Blood Cancers & Disorders Support Group

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Comments (357)

There is a threshold at which they may decide to start treatment even with smoldering multiple...

https://connect.mayoclinic.org/comment/918186/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 24, 2023

I have smoldering myeloma, I live in Boise,Id and I don't have great faith in our...

https://connect.mayoclinic.org/comment/1226446/

Discussion: M-Spike, High Kappa and Kappa/Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jan 31 4:43pm

My active 82 year old husband was diagnosed with Smoldering Myeloma three months ago. We are...

https://connect.mayoclinic.org/comment/804439/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 31, 2023

I was diagnosed with low risk Smoldering Myeloma several weeks ago. I have started high dose...

https://connect.mayoclinic.org/comment/847311/

Discussion: MGUS and Curcumin/Tumeric

Support Group: Blood Cancers & Disorders

Posted: Apr 22, 2023

@angk welcome to the forum. MGUS sometimes progresses to Smoldering Multiple Myeloma. I believe that to...

https://connect.mayoclinic.org/comment/958940/

Discussion: MGUS and understanding results

Support Group: Blood Cancers & Disorders

Posted: Nov 4, 2023

My mother is a very vital 87 year old and her MM is now active. Had...

https://connect.mayoclinic.org/comment/828979/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Mar 20, 2023

Still have PMR, I'm trying to reduce on Prednisone, down to 12 mg daily from 15....

https://connect.mayoclinic.org/comment/1051008/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2024

@lkzvlk What a challenge for you, to be able to participate in this trial! I see...

https://connect.mayoclinic.org/comment/109782/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Jun 28, 2020

I have gone from having MGUS to now Smoldering Multiple Myeloma. I have labs every 3...

https://connect.mayoclinic.org/comment/50116/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Oct 29, 2011

I have Asymptomatic (Smoldering) Myeloma. My last blood tests showed that my IgA had decreased from...

https://connect.mayoclinic.org/comment/1014998/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 13, 2024

@vera101 If you are not under the care of a hematologist oncologist, please consider getting an...

https://connect.mayoclinic.org/comment/1000202/

Discussion: Multiple myeloma: When to treat? When not to treat?

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2024

@cctoo Sometimes the medical group will call it MGUS for insurance/blood test reasons, while your dr...

https://connect.mayoclinic.org/comment/81216/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2020

It’s good to connect with you all! I am smoldering since January IGG lambda with 2...

https://connect.mayoclinic.org/comment/810136/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 12, 2023

I have smoldering MGUS which was diagnosed on a blood test by accident in 2003. There...

https://connect.mayoclinic.org/comment/775302/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2022

I have Smoldering Myeloma with high IgA and IgG which keeps on dropping. The last test...

https://connect.mayoclinic.org/comment/1016072/

Discussion: Most effective way to administer IVIG

Support Group: Blood Cancers & Disorders

Posted: Feb 15, 2024

Hi @trienbold, I found the posting @cheft had written regarding the five risk factors for smoldering...

https://connect.mayoclinic.org/comment/918484/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 25, 2023

Just recently diaganosed as well with MGUS. I'll soon be scheduled for a bone marrow biopsy....

https://connect.mayoclinic.org/comment/898665/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2023

I am in much the same situation. I have anemia to the point of having iron...

https://connect.mayoclinic.org/comment/978487/

Discussion: Iron deficiency anemia without an apparent cause

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2023

Thank you SO much for replying, I was getting to MGUS worse case smoldering. He had...

https://connect.mayoclinic.org/comment/1188896/

Discussion: High Kappa Lamda ratio: What can affect the test?

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2024

I am not knowledgeable about Waldenstrom’s but I live in Dayton MN and have SMM Smoldering...

https://connect.mayoclinic.org/comment/847350/

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Apr 22, 2023