Blood Cancers & Disorders Support Group

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Comments (417)

I’m 78, diagnosed in 2021 with pv. On hydroxyurea 1000mg and hematocrit stays at 45. Itching...

https://connect.mayoclinic.org/comment/833829/

Discussion: Hydroxyurea side effects lessen over time?

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2023

@billy70, you mention that you have leukemia. Is this itching and burning something new since your...

https://connect.mayoclinic.org/comment/1181880/

Discussion: High Eosinophils with pain in left side under ribs and very itchy

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2024

I talked to my oncologist and she said that because our basophils and eosinophils are abnormal...

https://connect.mayoclinic.org/comment/962671/

Discussion: Has anyone else experienced frequent infections and itching with CLL?

Support Group: Blood Cancers & Disorders

Posted: Nov 11, 2023

I was diagnosed with MF. I have itching on my buttocks and upper legs. I also...

https://connect.mayoclinic.org/comment/1111433/

Discussion: Is Cutaneous T-Cell Lymphoma a Death Sentence?

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2024

Can you tell me what OTC can be used for the itching and headaches? Tylenol and...

https://connect.mayoclinic.org/comment/1192614/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 17, 2024

Two years ago, at age 78, I noticed severe itching after bathing. A physicians assistant noticed...

https://connect.mayoclinic.org/comment/872059/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2023

I have read your above posts in an attempt to find help for my husband who...

https://connect.mayoclinic.org/comment/872173/

Discussion: Hemochromatosis: How do you deal with extreme itchiness?

Support Group: Skin Health

Posted: Jun 4, 2023

@claire39, does redness of your scalp cause you any other symptoms like itching or discomfort? Has...

https://connect.mayoclinic.org/comment/146299/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2020

I have been diagnosed with MDS 2016. Now I have been diagnosed with CMML. 3 yrs...

https://connect.mayoclinic.org/comment/1328601/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 16 5:29pm

I too have had many of these exact symptoms. Dr. Said erythrocytosis. I'm to have blood...

https://connect.mayoclinic.org/comment/188874/

Discussion: Is Idiopathic Erythrocytosis (Polycythemia) cancer?

Support Group: Blood Cancers & Disorders

Posted: Sep 12, 2018

For the itching I stopped taking showers in the winter. I wash my hair in the...

https://connect.mayoclinic.org/comment/1018657/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2024

If you are still itching quite a bit it's because your blood is still too high...

https://connect.mayoclinic.org/comment/895683/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2023

For me itch is always worse when anything rubs against my skin, after I dress or...

https://connect.mayoclinic.org/comment/1378234/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Aug 24 12:32pm

I was diagnosed with cutaneous T-cell Lymphoma in November 2024 and now undergoing treatment with Valchlor...

https://connect.mayoclinic.org/comment/1251949/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Mar 6 3:41pm

My husband recieves Arnesp injections every 2 weeks until his hgb ia 10 or above. He...

https://connect.mayoclinic.org/comment/996612/

Discussion: Has anyone heard of VEXAS syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2024

Oh, another help: ICE! I take an ice cube and slowly move it over the itchy...

https://connect.mayoclinic.org/comment/744254/

Discussion: Tasigna side effect? How do I stop an itchy scalp and rash?

Support Group: Blood Cancers & Disorders

Posted: Sep 1, 2022

I was frantically looking for answers for 2 years for my itching as my blood counts...

https://connect.mayoclinic.org/comment/870291/

Discussion: Polycythemia Vera - Help getting Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2023

Yes I too have had itching inside my ears and they were shedding. My fingers were...

https://connect.mayoclinic.org/comment/822904/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Mar 8, 2023

Would your CTCL be Sezary Syndrome or MF? I have SS, have asked about phototherapy but...

https://connect.mayoclinic.org/comment/1111393/

Discussion: Is Cutaneous T-Cell Lymphoma a Death Sentence?

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2024

You might try Aveeno lotion for the itching. I'm ET and was switching meds a few...

https://connect.mayoclinic.org/comment/857280/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: May 9, 2023