Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,121 total results

Comments (1,047)

I also questioned whether the vaccine had anything to do with my platelets increasing. I had...

https://connect.mayoclinic.org/comment/1123727/

Discussion: Research on COVID 19 vax causing Essential Thrombocythemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2024

Hi, Vicky, I am 70, CALR+, have had ET for about 15 years. Doing OK, no...

https://connect.mayoclinic.org/comment/1103555/

Discussion: HU & Titanium Oxide

Support Group: Blood Cancers & Disorders

Posted: Jul 11, 2024

My platelets bounce between 57 to 600 then back down to 80. I was on hydroxyurea...

https://connect.mayoclinic.org/comment/1083471/

Discussion: Which specific kind of doctor looks into thrombocytopenia?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2024

How to manage the itch related to Jak-2 Mutation

https://connect.mayoclinic.org/comment/1036859/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 20, 2024

I am 73 years old. My brother also has essential throbocytosis because we inherited the same...

https://connect.mayoclinic.org/comment/1035204/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2024

I'm 69 years old and had a bone marrow biopsy last November after a blood test...

https://connect.mayoclinic.org/comment/1031862/

Discussion: What is doc looking for with a Bone Marrow Biopsy?

Support Group: Blood Cancers & Disorders

Posted: Mar 11, 2024

I have PCV and Jak 2 positive. At the moment I am seeing two oncologist one...

https://connect.mayoclinic.org/comment/1018723/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2024

I totally agree, I myself just started on Hydroxyurea , first, it was every day, but...

https://connect.mayoclinic.org/comment/993687/

Discussion: ET, Polycythemia, Jax2: Is this a blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2024

I too would like information on foods. I researched the foods not to eat and they...

https://connect.mayoclinic.org/comment/981634/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2023

My brother and I have the JAK 2 mutation. I take 500 mg of Hydrea but...

https://connect.mayoclinic.org/comment/981617/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2023

Did they do a JAK 2 blood test? This is what happened to me before I...

https://connect.mayoclinic.org/comment/926793/

Discussion: Bone Marrow Biopsy & Aspiration

Support Group: Blood Cancers & Disorders

Posted: Sep 9, 2023

I was told with Jak 2 mutation … blood donation is a NO

https://connect.mayoclinic.org/comment/902129/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2023

When I was diagnosed, with PCV and Jak 2 positive, the first thing they did was...

https://connect.mayoclinic.org/comment/891492/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 7, 2023

Combination of lower ferritin levels, ulcers in stomach and lower intestine and a blood clot -...

https://connect.mayoclinic.org/comment/873481/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2023

Been searching for over 2 years, one hematologist oncologist has diagnosed PV. 1 test for jak-2...

https://connect.mayoclinic.org/comment/872618/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2023

Welcome @christinele. You can choose to follow only discussions related to ET and JAK 2. Here's...

https://connect.mayoclinic.org/comment/845309/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2023

If they are checking for Polycythemia Vera, the Jak 2 test (Pisitive)will confirm. No need to...

https://connect.mayoclinic.org/comment/827691/

Discussion: Persistently Elevated Platelets Fluctuating

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2023

I was diagnosed with PCV 3 months ago, but had itching symptoms since 2019. I tested...

https://connect.mayoclinic.org/comment/729287/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Jul 21, 2022

I have a diagnosis of ET strictly on (slightly) elevated platelets and a positive JAK 2...

https://connect.mayoclinic.org/comment/728817/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2022

My daughter was diagnosed couple weeks ago with JAK 2. First thing he ordered was a...

https://connect.mayoclinic.org/comment/328571/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2020