnosis and have...

https://connect.mayoclinic.org/comment/1146045/

Discussion: Need help newly diagnosed with a high platelet count and the JAK2 gene

Support Group: Blood Cancers & Disorders

Posted: Sep 23, 2024

Hi, @lea123. Welcome to Mayo Connect. I’m happy you found our great community forum. I wish...

https://connect.mayoclinic.org/comment/668147/

Discussion: Delayed pain after bone marrow biopsy??

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2022

Hi Tessa! I was diagnosed with essential thrombocythemia in 2019 at the age of 64. My...

https://connect.mayoclinic.org/comment/1148876/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Sep 28, 2024

Hi @suanne90. You’ve popped into a conversation in the Blood Cancers & Disorders Support Group. The...

https://connect.mayoclinic.org/comment/1166282/

Discussion: Any suggestions on what time of day is best for taking Hydroxyurea?

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2024

Hello @kapow and @winmil99. Welcome to Mayo Connect! I thought I’d include both of you in...

https://connect.mayoclinic.org/comment/887257/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2023

Hi Jean, hope you had a fabulous christmas. Saw my Thyroid specialist, who has recommended that...

https://connect.mayoclinic.org/comment/1467731/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Dec 25, 2025

Just the hydroxy. i am still waiting to learn what the next step will be. My...

https://connect.mayoclinic.org/comment/791454/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Jan 2, 2023

Hi @healedbytheblood0119, you're right to do your research about best treatments for essential thrombocythemia. Anagrelide and...

https://connect.mayoclinic.org/comment/1010081/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2024

Hi @emma1971, Welcome to Connect. The medication you’re referring to, Ruxolitinib is actually a medication used...

https://connect.mayoclinic.org/comment/1293785/

Discussion: Started Hydroxyurea 5 weeks . How long does the fatigue last?

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2025

I also have ET. I need to find out if it is Essential Thrombocythemia or thrombocytosis?...

https://connect.mayoclinic.org/comment/805573/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Feb 2, 2023