Blood Cancers & Disorders Support Group

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Comments (995)

Also, don't know if the redness was related to my MDS, of if it was a...

https://connect.mayoclinic.org/comment/949540/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Oct 18, 2023

How long did you remain low risk MDS before it progressed?

https://connect.mayoclinic.org/comment/1365550/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2025

I am curious to know what signs, symptoms, or tests results appear for MDS to require...

https://connect.mayoclinic.org/comment/950197/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2023

Hi, is it really MDS? MDS and anemia are closely linked. Your age could be important....

https://connect.mayoclinic.org/comment/1462662/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Dec 17, 2025

@twitt1949 I am one of 5 siblings. I have genetic mutations and after breast cancer i...

https://connect.mayoclinic.org/comment/1522660/

Discussion: Myelodysplastic syndromes and stomach problem?

Support Group: Blood Cancers & Disorders

Posted: Mar 8 4:30pm

Welcome, @mamapocho01. I moved your question about myelodysplastic syndrome (MDS) with deletion 5q to this existing...

https://connect.mayoclinic.org/comment/1080300/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jun 3, 2024

I know I am asking alot of questions, but I don't trust the internet for some...

https://connect.mayoclinic.org/comment/1366813/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2025

I have MDS with anemia. I exercise by walking. I have some problems with getting out...

https://connect.mayoclinic.org/comment/1474430/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Jan 4 2:04pm

I have MDS too. Anemia is being treated with Procreit shots every 2 weeks. Started eating...

https://connect.mayoclinic.org/comment/1475099/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Jan 5 11:50am

My husband has the JAK2 but was diagnosed with both ITP and MDS all at the...

https://connect.mayoclinic.org/comment/194329/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2019

Thanks @colleenyoung! Melody here. @ikampel2, living with a chronic illness can be a roller coaster and...

https://connect.mayoclinic.org/comment/94441/

Discussion: I have Myelodysplastic Syndrome (MDS) spawned from ITP

Support Group: Blood Cancers & Disorders

Posted: Apr 27, 2016

Jeffrey: it is important to trust your Dr. You also need to know where your Myeloblasts...

https://connect.mayoclinic.org/comment/1264132/

Discussion: What are your experiences with lenalidomide (Revlimid) for MDS?

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2025

I have a low grade MDS but Promacta is really helping with red blood cells and...

https://connect.mayoclinic.org/comment/1418823/

Discussion: Very worried about MDS. I am extremely anxious and feel very alone.

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2025

Hello everyone so doc said mds pre leukemia an said due to past cancer I can’t...

https://connect.mayoclinic.org/comment/820615/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2023

Hi @asarnesejr - given your anxiety, why don’t you ask for a sooner appointment and do...

https://connect.mayoclinic.org/comment/1529312/

Discussion: MDS diagnosis with DDX41 Germline and Somatic

Support Group: Blood Cancers & Disorders

Posted: Mar 17 4:46pm

Welcome @helentickle. MDS can impact the production of healthy blood cells. In your case it looks...

https://connect.mayoclinic.org/comment/1251716/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2025

How was your MDS diagnosed? Any CBC indicators? What symptoms did you experience?

https://connect.mayoclinic.org/comment/896563/

Discussion: Any survivors of Non-Hodgkin's lymphoma out there?

Support Group: Blood Cancers & Disorders

Posted: Jul 16, 2023

Good morning..has anyone taken this treatment for mds..that would be hopeful for me Thank you

https://connect.mayoclinic.org/comment/1058610/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Apr 28, 2024

I am too waiting to have MDS confirmed. I have had two bone marrow biopsies and...

https://connect.mayoclinic.org/comment/1331906/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2025

I have myelodysplastic syndrome ( MDS). I will be starting on Lenalidomide hopefully next week. Caught...

https://connect.mayoclinic.org/comment/1359289/

Discussion: Just tired: Husband has colon cancer and I have MDS

Support Group: Caregivers

Posted: Jul 29, 2025