Blood Cancers & Disorders Support Group

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Comments (1,465)

Honestly, hematology is such a complicated area no one but a specialist can tell you those...

https://connect.mayoclinic.org/comment/905760/

Discussion: Looking for advice: Could this be MGUS, because of low m-spike?

Support Group: Blood Cancers & Disorders

Posted: Aug 1, 2023

Hello everyone…had MGUS diagnosis..would like some positive feedback from those having same… 1. How do I...

https://connect.mayoclinic.org/comment/1118747/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Aug 6 8:50am

I have to wonder if my WM was also caused by covid shots. The VA hospital...

https://connect.mayoclinic.org/comment/1169987/

Discussion: Lymphedema and Waldenstroms Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Nov 8 9:00am

Hello everyone. I was diagnosed with MGUS a few years ago. After a while, MGUS no...

https://connect.mayoclinic.org/comment/810015/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2023

Lori, switched the loading sequence but that caused a problem. It talks about AL Amyloidosis but...

https://connect.mayoclinic.org/comment/738758/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 18, 2022

Hello again: I think you’ve done such a deep dive on such a complex subject I...

https://connect.mayoclinic.org/comment/887062/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2023

Patty, My Hema/Ocologist is in a Cancer Center, so I will see someone he knows has...

https://connect.mayoclinic.org/comment/1059253/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Apr 29 10:34am

The bone marrow biopsy is used rarely enough that it reveals whatever the hematologist says it...

https://connect.mayoclinic.org/comment/723439/

Discussion: High protein in urine, unsure of the results

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2022

I’ve been living with it since 2010 and it’s amazing how many professionals have never heard...

https://connect.mayoclinic.org/comment/824549/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 11, 2023

Helchen, I hope you can first recognize your testing as positive opportunity with caring professionals. Second,...

https://connect.mayoclinic.org/comment/172467/

Discussion: Waiting on Multiple Myeloma testing

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2019

I have been diagnosed with a rare CLL, MGUS, and NXG. B cell therapy is helping...

https://connect.mayoclinic.org/comment/990930/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 3 3:36pm

I've had MGUS for 8 years so far without it progressing to any symptoms. I get...

https://connect.mayoclinic.org/comment/1017237/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 17 7:54am

@allu First, welcome to Mayo Clinic Connect. It certainly can be overwhelming to receive a diagnosis...

https://connect.mayoclinic.org/comment/698681/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2022

@travelgirl This is my first post on this group. Last week i went to my new...

https://connect.mayoclinic.org/comment/205949/

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Sep 3, 2019

@beepoop ...I also have been diagnosed with MGUS, about 2 years ago. Also Igg kappa. It...

https://connect.mayoclinic.org/comment/81207/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2019

@dianegrant Welcome to Mayo Clinic Connect. I'm glad to see you reach out to our great...

https://connect.mayoclinic.org/comment/842885/

Discussion: I have MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2023

Thank you- much appreciated. I have some bone pain, but nothing to scream about. Multiple myeloma...

https://connect.mayoclinic.org/comment/728026/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Jul 18, 2022

Hi Ginger, Wow, SMM morphed into MM in less than a year. Thank you for your...

https://connect.mayoclinic.org/comment/695401/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 1, 2022

@hels Welcome to Mayo Clinic Connect! As you read through the posts here, you see a...

https://connect.mayoclinic.org/comment/795766/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2023

I was diagnosed with MGUS also. I get bloodwork every 6 months. I also had a...

https://connect.mayoclinic.org/comment/732949/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Aug 1, 2022