Blood Cancers & Disorders Support Group

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Comments (759)

Diagnosed with MDS. I am very interested if there are other drugs than Vidaza? And if...

https://connect.mayoclinic.org/comment/1283488/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Apr 16 4:12pm

Hi Brenda, As someone else who posted here said “Be your own advocate.” Since you are...

https://connect.mayoclinic.org/comment/963403/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2023

@garyrp, I apologize for my delayed welcome to Connect. If you don't mind, are you comfortable...

https://connect.mayoclinic.org/comment/196818/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: May 7, 2018

MDS 5q what happens now?I was diagnosed with Mds 5Q in 2019 did required blood tests...

https://connect.mayoclinic.org/comment/1080101/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jun 3, 2024

No tx yet. Fish analysis MDs extended: issues: Del5q, trisomy 8 and 19 all detected abnormal.

https://connect.mayoclinic.org/comment/1202390/

Discussion: Anyone living with MDS Extended diagnosis experience?

Support Group: Blood Cancers & Disorders

Posted: Jan 2 11:02am

I was diagnosed last year. I have MDS with del(5q). The initial diagnosis was confirmed with...

https://connect.mayoclinic.org/comment/1031602/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Mar 11, 2024

Hi Hollie, There are several different types of MDS that indicate whether you are low or...

https://connect.mayoclinic.org/comment/962436/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2023

Good morning..has anyone taken this treatment for mds..that would be hopeful for me Thank you

https://connect.mayoclinic.org/comment/1058610/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Apr 28, 2024

By the way, check out the websites for Myleukemia.com, MyMPNteam, MPN Research Foundation, MDS-foundatio.org. They have...

https://connect.mayoclinic.org/comment/328595/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2021

MDS with 5Q and not responding to Lenalidomide, best options?Not responding to lenalidomide after 5 weeks,...

https://connect.mayoclinic.org/comment/1271172/

Discussion: What are your experiences with lenalidomide (Revlimid) for MDS?

Support Group: Blood Cancers & Disorders

Posted: Mar 31 4:21pm

Thanks! Right now, we are still figuring all this out. My numbers are low, too, especially...

https://connect.mayoclinic.org/comment/1073246/

Discussion: Myelodysplastic Syndrome and Sjogren's

Support Group: Blood Cancers & Disorders

Posted: May 23, 2024

Welcome @gothman. There are different subtypes of MDS, some having more of a tendency to potentially...

https://connect.mayoclinic.org/comment/1195304/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2024

My prayers go out to the people who are struggling with MDS. May God bring you...

https://connect.mayoclinic.org/comment/1134458/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Sep 1, 2024

Yes mds seein doc Fri see wat they advise at this point would love to hear...

https://connect.mayoclinic.org/comment/819394/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2023

@pathilt Hello! I am an MDS patient and would like to echo, add some more information....

https://connect.mayoclinic.org/comment/1113342/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 28, 2024

Welcome to Connect @stevefenton. Thank you for sharing your experience with Vidaza/Venetoclax for AML. Sounds like...

https://connect.mayoclinic.org/comment/1155582/

Discussion: Venetoclax plus decitabine not working?

Support Group: Blood Cancers & Disorders

Posted: Oct 11, 2024

Anyone diagnosed with MDS/MPN-RS-T? I’ve was diagnosed 5 years ago. There are only 7 patients at...

https://connect.mayoclinic.org/comment/863258/

Discussion: I have been diagnosed and under treatment for MDS

Support Group: Blood Cancers & Disorders

Posted: May 20, 2023

Snakebite, are you saying Dacogen and Vonjo are used for your MDS and MF.... or are...

https://connect.mayoclinic.org/comment/1032491/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2024

Well I’m at your beginning point with MDS and will see wat treatment they suggest an...

https://connect.mayoclinic.org/comment/819397/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2023

Hi @jps01, from my experience with leukemia and hundreds of blood tests over the past 4...

https://connect.mayoclinic.org/comment/928445/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 11, 2023