Blood Cancers & Disorders Support Group

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Comments (254)

Hi @loribmt , my name is Mike and I am from Australia, I am 68 and...

https://connect.mayoclinic.org/comment/1346868/

Discussion: Lymphoma doc at Mayo Rochester

Support Group: Blood Cancers & Disorders

Posted: Jul 12, 2025

Welcome @breathernow. Having a fatigue as your travel companion is a real drag…though there are plenty...

https://connect.mayoclinic.org/comment/1311658/

Discussion: Waldenstrom macroglobulinemia (WM) 3 years: Might I be in remission?

Support Group: Blood Cancers & Disorders

Posted: May 24, 2025

What symptoms should I be looking for with Waldenstroms? After three years I am still preety...

https://connect.mayoclinic.org/comment/1311248/

Discussion: Waldenstrom macroglobulinemia (WM) 3 years: Might I be in remission?

Support Group: Blood Cancers & Disorders

Posted: May 23, 2025

I've been diagonosed with Waldenstrum in my blood & bones & currently taking Brukinsa meds. I...

https://connect.mayoclinic.org/comment/1289645/

Discussion: Waldenstroms Macroglobulemia

Support Group: Blood Cancers & Disorders

Posted: Apr 25, 2025

I was diagnosed with MGUS over a year ago while my primary doctor was testing me...

https://connect.mayoclinic.org/comment/1288052/

Discussion: M-Spike and Lambda light chain increasing while KL ratio decreasing

Support Group: Blood Cancers & Disorders

Posted: Apr 23, 2025

I was diagnosed in 2023. Bone Marrow biopsy showed MYD88 gene mutation thus diagnosed with Waldenstrom’s...

https://connect.mayoclinic.org/comment/1186920/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2024

This is an update to my previous comment on Oct 14. My labs last week indicated...

https://connect.mayoclinic.org/comment/1178624/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 23, 2024

Diagnosed with Waldenstroms disease. Thank you for the information. I confess I know very little about...

https://connect.mayoclinic.org/comment/1169803/

Discussion: Does plant-based eating lower chances of MGUS progressing to myeloma?

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2024

I as well have mGus and also was told that an extremely small percentage of mGus...

https://connect.mayoclinic.org/comment/1168679/

Discussion: Does plant-based eating lower chances of MGUS progressing to myeloma?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2024

Hi @teachpeace I have Waldenström's for 2 1/2 years getting regular infusions but my neuropathy kept...

https://connect.mayoclinic.org/comment/1149675/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Sep 30, 2024

What are the units for your Free light chains? IgM is usually a different type of...

https://connect.mayoclinic.org/comment/1144428/

Discussion: Free light chain ratio in MGUS

Support Group: Blood Cancers & Disorders

Posted: Sep 20, 2024

Hi, my name is Patrick and I was just diagnosed with Waldenström macroglobulinemia last week after...

https://connect.mayoclinic.org/comment/872026/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2023

i was diagnose with waldenstrom 2 years and 2 months my levels are increasing and know...

https://connect.mayoclinic.org/comment/870531/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2023

Hello @bobkat694 Welcome to Mayo Connect. While you’re waiting to see if any other members can...

https://connect.mayoclinic.org/comment/866469/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: May 25, 2023

Hola Catalina, le saludo cordialmente. Quiero contarle que mi esposo había sido prediagnosticado hace 3 meses...

https://connect.mayoclinic.org/comment/865071/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: May 23, 2023

I was diagnosed with Waldenstroms a year ago. Is shortness of breath a common symptom? It...

https://connect.mayoclinic.org/comment/860337/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: May 15, 2023

I am so sorry about your daughter’s rare WM diagnosis. May I ask if she gad...

https://connect.mayoclinic.org/comment/855382/

Discussion: Waldenstrom’s Macroglobulinemia Liver size?

Support Group: Blood Cancers & Disorders

Posted: May 6, 2023

The I.W.M.F. (International Waldenstrom’s Macroglobulinemia Foundation) if having an educational Forum, both in person and virtually,...

https://connect.mayoclinic.org/comment/843970/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2023

Thank you for reaching out for support. WM is a very rare blood cancer. While it...

https://connect.mayoclinic.org/comment/812866/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Feb 17, 2023

I too have shortness of breath which is apparently attributable to low hemoglobin (I have Waldenstrom's...

https://connect.mayoclinic.org/comment/791282/

Discussion: Any suggestions for chronic shortness of breath with PV?

Support Group: Blood Cancers & Disorders

Posted: Jan 1, 2023