Blood Cancers & Disorders Support Group

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Comments (1,381)

Hi @artymarty, welcome to Connect. It’s not as cool as the old treehouse club when we...

https://connect.mayoclinic.org/comment/909989/

Discussion: Had CLL for about 2 years, Dr is now thinking of treatment

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2023

Yes , I am taking Hydroxurea & 81 aspirin & yes I was told about JAK2

https://connect.mayoclinic.org/comment/1269559/

Discussion: Up to date info

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2025

I also have the JAK2 mutation as does my brother. My brother could not tolerate the...

https://connect.mayoclinic.org/comment/1064864/

Discussion: Platelets are too high: What can be done to find root cause?

Support Group: Blood Cancers & Disorders

Posted: May 9, 2024

Welcome, @sregiani. I moved your message to this existing discussion about essential thrombocythemia - I have...

https://connect.mayoclinic.org/comment/834410/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2023

Looking for a support group for newly diagnosed Essential Thrombocythemia due JAK2 genetic mutation. This is...

https://connect.mayoclinic.org/comment/1464573/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2025

I have ET with jak2 and experience fatigue and occasional headaches, but haven't noticed any changes...

https://connect.mayoclinic.org/comment/1209498/

Discussion: Does ET or HU affect liver functions?

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2025

essential thrombocythemia (ET) can sometimes be diagnosed without a bone marrow biopsy if a driver mutation...

https://connect.mayoclinic.org/comment/1507899/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 17 8:14am

My age is 32 and I have ET with jak2. For how long I can take...

https://connect.mayoclinic.org/comment/965613/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2023

my bone marrow biopsy results are consistent with a JAK2+ myeloproliferative neoplasms. Do i have cancer?

https://connect.mayoclinic.org/comment/1227761/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 2, 2025

Hi, I'm 68. Just diagnosed with Jak2. They did a DNA blood test. My platelets are...

https://connect.mayoclinic.org/comment/1142245/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2024

@arti4 Hello! I was diagnosed with ET w/JAK2 just recently and my main symptom is lightheadedness.

https://connect.mayoclinic.org/comment/1287743/

Discussion: Lightheaded with ET

Support Group: Blood Cancers & Disorders

Posted: Apr 22, 2025

Hello @ajordan1982, if you are comfortable sharing, what medications were discussed by your physician? It may...

https://connect.mayoclinic.org/comment/256900/

Discussion: Are you taking medication for JAK2? How does it affect you?

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2019

I'm wondering with ET Jak2, I take HU with baby aspirin. But doctor always said no...

https://connect.mayoclinic.org/comment/1560011/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: 2 days ago

Im recently diagnosed with acquired von Willebrand and Jak2, my platelets are around 600. I was...

https://connect.mayoclinic.org/comment/194336/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Sep 10, 2019

@lynnebgraham Thank you for your response. Your question about alternatives to HU has been added. Can...

https://connect.mayoclinic.org/comment/1272479/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2025

Yes - JAK2 platelet count 893 - 75mg Aspirin and 500mg HU for the next 6weeks-...

https://connect.mayoclinic.org/comment/887554/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 30, 2023

@val64 - JAK2 inactivating mutations promotes endometrial cancer progression by targeting HIF-1α https://pmc.ncbi.nlm.nih.gov/articles/PMC11669642/

https://connect.mayoclinic.org/comment/1419356/

Discussion: Endometerial cancer with essential throbocythemia (ET) Jak 2 mutation

Support Group: Gynecologic Cancers

Posted: Oct 20, 2025

I have heard there are clinical trials at the Mayo clinic for the JAK2 inhibitor drugs....

https://connect.mayoclinic.org/comment/50500/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2011

Welcome to Connect, @sunbird09 Over time, some people with PV may develop MF. This occurs if...

https://connect.mayoclinic.org/comment/1099168/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2024

Hello @marg3. From my understanding it’s almost impossible to know when one of these genetic mutations...

https://connect.mayoclinic.org/comment/802352/

Discussion: JAK2 and DNA

Support Group: Blood Cancers & Disorders

Posted: Jan 27, 2023