248 total results
Comments (224)
This is pretty normal - I had pain in that area for about a month -...
https://connect.mayoclinic.org/comment/889844/
derikburger @derikburg My PV caused Myelofibrosis, I was diagnosed Dec. 30, 2022 . Jakafi, Hydroxyurea ,...
https://connect.mayoclinic.org/comment/817148/
HI The only side affect I have had is tiredness, I avoid sitting in the sun...
https://connect.mayoclinic.org/comment/940309/
I have been taking Jakafi for post essential thrombocytosis (PET) Myelofibrosis since Nov 2020 and had...
https://connect.mayoclinic.org/comment/1091493/
Greetings, I don't like the idea of looking towards an 'end stage'. That sounds like disaster....
https://connect.mayoclinic.org/comment/1049371/
Hello everybody,so this picture is my bone marrow biopsy results,I went to the doc and he...
https://connect.mayoclinic.org/comment/1039033/
Thanks Coleen for your input. My husband's disease is not considered leukemia but a disease of...
https://connect.mayoclinic.org/comment/101842/
Glad that you share faith in Jesus Christ. Two things I observe: 1. It was a...
https://connect.mayoclinic.org/comment/1139944/
Hi @sonja239. I understand your duress with having received news that you have two myeloproliferative blood...
https://connect.mayoclinic.org/comment/1097321/
Erikaerika, I just looked at NIH.gov and as of 2020 the median survival age of people...
https://connect.mayoclinic.org/comment/799775/
Yes unfortunately that is true. For years after my mom passed from Myelofibrosis I donate to...
https://connect.mayoclinic.org/comment/982569/
Hi @casevin7 JAK2 is an acquired mutation so it is possible to develop it in the...
https://connect.mayoclinic.org/comment/870437/
I am beginning to think my mom had this and no one told us. She lived...
https://connect.mayoclinic.org/comment/926244/
I am now 65 and have been taking Hydroxyurea for 10 years to keep my platelets...
https://connect.mayoclinic.org/comment/910025/
Hello @ettap and welcome to Connect. It is good to see that you have confirmed your...
https://connect.mayoclinic.org/comment/194256/
@scottmatteo I, too, have myelofibrosis. diagnosed by Mayo almost 6 years ago. But at that time,...
https://connect.mayoclinic.org/comment/657916/
I don't recall if you mentioned using NAC or glutathione. Individually they offer important benefits. Together,...
https://connect.mayoclinic.org/comment/132659/
Hi Nellieblue, My husband has been on Tamsulosin for his Myelofibrosis two capsules a day for...
https://connect.mayoclinic.org/comment/101841/
Yes . I had this for 10 1/2 years and used same medication until it no...
https://connect.mayoclinic.org/comment/50532/
I'm 77 and 6 yrs ago I was found to need a TAVR for severe aortic...
https://connect.mayoclinic.org/comment/1164101/
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