Blood Cancers & Disorders Support Group

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Comments (1,102)

Hi @mumma, Welcome to Mayo Connect. I see you’ve been diagnosed with Polycythemia Vera and would...

https://connect.mayoclinic.org/comment/773417/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Nov 15, 2022

I was recently diagnosed with MDS/MPN-RS-T with Jak2 mutation also. My doctor recommended this site. It...

https://connect.mayoclinic.org/comment/328593/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2021

Hi @mcullen123 you may have noticed I moved your post to this existing discussion on Jak2...

https://connect.mayoclinic.org/comment/194295/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2019

I recently got diagnosed with PV Jak2 positive, thrombosis. I have had 2 phlebotomies and so...

https://connect.mayoclinic.org/comment/900498/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 22, 2023

I also had a positive JAK2. My count is 553...I'm just on baby aspirin. My Next/first...

https://connect.mayoclinic.org/comment/1330531/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Jun 19 10:43am

I have ET JAK2 and was diagnosed using genetic blood tests. My doctor told me that...

https://connect.mayoclinic.org/comment/1022801/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2024

He is also Jak2 positive (which I should have stated). His blood pressure did come down...

https://connect.mayoclinic.org/comment/795695/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2023

My mom has mutated JAK2 and was told not changes to her medication for the Moderna...

https://connect.mayoclinic.org/comment/607450/

Discussion: Effect of COVID vaccine on Jak2 MPN

Support Group: Blood Cancers & Disorders

Posted: Jun 7, 2021

Welcome to Connect @kwmotley Reading through your comments it looks like you’re taking a daily aspirin...

https://connect.mayoclinic.org/comment/974721/

Discussion: Jak 2 mutations

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2023

I am currently taking 500 mg Hydroxyurea on Monday/Wednesday/Friday. Headaches are less. I have ET JAK2....

https://connect.mayoclinic.org/comment/940964/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2023

I was diagnosed around 2 1/2 years ago and agree that blood results along with JAK2...

https://connect.mayoclinic.org/comment/937883/

Discussion: Jak2 Detected, Healthy otherwise, What's next?

Support Group: Blood Cancers & Disorders

Posted: Sep 28, 2023

Blood test and 2 biopsies. Yes – JAK2 platelet count 893 – 75mg Aspirin and 500mg...

https://connect.mayoclinic.org/comment/887557/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 30, 2023

I found an article for you that may help explain about the JAK2 gene and how...

https://connect.mayoclinic.org/comment/1142007/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2024

Wow! You must have a strong stomach to be able to take 325mg of aspirin. I...

https://connect.mayoclinic.org/comment/975891/

Discussion: Jak 2 mutations

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2023

My diagnosis is Atypical Chronic myeloid leukemia. JAK2 mutation. There isn’t a protocol to treat it...

https://connect.mayoclinic.org/comment/907572/

Discussion: Massive spleen and dangerous low platelet count

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2023

My son must have had the molecular panel because he does NOT have Jak2, but does...

https://connect.mayoclinic.org/comment/194323/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2019

Hello @livelife, welcome to Connect. You may notice I moved your discussion and combined it with...

https://connect.mayoclinic.org/comment/194359/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 30, 2020

With me they found high platelets and had me see a hematologist who tested for jak2...

https://connect.mayoclinic.org/comment/974148/

Discussion: Jak 2 mutations

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2023

Hello, does anyone know if DDR (DNA Damage Repair) can take place on the JAK2 V617F...

https://connect.mayoclinic.org/comment/1011176/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2024

ET triple negative is where you do not have any of the 3 mutations of ET....

https://connect.mayoclinic.org/comment/1279571/

Discussion: Does your oncologist acknowledge that ET may cause bone pain?

Support Group: Blood Cancers & Disorders

Posted: Apr 11 5:33pm