Blood Cancers & Disorders Support Group

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Comments (1,024)

My husband has MDS red-cell blood cancer after handling Roundup for many years back in the...

https://connect.mayoclinic.org/comment/291016/

Discussion: Hodgkin's & non-Hodgkin's Lymphoma: Is it familial?

Support Group: Blood Cancers & Disorders

Posted: Jan 28, 2020

I am curious to know what signs, symptoms, or tests results appear for MDS to require...

https://connect.mayoclinic.org/comment/950197/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2023

I have the same symptoms and referred to a hematologist/oncologist who did a bone marrow biopsy...

https://connect.mayoclinic.org/comment/1526700/

Discussion: Anyone dealing with MDS?

Support Group: Blood Cancers & Disorders

Posted: Mar 14 11:10am

How long did you remain low risk MDS before it progressed?

https://connect.mayoclinic.org/comment/1365550/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2025

Oh MDS ! How old?Which type?How did you diagnosed with it ?

https://connect.mayoclinic.org/comment/1031219/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Mar 10, 2024

Also, don't know if the redness was related to my MDS, of if it was a...

https://connect.mayoclinic.org/comment/949540/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Oct 18, 2023

Interesting about joint pain. I’m not on any meds. Still on watch and wait. However my...

https://connect.mayoclinic.org/comment/1550967/

Discussion: Just got my blood test results today. I have MDS

Support Group: Blood Cancers & Disorders

Posted: 4 days ago

Hi, is it really MDS? MDS and anemia are closely linked. Your age could be important....

https://connect.mayoclinic.org/comment/1462662/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Dec 17, 2025

Welcome, @mamapocho01. I moved your question about myelodysplastic syndrome (MDS) with deletion 5q to this existing...

https://connect.mayoclinic.org/comment/1080300/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jun 3, 2024

I know I am asking alot of questions, but I don't trust the internet for some...

https://connect.mayoclinic.org/comment/1366813/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2025

Talk with your doctor about having a bone marrow biopsy. That will determine if you have...

https://connect.mayoclinic.org/comment/1526742/

Discussion: Very worried about MDS. I am extremely anxious and feel very alone.

Support Group: Blood Cancers & Disorders

Posted: Mar 14 11:45am

My husband has the JAK2 but was diagnosed with both ITP and MDS all at the...

https://connect.mayoclinic.org/comment/194329/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2019

Thanks @colleenyoung! Melody here. @ikampel2, living with a chronic illness can be a roller coaster and...

https://connect.mayoclinic.org/comment/94441/

Discussion: I have Myelodysplastic Syndrome (MDS) spawned from ITP

Support Group: Blood Cancers & Disorders

Posted: Apr 27, 2016

Jeffrey: it is important to trust your Dr. You also need to know where your Myeloblasts...

https://connect.mayoclinic.org/comment/1264132/

Discussion: What are your experiences with lenalidomide (Revlimid) for MDS?

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2025

I have a low grade MDS but Promacta is really helping with red blood cells and...

https://connect.mayoclinic.org/comment/1418823/

Discussion: Very worried about MDS. I am extremely anxious and feel very alone.

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2025

Hello everyone so doc said mds pre leukemia an said due to past cancer I can’t...

https://connect.mayoclinic.org/comment/820615/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2023

@loribmt Oh Lori, you have no idea how I needed to hear your reply! Your words...

https://connect.mayoclinic.org/comment/1548882/

Discussion: Just got my blood test results today. I have MDS

Support Group: Blood Cancers & Disorders

Posted: Apr 12 2:40pm

Welcome @helentickle. MDS can impact the production of healthy blood cells. In your case it looks...

https://connect.mayoclinic.org/comment/1251716/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2025

How was your MDS diagnosed? Any CBC indicators? What symptoms did you experience?

https://connect.mayoclinic.org/comment/896563/

Discussion: Any survivors of Non-Hodgkin's lymphoma out there?

Support Group: Blood Cancers & Disorders

Posted: Jul 16, 2023

Hello @jaylevel1. You may notice I moved your discussion and combined it with your original discussion...

https://connect.mayoclinic.org/comment/226236/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Sep 3, 2019