Blood Cancers & Disorders: Discussions | Page 5

Bad news last time at the doc office, the doctor told me that I suffer from...

https://connect.mayoclinic.org/comment/1044397/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2024

Hi, I hope this discussion restarts! After having high platelets on a routine physical with lab...

https://connect.mayoclinic.org/comment/1351541/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 19 9:35am

I would recommend anyone on hydroxyurea to look into Besremi. It has been shown to significantly...

https://connect.mayoclinic.org/comment/1204661/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 5 2:12pm

Hi @dawnmarieyoung I just wanted to follow-up with you to see if you caught my reply...

https://connect.mayoclinic.org/comment/1368963/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Aug 12 10:15am

Welcome to Connect, @jtcat7. Looks like you have a full deck of mutations in your hand....

https://connect.mayoclinic.org/comment/1367613/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 10 10:40am

Sounds exactly like my story without the myelofibrosis. So many results from genetic and bone marrow...

https://connect.mayoclinic.org/comment/1203190/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 3 12:53pm

Hi @pearly, Please note that the reply above was from @gael, who is also living with...

https://connect.mayoclinic.org/comment/50536/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2017

Myelofibrosis (Diagnosed by Mayo 7 years ago) is one of those conditions which many doctors know...

https://connect.mayoclinic.org/comment/714720/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2022

@luvs2dance Thank you for sharing. I'm sorry to hear that it has progressed to Myelofibrosis. How...

https://connect.mayoclinic.org/comment/1278844/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Apr 10 5:09pm

Had the uncontrollable itching about 5 years ago. No specialist had any idea what the cause...

https://connect.mayoclinic.org/comment/802925/

Discussion: Myelofibrosis or long Covid?

Support Group: Blood Cancers & Disorders

Posted: Jan 28, 2023

Jakafi is not chemo medicine as such. It is treatment targeted for PV and myelofibrosis; it...

https://connect.mayoclinic.org/comment/889987/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

I read that bone marrow transplants are Only for the MPN myelofibrosis I have not heard...

https://connect.mayoclinic.org/comment/57941/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2020

Sorry, but I find it difficult to know how to enter the discussion without just replying...

https://connect.mayoclinic.org/comment/1165808/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Oct 31, 2024

The way I understand it MPN specialists are hematologists with sub speciality of MPN’s such as...

https://connect.mayoclinic.org/comment/797781/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jan 16, 2023

Sounds like your in good hands. Yes, the liposomal Glutathione form is out front. It's recommended...

https://connect.mayoclinic.org/comment/132661/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2020

My wife was diagnosed with MF 4 months ago due to MPL mutation. We just heard...

https://connect.mayoclinic.org/comment/132606/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2017

Hydroxyurea tends to lower blood cells, so it's unlikely to help with low platelets. JAK inhibitors...

https://connect.mayoclinic.org/comment/1249599/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Mar 3 2:09pm

I would be happy to assist in anyway that I can. I am one year into...

https://connect.mayoclinic.org/comment/719904/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2022

I too have Myelofibrosis I did a bone marrow biopsy prior to starting Jakafi. They did...

https://connect.mayoclinic.org/comment/1099094/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2024

I am on Original Medicare and have an excellent Medigap policy. At least for Myelofibrosis, a...

https://connect.mayoclinic.org/comment/1328486/

Discussion: Stem Cell Replacement

Support Group: Blood Cancers & Disorders

Posted: Jun 16 2:00pm

Blood Cancers & Disorders Support Group