Blood Cancers & Disorders Support Group

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Comments (2,257)

Are you asking about non-formal treatments for ET?

https://connect.mayoclinic.org/comment/1346680/

Discussion: Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Jul 12, 2025

Hello, suanne90! I have ET, MPL driver.

https://connect.mayoclinic.org/comment/1260242/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2025

Can anyone speak about the connections between a confirmed JAK 2 ET and other cancers beside...

https://connect.mayoclinic.org/comment/1512505/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 23 6:30am

Hello Everyone seeking answers to ET questions, Check out this link. I have had ET for...

https://connect.mayoclinic.org/comment/1400561/

Discussion: Living with ET

Support Group: Blood Cancers & Disorders

Posted: Sep 24, 2025

ET isn't the worst possible diagnosis -- but it's not a walk in the park, either....

https://connect.mayoclinic.org/comment/1489348/

Discussion: New study: Early treatment with interferon can delay myelofibrosis

Support Group: Blood Cancers & Disorders

Posted: Jan 23 10:11am

Hello. I am triple negative ET. I did not get blood tests when I was very...

https://connect.mayoclinic.org/comment/1496128/

Discussion: Misdx with VWD at 14, in my late 20’s now looks like ET/or MPN. help?

Support Group: Blood Cancers & Disorders

Posted: Feb 2 8:10am

@birgitr Thank you and I will post again after I go back for my next checkup....

https://connect.mayoclinic.org/comment/1494007/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jan 30 8:52am

anavleek, as if it weren't confusing enough . . . some doctors say ET is a...

https://connect.mayoclinic.org/comment/1281895/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2025

People with ET who are on hydroxyurea - I have ET JAK 2, dx in March...

https://connect.mayoclinic.org/comment/1551358/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Apr 15 3:31pm

Do you have ET? While not attributing causality, vaccine might reduce platelets in someone with ET,...

https://connect.mayoclinic.org/comment/815984/

Discussion: Shingrex and ET platelet levels

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2023

I was recently diagnosed with ET. Even tho I know that one can live with ET,...

https://connect.mayoclinic.org/comment/1249724/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2025

I have essential thrombocythemia (ET), too many platelets. All other counts were normal as of January,...

https://connect.mayoclinic.org/comment/826965/

Discussion: Essential Thrombocytosis - what's your experience with Jakifi?

Support Group: Blood Cancers & Disorders

Posted: Mar 16, 2023

@janemc Hi Sarah, Welcome to the group! Once your medication is adjusted to which dosage is...

https://connect.mayoclinic.org/comment/1553946/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: 5 days ago

Hi everybody, I'm here like you because i like to know people that is living with...

https://connect.mayoclinic.org/comment/203941/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 28, 2018

Thank you for posting it in the ET section as well I appreciate it

https://connect.mayoclinic.org/comment/838716/

Discussion: Multiple Stress Fractures while on meds for Essential Thrombocytosis

Support Group: Osteoporosis & Bone Health

Posted: Apr 6, 2023

The ET symptoms don’t get better when you are on HU?

https://connect.mayoclinic.org/comment/1280774/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2025

Yes I was told no organ donation with ET, that includes blood

https://connect.mayoclinic.org/comment/1195197/

Discussion: Blood Donor: Is it safe to donate blood if you have a blood condition?

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2024

I am a 69 yo female and I have ET with MPL mutation. I had an...

https://connect.mayoclinic.org/comment/1154686/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Oct 9, 2024

I was diagnosed with ET / CALR in 2021. Platelet count was 1.1 million and redid...

https://connect.mayoclinic.org/comment/1551671/

Discussion: Anyone diagnosed with Essential Thrombocythemia (ET) with CALR?

Support Group: Blood Cancers & Disorders

Posted: Apr 16 6:05am

@lynns51 Each of us experiences ET and HU differently. So please understand, this is just my...

https://connect.mayoclinic.org/comment/1553330/

Discussion: Anyone diagnosed with Essential Thrombocythemia (ET) with CALR?

Support Group: Blood Cancers & Disorders

Posted: 6 days ago