Blood Cancers & Disorders Support Group

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Comments (99)

@scared58 I read through this thread and wanted to offer my support, too. As a trained...

https://connect.mayoclinic.org/comment/1256180/

Discussion: Newly diagnosed with MGUS and so anxious

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2025

Would like to hear from anyone that has been put on watch and wait treatment for...

https://connect.mayoclinic.org/comment/205861/

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Dec 17, 2018

What is the process for wanting to be evaluated at the Mayo Clinic? How do you...

https://connect.mayoclinic.org/comment/645619/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Oct 16, 2021

Have also been diagnosed with multiple forms Sharing My Experience & a Resource I've learned that...

https://connect.mayoclinic.org/comment/1313945/

Discussion: I have CLL , CML and now diagnosed with Multiple Myeloma: Discouraged

Support Group: Blood Cancers & Disorders

Posted: May 27, 2025

Hi I was diagnosed 2 years ago with stage 4 marginal zone b cell non Hodgkin's...

https://connect.mayoclinic.org/comment/1307415/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: May 19, 2025

Hi Georgie, Yes. I would very much like to connect with other people who have also...

https://connect.mayoclinic.org/comment/1263546/

Discussion: Primary cutaneous marginal zone B-cell lymphoma (PCMZL)

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2025

My hematologist/oncologist at Mayo just asked if I would be part of a trial for splenic...

https://connect.mayoclinic.org/comment/1118428/

Discussion: Does anyone have splenic marginal zone lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Aug 5, 2024

Welcome @georgie2, as you know primary cutaneous marginal zone B-cell lymphoma (PCMZL) is a low-grade malignant...

https://connect.mayoclinic.org/comment/806697/

Discussion: Primary cutaneous marginal zone B-cell lymphoma (PCMZL)

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2023

Thank you for your response. I am just asking to know should he become infected what...

https://connect.mayoclinic.org/comment/730108/

Discussion: What antiviral medication is right for people with blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jul 24, 2022

@stanleykent Don’t worry no one has ever heard of Primary Cutaneous Marginal Zone Extra Nodal B-Cell...

https://connect.mayoclinic.org/comment/1501778/

Discussion: Does anyone have splenic marginal zone lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Feb 9 12:56pm

@stanleykent I’m so happy that your in remission. What treatment did you have to bring you...

https://connect.mayoclinic.org/comment/1500576/

Discussion: Does anyone have splenic marginal zone lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Feb 7 8:59pm

@christinele Same. Diagnosed with Primary Cutaneous Marginal Zone B-Cell lymphoma after Covid shot, I wish I...

https://connect.mayoclinic.org/comment/1418865/

Discussion: Anyone else taking Hydroxyurea plus Gabapentin for Polycythemia Vera?

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2025

Hi Lori, Yes. It was quite a shock for myself and my family. I was told...

https://connect.mayoclinic.org/comment/1263514/

Discussion: Primary cutaneous marginal zone B-cell lymphoma (PCMZL)

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2025

My oncologist and I discussed medical options if needed. He also told me when I was...

https://connect.mayoclinic.org/comment/1144844/

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Sep 21, 2024

@medgabi Hi Medgabi, I hope all is well with your husband and with you. I would...

https://connect.mayoclinic.org/comment/1512530/

Discussion: Primary cutaneous marginal zone B-cell lymphoma (PCMZL)

Support Group: Blood Cancers & Disorders

Posted: Feb 23 7:09am

@besthiker I only ask because I was under incredible stress at work which I believe weakened...

https://connect.mayoclinic.org/comment/1473755/

Discussion: How do I tell if increase in illnesses is due to lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Jan 3 2:36pm

Hi Lori, I had asked for a MOHs Surgery for the excision of what I was...

https://connect.mayoclinic.org/comment/1263536/

Discussion: Primary cutaneous marginal zone B-cell lymphoma (PCMZL)

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2025

Hi @steiner. If you were to be monitored quarterly for blood work and it’s now at...

https://connect.mayoclinic.org/comment/1263392/

Discussion: Primary cutaneous marginal zone B-cell lymphoma (PCMZL)

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2025

I was diagnosed with splenic marginal zone small b cell lymphoma in April of 2017. The...

https://connect.mayoclinic.org/comment/218729/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2018