Blood Cancers & Disorders Support Group

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Comments (339)

Sounds like your in good hands. Yes, the liposomal Glutathione form is out front. It's recommended...

https://connect.mayoclinic.org/comment/132661/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2020

Jakafi is not chemo medicine as such. It is treatment targeted for PV and myelofibrosis; it...

https://connect.mayoclinic.org/comment/889987/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

I read that bone marrow transplants are Only for the MPN myelofibrosis I have not heard...

https://connect.mayoclinic.org/comment/57941/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2020

Hydroxyurea tends to lower blood cells, so it's unlikely to help with low platelets. JAK inhibitors...

https://connect.mayoclinic.org/comment/1249599/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Mar 3 2:09pm

My wife was diagnosed with MF 4 months ago due to MPL mutation. We just heard...

https://connect.mayoclinic.org/comment/132606/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2017

I would be happy to assist in anyway that I can. I am one year into...

https://connect.mayoclinic.org/comment/719904/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2022

I was diagnosed by Mayo with myelofibrosis several years ago. Since then, various clinics have repeatedly...

https://connect.mayoclinic.org/comment/699543/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2022

I too have Myelofibrosis I did a bone marrow biopsy prior to starting Jakafi. They did...

https://connect.mayoclinic.org/comment/1099094/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2024

Hi @snakebite, If you do not mind my asking, did you have any symptoms when you...

https://connect.mayoclinic.org/comment/1345090/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: 4 days ago

Thank you so much for proving this link, sdduan. It's really interesting to hear high-level MPN...

https://connect.mayoclinic.org/comment/1166064/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2024

:Yes I am being treated for myelofibrosis with Jakafi. I was never able to take the...

https://connect.mayoclinic.org/comment/1099091/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2024

Hi @mahmoudbakry. Sometimes diagnosing a blood condition can be like unraveling a complicated mystery with an...

https://connect.mayoclinic.org/comment/1044404/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2024

Welcome, @rspriggle. I can only imagine your shock of receiving the diagnosis of primary myelofibrosis, especially...

https://connect.mayoclinic.org/comment/616932/

Discussion: Primary Myelofibrosis diagnosis in 40’s

Support Group: Blood Cancers & Disorders

Posted: Jul 15, 2021

Welcome to Mayo Connect, @chrisatwell. We all occasionally need a lifeline. And sometimes all it takes...

https://connect.mayoclinic.org/comment/1265486/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 24 8:21am

Honestly, I really do not think my O/H knows if I have ET or Myelofibrosis. I...

https://connect.mayoclinic.org/comment/1281668/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Apr 14 11:38am

I have had high triglycerides for forty years a low HDL. In my case, it had...

https://connect.mayoclinic.org/comment/1226850/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 1 10:15am

Hi @wellness3070. I'd also like to introduce you to other members who have myelofibrosis or are...

https://connect.mayoclinic.org/comment/132597/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2017

Hi dunewalker, Since I really do not know what I actually have, a have not taken...

https://connect.mayoclinic.org/comment/1268772/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 28 2:24pm

Hi ideachaser1, Thanks for sharing. I guess what I am asking is do you have megakaryocyte...

https://connect.mayoclinic.org/comment/1256239/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 12 11:48am

Welcome to Connect, @dot65. I moved your message to this discussion so you could meet others...

https://connect.mayoclinic.org/comment/132608/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 24, 2017