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Public Support Group 2,394 total results
Comments (2,258)
Have you had a bone marrow biopsy to be sure that what you’re dealing with is...
https://connect.mayoclinic.org/comment/1215424/
I will be following this closely. I had a Trimalleolar ankle fracture followed by a broken...
https://connect.mayoclinic.org/comment/1431030/
Thank you for the encouragement! It’s ET
https://connect.mayoclinic.org/comment/1291489/
Hi. She has ET. It's driver, if I'm saying it right was the mutation of the...
https://connect.mayoclinic.org/comment/1210770/
I do believe my mother had undiagnosed ET and died of a stroke at 82. I...
https://connect.mayoclinic.org/comment/1261153/
@nohrt4me Excellent summation, Jean. What we read and hear from our doctors is both incomplete and...
https://connect.mayoclinic.org/comment/1539286/
@nohrt4me I’m only taking a baby aspirin a day for my ET and I am generally...
https://connect.mayoclinic.org/comment/1538647/
@amlqueen Only if a physician has ET does she or he know what it means. So...
https://connect.mayoclinic.org/comment/1490767/
Hi I'm 78 with ET , JAK2 and on Hydra since December2025. So far only slight...
https://connect.mayoclinic.org/comment/1508241/
Hi Karla, Do you have and tingling feeling , numbness and pain in your legs from...
https://connect.mayoclinic.org/comment/1157392/
ET is a constant juggle. I am immensely grateful for my onc team/m, specifically my MPN...
https://connect.mayoclinic.org/comment/1491961/
(Replying to questions about nail chipping and breaking and vertical ridges) I think it is just...
https://connect.mayoclinic.org/comment/1004102/
I think we need to get away from the idea that we caused our own disease...
https://connect.mayoclinic.org/comment/800009/
I do not have this, but I think I have seen posts about rashes or discoloration...
https://connect.mayoclinic.org/comment/1349538/
Welcome to Club ET. I have had it for about 17 years, tho researchers say the...
https://connect.mayoclinic.org/comment/1374820/
@sarahgault I use to take Hydroxyurea. I do know that one of the side effects is...
https://connect.mayoclinic.org/comment/1554924/
Does anyone else out there with ET have high ferritin levels? My levels are 3 times...
https://connect.mayoclinic.org/comment/990771/
@mw2023 With ET, every single day, we're churning out too many platelets. That makes us exhausted,...
https://connect.mayoclinic.org/comment/1536318/
I was diagnosed right away with Essential Thrombocythemia. (ET) having 1,250,000 platelets when first diagnosed. I...
https://connect.mayoclinic.org/comment/1051269/
Welcome, @lynns51. I moved your question about about ET with CALR gene to this existing discussion:...
https://connect.mayoclinic.org/comment/1282091/
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