Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

387 total results

Comments (337)

Hello @atir, welcome to Connect. I'd like to invite @chadknudson, @mwear, and @juiceinjc to this discussion...

https://connect.mayoclinic.org/comment/231772/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Nov 30, 2018

Hi @dragonflylynda. For clarification, you actually have PV (polycythemia vera) caused by a defect in the...

https://connect.mayoclinic.org/comment/1464228/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2025

Hopefully good news! Could be just Polycythemia, not PV. If so they’ll do tests to see...

https://connect.mayoclinic.org/comment/852367/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: May 1, 2023

In regards to your question #3, I have yet to find anywhere that has a use...

https://connect.mayoclinic.org/comment/194257/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2018

@mcvorbs, you might also be interested in these related discussions: - What's the latest Jakafi (ruxolitinib)...

https://connect.mayoclinic.org/comment/1178780/

Discussion: Anyone had adverse effects from Jakafi (ruxolitinib) for PV?

Support Group: Blood Cancers & Disorders

Posted: Nov 23, 2024

Good morning, @serenity55 I love your @name of Serenity. It’s a word in my morning affirmations…and...

https://connect.mayoclinic.org/comment/828909/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 20, 2023

I’m going through the same thing. I really feel it would alleviate many of the side...

https://connect.mayoclinic.org/comment/1330295/

Discussion: Leiden Factor V: Can I use hormone replacement therapy for menopause?

Support Group: Blood Cancers & Disorders

Posted: Jun 19, 2025

Here is another article: https://www.curetoday.com/view/expanding-on-a-new-way-to-manage-polycythemia-vera-without-iron-deficiency This drug manages your iron level to control the red blood...

https://connect.mayoclinic.org/comment/1324827/

Discussion: New research seems to give hope of new treatment for PV

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2025

Hi, @clarissa37, and welcome to Mayo Clinic Connect. It sounds like your mom has been through...

https://connect.mayoclinic.org/comment/231804/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2020

When I first heard I had polycythemia Vera JAK 2 positive (Im sure everyone knows you...

https://connect.mayoclinic.org/comment/1455166/

Discussion: Polycythemia vera (PV): Does altitude matter?

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2025

To determine if I still had polycythemia vera or myelofibrosis a bone marrow biopsy was done...

https://connect.mayoclinic.org/comment/876362/

Discussion: Delayed pain after bone marrow biopsy??

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2023

Hi @margrethe, I can imagine with such a new diagnosis, yet to be confirmed you have...

https://connect.mayoclinic.org/comment/873136/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2023

@1pearl would you mind sharing your doctors name at City of Hope? I’ve been considering going...

https://connect.mayoclinic.org/comment/1420257/

Discussion: Myelofibrosis: Anyone have experience with Vonjo (pacritinib)?

Support Group: Blood Cancers & Disorders

Posted: Oct 21, 2025

Hello, @upnorth94 Hydroxyurea is the classic medication for PV. But it’s not for everyone. You mentioned...

https://connect.mayoclinic.org/comment/893496/

Discussion: BESREMi anyone?

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2023

Hi @onthejoedock Polycythemia vera is a type of cancer that causes red blood cells to multiply....

https://connect.mayoclinic.org/comment/1009341/

Discussion: How bad is a diagnosis of Polycythemia Vera? What to expect?

Support Group: Blood Cancers & Disorders

Posted: Feb 4, 2024

Yes sorry :( My mom was jak2 positive - high hemoglobin and high hemacrit. The biopsy...

https://connect.mayoclinic.org/comment/1228461/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2025

I'm 19 years old, male. I have noted my elevated Hb level since three years ago,...

https://connect.mayoclinic.org/comment/1008041/

Discussion: Polycythemia Vera - Help getting Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2024

I was diagnosed at age 46 with Polycythemia Vera and am JAK-2 positive. My treatments have...

https://connect.mayoclinic.org/comment/194278/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 23, 2019

@lwengel, as you likely already know, the USA Food and Drug Administration (FDA) approved December, 2014...

https://connect.mayoclinic.org/comment/751307/

Discussion: What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Sep 18, 2022

Welcome to the CALR club. Me, too. Good news with CALR is that we don't have...

https://connect.mayoclinic.org/comment/1225257/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 30, 2025