Blood Cancers & Disorders Support Group

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Comments (1,102)

ET is a diagnosis thrown at patients who exhibit high consistent high platelet counts. You don’t...

https://connect.mayoclinic.org/comment/1247945/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Mar 1 9:56am

Good morning! I wish we could have a cup of coffee together. Your post sounds familiar...

https://connect.mayoclinic.org/comment/1279837/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 12 7:56am

Hi, Is this ‘ JAK 2 positive result only attributes to a 7% chance that it...

https://connect.mayoclinic.org/comment/1281113/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Apr 13 4:22pm

Is ET with JAK 2 also called Polycemia Vera. I’m confused. Thanks and it’s so nice...

https://connect.mayoclinic.org/comment/1210738/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jan 13 2:48pm

Interesting that your platelet increase was identified after a cardiology procedure. If I may ask, what...

https://connect.mayoclinic.org/comment/1248582/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Mar 2 9:55am

Just had my labs this morning. My platelet count was 421. Doc says not to worry...

https://connect.mayoclinic.org/comment/1276461/

Discussion: My platelet count has increased after a year on Hydroxyurea (HU)

Support Group: Blood Cancers & Disorders

Posted: Apr 7 1:08pm

Hello. Please trust what you are feeling. No one else knows you like you! And, get...

https://connect.mayoclinic.org/comment/1277502/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 9 12:52am

Thank you for alerting me to the fact that strengthing exercises are essential. My brother also...

https://connect.mayoclinic.org/comment/1011201/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2024

When I was diagnosed with a blood disorder, and very hi Hemocrit levels, my Hemotologist did...

https://connect.mayoclinic.org/comment/1002254/

Discussion: At my wits end. Not sure where to go from here.

Support Group: Blood Cancers & Disorders

Posted: Jan 23, 2024

Yes, it is a blood cancer, but is manageable for many, depending on the treatment that...

https://connect.mayoclinic.org/comment/994654/

Discussion: ET, Polycythemia, Jax2: Is this a blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jan 9, 2024

I have PV Jak 2 positive.

https://connect.mayoclinic.org/comment/993717/

Discussion: ET, Polycythemia, Jax2: Is this a blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2024

For my skin cancer I used immiquod cream which allow the body to attack the cancer...

https://connect.mayoclinic.org/comment/981708/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2023

When I first started on HU I was very tired. Now I am on 500 MG...

https://connect.mayoclinic.org/comment/973596/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Dec 1, 2023

Do you have sleep apnea, that could be a polycell cause w a negative JAK. Sorry...

https://connect.mayoclinic.org/comment/872835/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2023

For me it was slight vertigo that made me not as steady on my feet, loss...

https://connect.mayoclinic.org/comment/872185/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2023

I was diagnosed 3 years ago with PV and positive for Jak 2. I take 2...

https://connect.mayoclinic.org/comment/869702/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: May 31, 2023

I was diagnosed in January with jak 2 mutation and ET. I’m new to this sight...

https://connect.mayoclinic.org/comment/845004/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2023

My platelets have steadily increased over the last 4-5 years. Always a little high resulting in...

https://connect.mayoclinic.org/comment/833183/

Discussion: Persistently Elevated Platelets Fluctuating

Support Group: Blood Cancers & Disorders

Posted: Mar 27, 2023

I am an active 82 yr old female. For 10 years I had an elevated platelet...

https://connect.mayoclinic.org/comment/796396/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2023

@eansgardengirl Hello, and welcome! I too have a new diagnosis of ET, and trying to navigate...

https://connect.mayoclinic.org/comment/778643/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2022