Blood Cancers & Disorders Support Group

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Comments (361)

I have researched virtually all experts in the field of Polycythemia vera and most agree that...

https://connect.mayoclinic.org/comment/911901/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2023

Hello @lindaw123 I appreciate this thoughtful question. I did some research online and found the results...

https://connect.mayoclinic.org/comment/662346/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2021

Hi @mags17 Unfortunately there is a professional registration necessary to get into the Medscape…however, I found...

https://connect.mayoclinic.org/comment/900855/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 23, 2023

Welcome to Connect, @mcvorbs. Blood conditions such as Polycythemia Vera can develop so slowly, with few...

https://connect.mayoclinic.org/comment/985895/

Discussion: Polycythemia: Does anyone have a problem with dryness?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2023

Agreed. My oncologist/hematologist said Polycythemia Vera IS a blood cancer. You have to stay on top...

https://connect.mayoclinic.org/comment/993678/

Discussion: ET, Polycythemia, Jax2: Is this a blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2024

I have polycythemia Vera and was diagnosed in May of 2023. I had the itching 3...

https://connect.mayoclinic.org/comment/818912/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Feb 28, 2023

Hopefully good news! Could be just Polycythemia, not PV. If so they’ll do tests to see...

https://connect.mayoclinic.org/comment/852367/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: May 1, 2023

I have edema in my legs and burning in my ankles. My peripheral neuropathy is getting...

https://connect.mayoclinic.org/comment/1478301/

Discussion: Does anyone have Amyloidosis as their primary condition?

Support Group: Blood Cancers & Disorders

Posted: Jan 9 2:12pm

Hello @atir, welcome to Connect. I'd like to invite @chadknudson, @mwear, and @juiceinjc to this discussion...

https://connect.mayoclinic.org/comment/231772/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Nov 30, 2018

In regards to your question #3, I have yet to find anywhere that has a use...

https://connect.mayoclinic.org/comment/194257/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2018

Good morning, @serenity55 I love your @name of Serenity. It’s a word in my morning affirmations…and...

https://connect.mayoclinic.org/comment/828909/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 20, 2023

Here is another article: https://www.curetoday.com/view/expanding-on-a-new-way-to-manage-polycythemia-vera-without-iron-deficiency This drug manages your iron level to control the red blood...

https://connect.mayoclinic.org/comment/1324827/

Discussion: New research seems to give hope of new treatment for PV

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2025

Hi, @clarissa37, and welcome to Mayo Clinic Connect. It sounds like your mom has been through...

https://connect.mayoclinic.org/comment/231804/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2020

@mcvorbs, you might also be interested in these related discussions: - What's the latest Jakafi (ruxolitinib)...

https://connect.mayoclinic.org/comment/1178780/

Discussion: Anyone had adverse effects from Jakafi (ruxolitinib) for PV?

Support Group: Blood Cancers & Disorders

Posted: Nov 23, 2024

I’m going through the same thing. I really feel it would alleviate many of the side...

https://connect.mayoclinic.org/comment/1330295/

Discussion: Leiden Factor V: Can I use hormone replacement therapy for menopause?

Support Group: Blood Cancers & Disorders

Posted: Jun 19, 2025

To determine if I still had polycythemia vera or myelofibrosis a bone marrow biopsy was done...

https://connect.mayoclinic.org/comment/876362/

Discussion: Delayed pain after bone marrow biopsy??

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2023

Hi @margrethe, I can imagine with such a new diagnosis, yet to be confirmed you have...

https://connect.mayoclinic.org/comment/873136/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2023

Hello, @upnorth94 Hydroxyurea is the classic medication for PV. But it’s not for everyone. You mentioned...

https://connect.mayoclinic.org/comment/893496/

Discussion: BESREMi anyone?

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2023

Hi @onthejoedock Polycythemia vera is a type of cancer that causes red blood cells to multiply....

https://connect.mayoclinic.org/comment/1009341/

Discussion: How bad is a diagnosis of Polycythemia Vera? What to expect?

Support Group: Blood Cancers & Disorders

Posted: Feb 4, 2024

Yes sorry :( My mom was jak2 positive - high hemoglobin and high hemacrit. The biopsy...

https://connect.mayoclinic.org/comment/1228461/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2025

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