Blood Cancers & Disorders Support Group

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Comments (1,099)

I’m currently being tested for polythecemia vera. JAK2 at the end of May. A bit anxious....

https://connect.mayoclinic.org/comment/857807/

Discussion: JAK2 positive, high platelets and also PAH (diagnosed)

Support Group: Blood Cancers & Disorders

Posted: May 10, 2023

Hi, im jak2 negative with continous high platelets 500-800 range im 31 asymptomatic , discovered over...

https://connect.mayoclinic.org/comment/194358/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 30, 2020

My Heme doc said there are basically 4 types of ET, and only one = cancer....

https://connect.mayoclinic.org/comment/877571/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2023

You should look at the MPN Research Foundation webpage for information regarding ET and the JAK2...

https://connect.mayoclinic.org/comment/328564/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2020

Hello, Have you had the JAK2 test yet? I’m sorry I didn’t see your previous post.

https://connect.mayoclinic.org/comment/898898/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2023

Blood draw today. Platelets were down from 11/2. I know the platelets go down when I...

https://connect.mayoclinic.org/comment/973027/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Nov 30, 2023

Has anyone suggested DNA/genetic testing? That's what my Heme doc (an MPN specialist) did, and I...

https://connect.mayoclinic.org/comment/1054171/

Discussion: JAK2 detection accuracy

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2024

I'm 71 and have ET with JAK2 mutation. A DEXA scan earlier this month showed normal...

https://connect.mayoclinic.org/comment/998807/

Discussion: MPN and osteoporosis, any of you have insufficiency fractures?

Support Group: Blood Cancers & Disorders

Posted: Jan 17, 2024

@thlas1971 Hi there! Sorry for the late reply. I uploaded my 23 and Me raw data...

https://connect.mayoclinic.org/comment/231796/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2019

I have never had labs identifying jak2 only a bone marrow biopsy. It seems that would...

https://connect.mayoclinic.org/comment/1054100/

Discussion: JAK2 detection accuracy

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2024

I will look into that with my Dr , can I ask your age? how high...

https://connect.mayoclinic.org/comment/1023672/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 27, 2024

Today I received results for the JAK2 V617F test and I am positive. A home sleep...

https://connect.mayoclinic.org/comment/783056/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 9, 2022

What is the diagnosis for a platelet count in 770,000 range and no Jak2 mutation? Is...

https://connect.mayoclinic.org/comment/252019/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jul 17, 2019

Good morning- Your comments are right on target. I need some direction as I seek clinical...

https://connect.mayoclinic.org/comment/663899/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2021

Hello, lindamarie! Others on this forum have been living with ET with the JAK2 driver for...

https://connect.mayoclinic.org/comment/1184720/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2024

Yes, hemo scheduled JAK2 test. That was neg, but false negs happen, so she did the...

https://connect.mayoclinic.org/comment/1054719/

Discussion: JAK2 detection accuracy

Support Group: Blood Cancers & Disorders

Posted: Apr 21, 2024

Yes, perfect, thanks. They found the CALR mutation on me. I still haven't figured out if...

https://connect.mayoclinic.org/comment/1102868/

Discussion: HU & Titanium Oxide

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2024

Hello and I am new to this. My brother just got his JAK2 V617F back and...

https://connect.mayoclinic.org/comment/834309/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2023

Hi Linda- I’ve read studies showing vitamin D deficiency and blood clotting correlation in Jak2 mutations,...

https://connect.mayoclinic.org/comment/662205/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2021

Welcome to our group. I was very interested to read that you have both ET and...

https://connect.mayoclinic.org/comment/786724/

Discussion: Does anyone else have more than one myeloproliferative disorder?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2022