Blood Cancers & Disorders Support Group

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Comments (251)

Welcome to Mayo Connect. I was diagnosed with WM in 2014. I am an IWMF (International...

https://connect.mayoclinic.org/comment/624405/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2021

The ONLY symptom I had that brought me to a doctor was that I had the...

https://connect.mayoclinic.org/comment/88314/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2019

I was diagnosed with AL Amyloidosis nearly 2 years ago. It was randomly found during a...

https://connect.mayoclinic.org/comment/1114762/

Discussion: Amyloidosis diagnosed through blood tests: Kidney biopsy necessary?

Support Group: Blood Cancers & Disorders

Posted: Jul 30 3:37pm

I was diagnosed with IgG MGUS in 2021 and currently have blood tests for CBC PLT...

https://connect.mayoclinic.org/comment/770884/

Discussion: MGUS monitoring: What tests do you have done regularly?

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2022

Lori, Thank you for the information and for your inquiry s to how my husband is...

https://connect.mayoclinic.org/comment/724274/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2022

Hi @pysullivan, welcome to Connect. Here a few previous discussions in the community about Waldenstrom macroglobulinemia...

https://connect.mayoclinic.org/comment/256246/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Mar 24, 2019

Had Rituxan and Bendamustine for MZL ,and was discontinued after two cycles due tom intolerance. Oncologist...

https://connect.mayoclinic.org/comment/845626/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2023

@bonniecanby You should know that the symptoms you mention, anemia, pvc's and lots of pain, are...

https://connect.mayoclinic.org/comment/74558/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Jan 16, 2018

I had a diagnosis in April 2011 of AL amiloidosis with one organ involved, my liver....

https://connect.mayoclinic.org/comment/88301/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 13, 2016

I am having tremors in the hands, arms and legs which leads to falling down. I...

https://connect.mayoclinic.org/comment/104728/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2018

Cataracts are, if you have any other signs with them, markers of developing Amyloidosis of some...

https://connect.mayoclinic.org/comment/723440/

Discussion: Question to ask about MGUS Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2022

But - will ultra sound show if I have the amyloid protein in any heart tissue...

https://connect.mayoclinic.org/comment/1117279/

Discussion: Diagnosing amyloidosis: Why monitor (PYP scan) instead of biopsy?

Support Group: Blood Cancers & Disorders

Posted: Aug 3 6:38pm

Hi. I have been using a Philips System One CPAP for about 12 years and just...

https://connect.mayoclinic.org/comment/660227/

Discussion: CPAP (Phillips recall) and Cancer

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2021

Yes. My husband is being taken care of a Cardiologist and Hematologist even though we live...

https://connect.mayoclinic.org/comment/902503/

Discussion: My Autologous Stem Cell Transplant Journey - Mayo, Phoenix

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 26, 2023

Welcome to Connect @3419harrison, AL Amyloidosis is a disease which occurs when a protein called amyloid...

https://connect.mayoclinic.org/comment/1112342/

Discussion: Amyloidosis diagnosed through blood tests: Kidney biopsy necessary?

Support Group: Blood Cancers & Disorders

Posted: Jul 26 2:42pm

I was just diagnosed with systemic amyloidosis al I start chemo 4-8-24 am scared. They said...

https://connect.mayoclinic.org/comment/1042422/

Discussion: Positive test results for amyloids

Support Group: Blood Cancers & Disorders

Posted: Mar 29 5:28pm

I have been recently diagnosed with AL Amyloidosis in March 2019. I was experiencing swelling of...

https://connect.mayoclinic.org/comment/88329/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2019

This scan can be used to find out if you have a rare disease called cardiac...

https://connect.mayoclinic.org/comment/754823/

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Sep 28, 2022

@dazlin Thanks, dazzle. I think what is happening is that my systemic amyloidosis has invaded either...

https://connect.mayoclinic.org/comment/106680/

Discussion: I have MGUS

Support Group: Blood Cancers & Disorders

Posted: Jan 16, 2018

I consulted with three specialists - one at Mayo Clinic. All are MGUS/MM specialists. Even though...

https://connect.mayoclinic.org/comment/770463/

Discussion: MGUS monitoring: What tests do you have done regularly?

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2022