Blood Cancers & Disorders Support Group

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Comments (254)

I was diagnosed with MGUS over a year ago while my primary doctor was testing me...

https://connect.mayoclinic.org/comment/1288052/

Discussion: M-Spike and Lambda light chain increasing while KL ratio decreasing

Support Group: Blood Cancers & Disorders

Posted: Apr 23, 2025

I was diagnosed in 2023. Bone Marrow biopsy showed MYD88 gene mutation thus diagnosed with Waldenstrom’s...

https://connect.mayoclinic.org/comment/1186920/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2024

This is an update to my previous comment on Oct 14. My labs last week indicated...

https://connect.mayoclinic.org/comment/1178624/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 23, 2024

Diagnosed with Waldenstroms disease. Thank you for the information. I confess I know very little about...

https://connect.mayoclinic.org/comment/1169803/

Discussion: Does plant-based eating lower chances of MGUS progressing to myeloma?

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2024

I as well have mGus and also was told that an extremely small percentage of mGus...

https://connect.mayoclinic.org/comment/1168679/

Discussion: Does plant-based eating lower chances of MGUS progressing to myeloma?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2024

Hi @teachpeace I have Waldenström's for 2 1/2 years getting regular infusions but my neuropathy kept...

https://connect.mayoclinic.org/comment/1149675/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Sep 30, 2024

What are the units for your Free light chains? IgM is usually a different type of...

https://connect.mayoclinic.org/comment/1144428/

Discussion: Free light chain ratio in MGUS

Support Group: Blood Cancers & Disorders

Posted: Sep 20, 2024

Hi again. Thank you for the information. I called the mayo clinics, but not the finance...

https://connect.mayoclinic.org/comment/284521/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2019

Hi @brewmaster, welcome to Connect. I moved your message to this existing discussion about Waldenstrom macroglobulinemia...

https://connect.mayoclinic.org/comment/256249/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Apr 27, 2019

@sstouten, while we wait for other members to join this discussion, I'd encourage you to view...

https://connect.mayoclinic.org/comment/169958/

Discussion: I have been recently diagnosed with Waldenstrom Macroglobulinamia

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2017

He has autonomic neuropathy caused by his Waldenstroms (non-Hodgkins lymphoma). Not diagnosed until recently so pretty...

https://connect.mayoclinic.org/comment/113908/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2016

When my oncologist was doing tests to determine Waldenstroms, she said I needed a BMB and...

https://connect.mayoclinic.org/comment/1048617/

Discussion: Propofol for bone marrow biopsy

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2024

Welcome to Connect, @vgdmayo I really can’t answer as to whether or not your husband could...

https://connect.mayoclinic.org/comment/1042368/

Discussion: Second Opinions: How do I get one at Mayo Clinic out-of state?

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2024

What does your oncologist suggest as far as getting the genetic testing done to confirm WM?...

https://connect.mayoclinic.org/comment/990739/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2024

Welcome to Connect, @careysuzi. It’s great to have you here in the Waldenström's Macroglobulinemia support group...

https://connect.mayoclinic.org/comment/989959/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Jan 1, 2024

Hola a todos. Hace algunos meses escribí en este lugar para interactuar con otras personas que...

https://connect.mayoclinic.org/comment/942134/

Discussion: With Waldenstrom, what side effects did you have with ibrutinib?

Support Group: Blood Cancers & Disorders

Posted: Oct 5, 2023

@emma405, I moved your question to this existing discussion: - With Waldenstrom, what side effects did...

https://connect.mayoclinic.org/comment/941751/

Discussion: With Waldenstrom, what side effects did you have with ibrutinib?

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2023

Mike, I made the assumption you were on Medicare like I am. All treatments I received...

https://connect.mayoclinic.org/comment/910703/

Discussion: Anyone Else with Waldenstrom's and COPD?

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2023

I have both and each problem can have similar side effects. I’m not a Dr this...

https://connect.mayoclinic.org/comment/910221/

Discussion: Anyone Else with Waldenstrom's and COPD?

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2023

Hi, my name is Patrick and I was just diagnosed with Waldenström macroglobulinemia last week after...

https://connect.mayoclinic.org/comment/872026/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2023