Blood Cancers & Disorders Support Group

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Comments (236)

Thank Thank you, I am somewhat hopeful. I have a great attitude, try to remain positive,...

https://connect.mayoclinic.org/comment/1329064/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 17, 2025

Now retaking Revlimid. Tried it 6months ago with no effect, then tried Vidaza with no effect....

https://connect.mayoclinic.org/comment/1397447/

Discussion: Is anyone here taking Revlimid? If so please share with me

Support Group: Blood Cancers & Disorders

Posted: Sep 20, 2025

I know this was an older post but I would like to know how you are...

https://connect.mayoclinic.org/comment/1488995/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Jan 22 3:29pm

@loribmt yes now I am in ICU because how fast the blood was coming out. They...

https://connect.mayoclinic.org/comment/1607656/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Jun 27 7:11pm

Your journey is like mine..I fractured 7 vertebrae and did the surgery..I was diagnosed with aml...

https://connect.mayoclinic.org/comment/1365901/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2025

@loribmt Thank you for your reply! I was diagnosed last July with MDS with 5q deletion...

https://connect.mayoclinic.org/comment/1550171/

Discussion: Just got my blood test results today. I have MDS

Support Group: Blood Cancers & Disorders

Posted: Apr 14 7:49am

Hi @teammeadows , welcome to Connect. I'd like to introduce you to other members who have...

https://connect.mayoclinic.org/comment/221008/

Discussion: Leukemia CMML-2

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2018

I was diagnosed with AML three months ago at age 83. I am very sensitive to...

https://connect.mayoclinic.org/comment/1331938/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2025

I am been taking Vidaza for 30 cycles ( almost three years). It took a few...

https://connect.mayoclinic.org/comment/1149682/

Discussion: Side effects of Vidaza injections

Support Group: Blood Cancers & Disorders

Posted: Sep 30, 2024

I can tell you this with my own experience. I'm taking in Inquovi which is the...

https://connect.mayoclinic.org/comment/1576930/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: May 17 6:05pm

I was on Jakafi for 8 months and went through 6 cycles of Vidaza treatments which...

https://connect.mayoclinic.org/comment/907546/

Discussion: Massive spleen and dangerous low platelet count

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2023

After an AML diagnosis three years ago, and a BMT, I relapsed a year ago. I...

https://connect.mayoclinic.org/comment/917816/

Discussion: Acute Myeloid Leukemia (AML) - Treatment of 75 year old is working!

Support Group: Blood Cancers & Disorders

Posted: Aug 23, 2023

@jeffreykassover1 Jeff good to hear that you are having better results with the Vidaza. I hope...

https://connect.mayoclinic.org/comment/1328989/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 17, 2025

I have MDS IB2. My blast count was 10% when diagnosed. After 3 rounds of vidaza...

https://connect.mayoclinic.org/comment/1273246/

Discussion: I'm about to begin treatments with Vidaza, what should I know?

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2025

I have been getting Vidaza 5 days every 28 days for four months. ACML (Atypical Chronic...

https://connect.mayoclinic.org/comment/853987/

Discussion: Side effects of Vidaza injections

Support Group: Blood Cancers & Disorders

Posted: May 3, 2023

I take vetoclax and vidaza infusions called 7+3Aldo take it orally Finishing cycle infusions Tuesday land...

https://connect.mayoclinic.org/comment/1428380/

Discussion: Anyone take Vidaza and Venetoclax for Acute Myeloid Leukemia (AML)?

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2025

Love this story, @dancouclanel4! You’re having amazing success with your treatment for AML. Going from 26%...

https://connect.mayoclinic.org/comment/1250805/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2025

I have finished 4 rounds. I’m getting 70mgs of Vidaza (3 infusions) and 1 Venclexta/day for...

https://connect.mayoclinic.org/comment/1338146/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2025

Mom has well controlled hypertension (but recently her meds were doubled). I have read that increased...

https://connect.mayoclinic.org/comment/1185598/

Discussion: Newly diagnosed MDS-IB2 and vidaza

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2024

@You are always so helpful to this website . Thank you ! My husband was on...

https://connect.mayoclinic.org/comment/1524494/

Discussion: What disorders cause low red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Mar 11 9:15am

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