Blood Cancers & Disorders Support Group

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Comments (412)

Why do they say it is smoldering? Did they test your protein? My mother had MM...

https://connect.mayoclinic.org/comment/325691/

Discussion: Newly Diagnosed with Smoldering Multiple Myeloma: Watch & wait

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2020

I am not a doctor. There are lots of resources for blood disorders. Resources for multiple...

https://connect.mayoclinic.org/comment/1030314/

Discussion: M-Spike, High Kappa and Kappa/Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2024

@loribmt Thank you for the warm welcome! I am a 50-year old woman that was diagnosed...

https://connect.mayoclinic.org/comment/1462055/

Discussion: T cell large granulocytic leukemia

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2025

Are you seeing a myeloma specialist? If not, get one even if you have drive a...

https://connect.mayoclinic.org/comment/1534906/

Discussion: How high should my Kappa light chain continue to rise before I worry.?

Support Group: Blood Cancers & Disorders

Posted: Mar 25 8:22am

I am new here but I am going though clinical study for smoldering multiple myeloma. For....

https://connect.mayoclinic.org/comment/109779/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Jun 26, 2020

There is a study: A Study Comparing a Plant-Based Diet With Supplements and Placebo in People...

https://connect.mayoclinic.org/comment/1299310/

Discussion: Does plant-based eating lower chances of MGUS progressing to myeloma?

Support Group: Blood Cancers & Disorders

Posted: May 7, 2025

Hi, New diagnosis today. Smoldering melanoma. No lesions ,doing a 24 hour urine collection, bone marrow...

https://connect.mayoclinic.org/comment/965028/

Discussion: High risk smoldering myeloma protocol after 24 cycles of Revlimid?

Support Group: Blood Cancers & Disorders

Posted: Nov 14, 2023

Transfused bc of ferritin low for a year. Was 22-36. Hgb minor low at 11. Iron...

https://connect.mayoclinic.org/comment/1360016/

Discussion: Iron Infusions/Side Effects

Support Group: Blood Cancers & Disorders

Posted: Jul 30, 2025

I have smoldering multiple myeloma since mine was more aggressive then average I was able go...

https://connect.mayoclinic.org/comment/325696/

Discussion: Newly Diagnosed with Smoldering Multiple Myeloma: Watch & wait

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2020

I’ve had it for somewhere between 10-15 years. I see a hematologist and oncologist once a...

https://connect.mayoclinic.org/comment/861025/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 17, 2023

Dr Sabine Mai, UM Canada Research Chair in genomic instability and nuclear architecture in cancer, published...

https://connect.mayoclinic.org/comment/1323683/

Discussion: Smoldering Multiple Myeloma and symptoms

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2025

Greetings from Arkansas. I was diagnosed about 6 months ago. It sounds like most people get...

https://connect.mayoclinic.org/comment/698199/

Discussion: Question to ask about MGUS Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2022

Thanks for the resource link! I am going to be all over this. It really was...

https://connect.mayoclinic.org/comment/104700/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2017

Hi, Adding my data to this group as I am now classified as Smoldering. I only...

https://connect.mayoclinic.org/comment/1034449/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 16, 2024

I have smoldering myeloma, I live in Boise,Id and I don't have great faith in our...

https://connect.mayoclinic.org/comment/1226446/

Discussion: M-Spike, High Kappa and Kappa/Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jan 31, 2025

There is a threshold at which they may decide to start treatment even with smoldering multiple...

https://connect.mayoclinic.org/comment/918186/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 24, 2023

I have smoldering MM. I had a year of low ferritin so iron deficient. My hematologist...

https://connect.mayoclinic.org/comment/1365620/

Discussion: What are my chances that MGUS turns into multiple myeloma?

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2025

My active 82 year old husband was diagnosed with Smoldering Myeloma three months ago. We are...

https://connect.mayoclinic.org/comment/804439/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 31, 2023

@loribmt It's been a bit tumultuous as I am also trying to wield Crohn's disease. Thus...

https://connect.mayoclinic.org/comment/1462692/

Discussion: T cell large granulocytic leukemia

Support Group: Blood Cancers & Disorders

Posted: Dec 17, 2025

Hello. I am sorry you are so deep into this. I am in the beginning of...

https://connect.mayoclinic.org/comment/1532656/

Discussion: Post CAR-T failure, is there hope?

Support Group: Blood Cancers & Disorders

Posted: Mar 22 9:01am