Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

268 total results

Comments (233)

I as well have mGus and also was told that an extremely small percentage of mGus...

https://connect.mayoclinic.org/comment/1168679/

Discussion: Does plant-based eating lower chances of MGUS progressing to myeloma?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2024

What are some of the symptoms to watch for? My Dad had Waldenstroms. I understand it...

https://connect.mayoclinic.org/comment/1374443/

Discussion: Waldenstrom macroglobulinemia (WM) 3 years: Might I be in remission?

Support Group: Blood Cancers & Disorders

Posted: Aug 19 3:40pm

Hi @raanderson, such a great question (and responses from fellow members). You might also be interested...

https://connect.mayoclinic.org/comment/273515/

Discussion: Protecting patient from getting infections from me & others

Support Group: Caregivers

Posted: Aug 27, 2019

Hi @brewmaster, welcome to Connect. I moved your message to this existing discussion about Waldenstrom macroglobulinemia...

https://connect.mayoclinic.org/comment/256249/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Apr 27, 2019

@sstouten, while we wait for other members to join this discussion, I'd encourage you to view...

https://connect.mayoclinic.org/comment/169958/

Discussion: I have been recently diagnosed with Waldenstrom Macroglobulinamia

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2017

He has autonomic neuropathy caused by his Waldenstroms (non-Hodgkins lymphoma). Not diagnosed until recently so pretty...

https://connect.mayoclinic.org/comment/113908/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2016

Thank you for the information. It is so nice to be able to ask a question...

https://connect.mayoclinic.org/comment/1042644/

Discussion: Second Opinions: How do I get one at Mayo Clinic out-of state?

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2024

Thank you for reaching out for support. WM is a very rare blood cancer. While it...

https://connect.mayoclinic.org/comment/812866/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Feb 17, 2023

I too have shortness of breath which is apparently attributable to low hemoglobin (I have Waldenstrom's...

https://connect.mayoclinic.org/comment/791282/

Discussion: Any suggestions for chronic shortness of breath with PV?

Support Group: Blood Cancers & Disorders

Posted: Jan 1, 2023

Hi @mariko572, you may wish to connect with other members living with Waldenstrom’s in this discussions:...

https://connect.mayoclinic.org/comment/790047/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2022

I'm sorry to hear of your diagnosis. Though I'm still watching and waiting, I find the...

https://connect.mayoclinic.org/comment/787689/

Discussion: Waldenstrom macroglobulinemia: What can I expect with chemo?

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2022

I am sorry to read you are now experiencing WM symptoms. I recommend that you contact...

https://connect.mayoclinic.org/comment/776531/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Nov 23, 2022

I’m between a rock and a hard place as far as being diagnosed with WM. The...

https://connect.mayoclinic.org/comment/750837/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Sep 17, 2022

@Colleneyoung and hnipper, your posts have been informative and helpful. Collene, as you know from my...

https://connect.mayoclinic.org/comment/734282/

Discussion: Hodgkin Lymphoma was stable, now new activity

Support Group: Blood Cancers & Disorders

Posted: Aug 5, 2022

Good morning, @pices and welcome to Mayo Clinic Connect. We have some current members in our...

https://connect.mayoclinic.org/comment/722050/

Discussion: Waldenstrom Macroglobulinemia with MYD88-wild type

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2022

Antibodies are large proteins of the immune system that neutralize intruders, such as bacteria, viruses, fungi,...

https://connect.mayoclinic.org/comment/715892/

Discussion: Low T-Cell - Bone Marrow Biopsy

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2022

Reaching out for those with WM experience is extremely helpful for a rare lymphoma. I was...

https://connect.mayoclinic.org/comment/691691/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2022

Hi Marianna, welcome. You're so wise to reach out to other patients and caregivers familiar with...

https://connect.mayoclinic.org/comment/691686/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2022

Hi @patio29dadio, welcome. You're facing some big decisions. Allow me to bring in fellow members who...

https://connect.mayoclinic.org/comment/687154/

Discussion: Advice for Amyloidosis with Waldenstrom's macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2022

@puffwithfluff, I'm glad you've connected with @ejrquast. I hope the two of you will continue to...

https://connect.mayoclinic.org/comment/663405/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 17, 2021