Blood Cancers & Disorders Support Group

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Comments (992)

Anne - Marie I was reading the post and you made 2 remarks and I wonder...

https://connect.mayoclinic.org/comment/962383/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2023

Welcome to Connect, @questions2023. Inqovi is a type of chemotherapy to treat patients with MDS (and...

https://connect.mayoclinic.org/comment/1281488/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2025

I have a ten of hematologists. It could be MDS disease. but not sure.

https://connect.mayoclinic.org/comment/1322989/

Discussion: Polycythemia Vera and low iron

Support Group: Blood Cancers & Disorders

Posted: Jun 8, 2025

I wanted to add that after my 1st BMB i was diagnosed with MDS. They were...

https://connect.mayoclinic.org/comment/1109258/

Discussion: should I do more testing?

Support Group: Blood Cancers & Disorders

Posted: Jul 21, 2024

Hi @golddust Fellow Coloradoan and I share MDS with you but not the hemochromatosis. Your profile...

https://connect.mayoclinic.org/comment/1422418/

Discussion: Anyone have MDS + Hemochromatosis? Who specializes in both?

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2025

I live in Upstate NY and there is no MDS expert in my area. I drive...

https://connect.mayoclinic.org/comment/235272/

Discussion: MDS and Neupogen

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2019

@barbwsm I too have MDS. You should ask your doc to check your ferritin level before...

https://connect.mayoclinic.org/comment/1475928/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Jan 6 2:09pm

Hi Cindy, Have you had a chance to read through some of the information in the...

https://connect.mayoclinic.org/comment/1283915/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Apr 17, 2025

I have been diagnosed with MDS by my Hemotologist and as I m 92 years old...

https://connect.mayoclinic.org/comment/1365825/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2025

Hi Jeff, Welcome to Connect. I know from experience that we’d like our meds to work...

https://connect.mayoclinic.org/comment/1256863/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Mar 13, 2025

Good morning, @nrdl2879 I hope you’re having a pleasant day so far. I’m relieved that the...

https://connect.mayoclinic.org/comment/1359793/

Discussion: Just tired: Husband has colon cancer and I have MDS

Support Group: Caregivers

Posted: Jul 30, 2025

Would like to hear from others with MDs an Pancytopenia an treatment they are receiving

https://connect.mayoclinic.org/comment/845533/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2023

@pathilt - Siteman is an MDS Center of Excellence. Keep us posted on progress.

https://connect.mayoclinic.org/comment/1113543/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 28, 2024

@doriskay79 About 30% of MDS patients develop AML regardless of the type of MDS they have....

https://connect.mayoclinic.org/comment/1200263/

Discussion: Can anything help ongoing fatigue from myelodysplastic syndromes (MDS?

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2024

I am a recently diagnosed with MDS after beating hairy cell leukemia. Counts never went up...

https://connect.mayoclinic.org/comment/1195254/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2024

That is interesting. How long ago were diagnosed with MDS? I have found if you enter...

https://connect.mayoclinic.org/comment/1462760/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Dec 17, 2025

Hi Pat -- It took about a year for the hematologist to cement in an MDS...

https://connect.mayoclinic.org/comment/1332246/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2025

My husband has MDS red-cell blood cancer after handling Roundup for many years back in the...

https://connect.mayoclinic.org/comment/291016/

Discussion: Hodgkin's & non-Hodgkin's Lymphoma: Is it familial?

Support Group: Blood Cancers & Disorders

Posted: Jan 28, 2020

How long did you remain low risk MDS before it progressed?

https://connect.mayoclinic.org/comment/1365550/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2025

Oh MDS ! How old?Which type?How did you diagnosed with it ?

https://connect.mayoclinic.org/comment/1031219/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Mar 10, 2024