Blood Cancers & Disorders Support Group | Page 5

Hi @samlupowitz I'm curious... When you say "...was diagnosed with myelofibrosis a few years ago. Was...

https://connect.mayoclinic.org/comment/1503296/

Discussion: Anyone have Myelofibrosis (CMS-HCC)?

Support Group: Blood Cancers & Disorders

Posted: Feb 11 2:20pm

@loribmt Thank you for this hopeful message. My situation is a bit different (myelofibrosis), but have...

https://connect.mayoclinic.org/comment/1518043/

Discussion: Anyone go through duv/romi treatment before an allogenic BMT?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 2 4:26pm

stimme, thank you for your contribution and I hope the acupuncture has helped. I came across...

https://connect.mayoclinic.org/comment/132617/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 10, 2020

I am not an expert, but I would think a BM bx would allow the practitioner...

https://connect.mayoclinic.org/comment/877587/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2023

There is a lot of information but the final comment was: The patient’s positive CALR mutation...

https://connect.mayoclinic.org/comment/1256039/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2025

I have a different diagnosis than you so you can look at my list and substitute...

https://connect.mayoclinic.org/comment/1308354/

Discussion: Diagnosed with MGUS. What questions should I ask the hematologist?

Support Group: Blood Cancers & Disorders

Posted: May 20, 2025

I was diagnosed with Myelofibrosis almost 2 1/2 years ago. Lost 50 pounds, have tremendous fatigue,...

https://connect.mayoclinic.org/comment/1005596/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 29, 2024

I suffer from a mild myelofibrosis. From time to time, I am experiencing night sweats. Has...

https://connect.mayoclinic.org/comment/1193740/

Discussion: Primary Myelofibrosis: Continue watch & wait? 2nd opinion?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2024

JAK2 Myelofibrosis I have been on Ojjarra for almost three months. It is a half dose...

https://connect.mayoclinic.org/comment/1210536/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2025

My husband was diagnosed with primary Myelofibrosis with JAK2 mutation last June. Has anyone looked into...

https://connect.mayoclinic.org/comment/1493287/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jan 29 10:25am

Hello @ksyren, yes, it is really nice to be able to chat with people who are...

https://connect.mayoclinic.org/comment/1205478/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 6, 2025

Has anyone heard of new approved treatments for dry bone marrow or myelofibrosis - not stem...

https://connect.mayoclinic.org/comment/1049344/

Discussion: Propofol for bone marrow biopsy

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2024

@jak2mpnpositive I had ET MPN for many years and now have myelofibrosis due to the JAK2...

https://connect.mayoclinic.org/comment/1489467/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jan 23 12:36pm

Follow your instincts! Continue to search for solutions. Try the resources that Lori gave you. My...

https://connect.mayoclinic.org/comment/1550163/

Discussion: Primary Myelofibrosis: so unsure of everything, need answers

Support Group: Blood Cancers & Disorders

Posted: Apr 14 7:44am

@1pearl I’m glad you are finding good care now for this disease. Really helps getting a...

https://connect.mayoclinic.org/comment/1537532/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 28 7:07pm

Hi @trillium, while many patients with polycythemia vera (PV), essential thrombocythemia (ET) or myelofibrosis (MF) have...

https://connect.mayoclinic.org/comment/336437/

Discussion: JAK2 negative with high platelets

Support Group: Heart & Blood Health

Posted: Mar 2, 2021

Thanks for reply. I, too, am on Jakafi and have been treated for condition for about...

https://connect.mayoclinic.org/comment/132600/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2017

Thanks for catching that. Yes, I have primary myelofibrosis. I have an oncologist that is holding...

https://connect.mayoclinic.org/comment/1043713/

Discussion: Anyone have information about late stages of primary myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 1, 2024

Welcome to Connect, @sunbird09 Over time, some people with PV may develop MF. This occurs if...

https://connect.mayoclinic.org/comment/1099168/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2024

Hello, @lmkmom I’ve been reading through a couple of your previous posts to see that you’ve...

https://connect.mayoclinic.org/comment/1320465/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2025