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Public Support Group 339 total results
Comments (304)
Julie, I moved your message to the Cancer group where you can meet others who may...
https://connect.mayoclinic.org/comment/113902/
I had lab work for Amyloidosis and everything was good. Does that mean I dont have...
https://connect.mayoclinic.org/comment/1185293/
@loribmt thank you for this really helpful post, Lori! I had shortness of breath since 2013,...
https://connect.mayoclinic.org/comment/1041665/
ah. Are you concerned there could be other things happening like amyloidosis? I'm the worrier who...
https://connect.mayoclinic.org/comment/1118177/
I’m trying to connect with someone who not only has multiple myeloma but also amyloidosis to...
https://connect.mayoclinic.org/comment/873112/
My husband was diagnosed with MGUS not long ago. He went to a cardiologist in Jacksonville...
https://connect.mayoclinic.org/comment/931005/
Hi @marykatr, your post led me to do a bit of internet searching. I learned that...
https://connect.mayoclinic.org/comment/1183818/
My diagnosis is in. Negative for amyloidosis. A hypertrophic, asymmetrical heart wall septum, plus a slightly...
https://connect.mayoclinic.org/comment/1220047/
I was dx with Amyloidosis of the ATTR-CM wild type in 2022. The standard of care...
https://connect.mayoclinic.org/comment/1462426/
@casey1329 My husband who is 80 yrs old has been suffering for months with the same...
https://connect.mayoclinic.org/comment/900586/
FLC is free light chains (kappa and lambda). Measurement of these is used to help diagnoses...
https://connect.mayoclinic.org/comment/1144049/
Hi @honeymamabee, I expanded the title of your discussion to reflect your question and added it...
https://connect.mayoclinic.org/comment/1117967/
As you might remember, I have Cancer>MM>Amyloidosis>Gelsolin, among other things. As you know, Gelsolin is a...
https://connect.mayoclinic.org/comment/621871/
I have had MGUS for 4.5 years. The strategy has been to monitor it with blood...
https://connect.mayoclinic.org/comment/1101928/
Amyloidosis can be tested with a fat pad biopsy. They take a small bit of abdominal...
https://connect.mayoclinic.org/comment/1378108/
Hi Becky, if you go to this site again that @colleenyoung posted, you’ll see a box...
https://connect.mayoclinic.org/comment/738621/
Hi @jan44, I'm sure @vmarra would appreciate connecting with you. I see AL amyloidosis is a...
https://connect.mayoclinic.org/comment/775150/
Hello @sstouten, Welcome to Connect. I'm sorry to hear about your diagnosis, and so glad that...
https://connect.mayoclinic.org/comment/169956/
I'm tagging @robertreidrx @jam5 and others who have experience with Wild-type ATTR Amyloidosis (ATTRwt) to join...
https://connect.mayoclinic.org/comment/1265110/
Is anyone dealing with either of these cancers? My oncologist is currently trying to rule out...
https://connect.mayoclinic.org/comment/1276256/
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