Blood Cancers & Disorders Support Group | Page 6

@jackiecarey I am 68 and have had 3 TIAs. I just received my lab work results...

https://connect.mayoclinic.org/comment/1505954/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 14 6:45pm

It’s good to know what to incorporate and what to stay away from. Thank you. Yes,...

https://connect.mayoclinic.org/comment/1319037/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Jun 2, 2025

My daughter has JAK2 and the oncologist didn’t make any changes before she got the Pfizer...

https://connect.mayoclinic.org/comment/607090/

Discussion: Effect of COVID vaccine on Jak2 MPN

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2021

Cml under control now have Jak2 2 mutation doctor put me on jakifi and on tasigna...

https://connect.mayoclinic.org/comment/194294/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2019

Myelofibrosis JAK2 I’m currently on Jakafi and just completed cycle one of vidaza. White cells keep...

https://connect.mayoclinic.org/comment/813524/

Discussion: Massive spleen and dangerous low platelet count

Support Group: Blood Cancers & Disorders

Posted: Feb 18, 2023

Hi, I was diagnosed with Jak2 exon 14 + Thrombocytsis + Reticulin Fibrosis. I find it...

https://connect.mayoclinic.org/comment/978136/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 10, 2023

Does anybody else experience this? Is this “normal”? Not sure if it’s the ET JAK2 or...

https://connect.mayoclinic.org/comment/1554410/

Discussion: Side effects of hydroxyurea

Support Group: Blood Cancers & Disorders

Posted: Apr 19 12:00pm

Thank you! Blood clots are scary. So glad they caught yours in time. I guess I...

https://connect.mayoclinic.org/comment/943845/

Discussion: Pros and Cons of JAK2 testing

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2023

Yes, MPNs are slow-growth blood cancers. JAK2 is not a blood cancer itself but is the...

https://connect.mayoclinic.org/comment/988458/

Discussion: ET, Polycythemia, Jax2: Is this a blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2023

I do not have any symptoms, I have JAK2 and high platelets were found at my...

https://connect.mayoclinic.org/comment/878406/

Discussion: Diagnosed with PV: Anyone used a home hemoglobin testing kit?

Support Group: Blood Cancers & Disorders

Posted: Jun 14, 2023

I’m currently being tested for polythecemia vera. JAK2 at the end of May. A bit anxious....

https://connect.mayoclinic.org/comment/857807/

Discussion: JAK2 positive, high platelets and also PAH (diagnosed)

Support Group: Blood Cancers & Disorders

Posted: May 10, 2023

Hello, Have you had the JAK2 test yet? I’m sorry I didn’t see your previous post.

https://connect.mayoclinic.org/comment/898898/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2023

Hi, im jak2 negative with continous high platelets 500-800 range im 31 asymptomatic , discovered over...

https://connect.mayoclinic.org/comment/194358/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 30, 2020

@thlas1971 Hi there! Sorry for the late reply. I uploaded my 23 and Me raw data...

https://connect.mayoclinic.org/comment/231796/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2019

https://connect.mayoclinic.org/comment/1054171/

Discussion: JAK2 detection accuracy

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2024

I'm 71 and have ET with JAK2 mutation. A DEXA scan earlier this month showed normal...

https://connect.mayoclinic.org/comment/998807/

Discussion: MPN and osteoporosis, any of you have insufficiency fractures?

Support Group: Blood Cancers & Disorders

Posted: Jan 17, 2024

What is the diagnosis for a platelet count in 770,000 range and no Jak2 mutation? Is...

https://connect.mayoclinic.org/comment/252019/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jul 17, 2019

@mydadhas2024, you are asking a lot of great questions. I know this can be very confusing...

https://connect.mayoclinic.org/comment/1290898/

Discussion: MPNs - I have so many questions.

Support Group: Blood Cancers & Disorders

Posted: Apr 27, 2025

My husband was diagnosed with primary Myelofibrosis with JAK2 mutation last June. Has anyone looked into...

https://connect.mayoclinic.org/comment/1493287/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jan 29 10:25am

My Heme doc said there are basically 4 types of ET, and only one = cancer....

https://connect.mayoclinic.org/comment/877571/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2023