Blood Cancers & Disorders Support Group

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Comments (759)

Hello, I want to join a support group for MDS patients. And get information about balancing...

https://connect.mayoclinic.org/comment/1217754/

Discussion: Waldenstrom's: Should I take the new medication (rituximab)?

Support Group: Blood Cancers & Disorders

Posted: Jan 20 7:45pm

Hi @bmarkable. Myelofibrosis (MF) and Myelodyplastic syndrome are two different blood conditons. Myelofibrosis (MF) is disorder...

https://connect.mayoclinic.org/comment/1084232/

Discussion: Is Myelofibrosis (MF) the same as Myelodyplastic syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2024

My husband was recently diagnosed with MDS. Does anyone know of reasonable townhomes/apartments/condos rentals close to...

https://connect.mayoclinic.org/comment/1015500/

Discussion: Myelodysplastic Syndrome and Sjogren's

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2024

Got bone marrow back an it’s MDS seein doc on Friday for treatment options any thoughts...

https://connect.mayoclinic.org/comment/819445/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2023

That’s wat happen to me I had chemo in 2015 an got my MDs 6 months...

https://connect.mayoclinic.org/comment/896400/

Discussion: Any survivors of Non-Hodgkin's lymphoma out there?

Support Group: Blood Cancers & Disorders

Posted: Jul 15, 2023

Bad news have MDS high grade need treatment lookin for any info out there but still...

https://connect.mayoclinic.org/comment/819239/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2023

I have been taking Hydroxy for two years for MDS/MPN-RS-T. Not aware of any side effects.

https://connect.mayoclinic.org/comment/146317/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2020

Hello @jonkerri and welcome to Mayo Connect. I appreciate you posting an encouraging message to @yellowlab123...

https://connect.mayoclinic.org/comment/1180912/

Discussion: MDS in a 75 year old male

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2024

My husband was diagnosed with MDS 5 yrs ago. After his last bone marrow biopsy in...

https://connect.mayoclinic.org/comment/994964/

Discussion: Has anyone heard of VEXAS syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jan 10, 2024

That is what I am thinking. Did they have the right diagnosis if MDS or was...

https://connect.mayoclinic.org/comment/910881/

Discussion: Immune Thrombocytopenia Purpura (ITP): What helps?

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2023

My husband was diagnosed with MDS not even 2 years ago and he passed away June...

https://connect.mayoclinic.org/comment/1098766/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2024

Hello @mtksnider I was looking through some discussions on MDS and found your posting. I too...

https://connect.mayoclinic.org/comment/1075616/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: May 27, 2024

The chemo u had could have gotten into your bone marrow an destroyed it which happen...

https://connect.mayoclinic.org/comment/880781/

Discussion: Low wbc count

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2023

I have MDS and I went to Dr Mariano Garcia at MD Anderson in Houston. He...

https://connect.mayoclinic.org/comment/665480/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2021

I was recently diagnosed with MDS/MPN-RS-T with Jak2 mutation also. My doctor recommended this site. It...

https://connect.mayoclinic.org/comment/328593/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2021

So I will be on Inqovi either injectable or pill just like to hear how this...

https://connect.mayoclinic.org/comment/821492/

Discussion: How can I raise my platelet count? (With food)

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2023

Hi @callahan I provided a link for you in my previous reply for one of many...

https://connect.mayoclinic.org/comment/1219949/

Discussion: Waldenstrom's: Should I take the new medication (rituximab)?

Support Group: Blood Cancers & Disorders

Posted: Jan 23 4:43pm

Hi @justmeb5 Recently, in another discussion you’d asked about Vidaza (Azacitidine) and if there were other...

https://connect.mayoclinic.org/comment/1301625/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: May 11 8:48am

I was originally diagnosed with ET based on a positive JAK2 bloid test. I asked the...

https://connect.mayoclinic.org/comment/194320/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2019

I came across an article that stated MDS can come from having stomach or intestinal surgery....

https://connect.mayoclinic.org/comment/1054259/

Discussion: MDS: Can someone explain how or why platelets go up or down quickly?

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2024