Blood Cancers & Disorders Support Group

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Comments (1,109)

Thanks, suetex! I looked up Reblozyl. It's Luspatercept, the drug Moffit Cancer Tampa, Dr. Rami Komrokji...

https://connect.mayoclinic.org/comment/1100293/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2024

Hi! Nancy here in Virginia. Re: MDS AND ITCHING i am on Inqovi every month, having...

https://connect.mayoclinic.org/comment/1565939/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: May 3 10:11pm

Good morning Bonnie. I too have MDS. I was diagnosed last year, but believe I have...

https://connect.mayoclinic.org/comment/1053654/

Discussion: MDS: Can someone explain how or why platelets go up or down quickly?

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2024

Dealing with MDS and enlarged spleen with high white blood count. How will radiation effect the...

https://connect.mayoclinic.org/comment/1564166/

Discussion: Radiation of spleen side effects…

Support Group: Blood Cancers & Disorders

Posted: May 1 12:32pm

We learned that MDS can be related to AML; but not necessarily. My husband has had...

https://connect.mayoclinic.org/comment/1199185/

Discussion: Can anything help ongoing fatigue from myelodysplastic syndromes (MDS?

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2024

Maybe I should rephrase my original question. What your quality of life after you found out...

https://connect.mayoclinic.org/comment/1576508/

Discussion: How's your quality of life living with MDS?

Support Group: Blood Cancers & Disorders

Posted: May 17 9:01am

Hi @dde83! Wouldn’t that be great if fried chicken was the cure for MDS?!? There’d be...

https://connect.mayoclinic.org/comment/1308349/

Discussion: How can I raise my platelet count? (With food)

Support Group: Blood Cancers & Disorders

Posted: May 20, 2025

I don't mind your questions. My WBC are currently 2.3 and Neut .50. I have curtailed...

https://connect.mayoclinic.org/comment/1366837/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2025

Hi @grandmatoni Welcome to Connect. So glad you’ve chosen us to be your new friends and...

https://connect.mayoclinic.org/comment/1587370/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: May 31 9:15am

You need to do bone marrow biopsy to detect MDS

https://connect.mayoclinic.org/comment/1110210/

Discussion: Immune Thrombocytopenia Purpura (ITP): What helps?

Support Group: Blood Cancers & Disorders

Posted: Jul 22, 2024

I don't understand why some MDs are diagnoses averse

https://connect.mayoclinic.org/comment/1471936/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Jan 1 8:20am

I have a ten of hematologists. It could be MDS disease. but not sure.

https://connect.mayoclinic.org/comment/1322989/

Discussion: Polycythemia Vera and low iron

Support Group: Blood Cancers & Disorders

Posted: Jun 8, 2025

Welcome to Connect, @questions2023. Inqovi is a type of chemotherapy to treat patients with MDS (and...

https://connect.mayoclinic.org/comment/1281488/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2025

Anne - Marie I was reading the post and you made 2 remarks and I wonder...

https://connect.mayoclinic.org/comment/962383/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2023

I wanted to add that after my 1st BMB i was diagnosed with MDS. They were...

https://connect.mayoclinic.org/comment/1109258/

Discussion: should I do more testing?

Support Group: Blood Cancers & Disorders

Posted: Jul 21, 2024

Hi @golddust Fellow Coloradoan and I share MDS with you but not the hemochromatosis. Your profile...

https://connect.mayoclinic.org/comment/1422418/

Discussion: Anyone have MDS + Hemochromatosis? Who specializes in both?

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2025

I live in Upstate NY and there is no MDS expert in my area. I drive...

https://connect.mayoclinic.org/comment/235272/

Discussion: MDS and Neupogen

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2019

Hi Cindy, Have you had a chance to read through some of the information in the...

https://connect.mayoclinic.org/comment/1283915/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Apr 17, 2025

I have been diagnosed with MDS by my Hemotologist and as I m 92 years old...

https://connect.mayoclinic.org/comment/1365825/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2025

Hi Jeff, Welcome to Connect. I know from experience that we’d like our meds to work...

https://connect.mayoclinic.org/comment/1256863/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Mar 13, 2025

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