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Public Support Group 1,177 total results
Comments (1,103)
Not sure if this is the place to write a follow up note. I have written...
https://connect.mayoclinic.org/comment/194314/
Hello @momoffivetoo. I’m 77 now and was diagnosed with PV in 1/2020. It was discovered by...
https://connect.mayoclinic.org/comment/1277135/
Apologies to all my last post should read the two mutations are jak 2 and Calr
https://connect.mayoclinic.org/comment/1288840/
I was diagnosed with Polycythemia Vera about three years ago. It was explained to me that...
https://connect.mayoclinic.org/comment/1163233/
I was diagnosed with ET JAK 2 about 15 years ago - no symptoms but found...
https://connect.mayoclinic.org/comment/1140166/
Yes, I have been on Peg since Nov 2022 and started at 45mcg/ wk and moved...
https://connect.mayoclinic.org/comment/1106156/
I have had ET for 10 years and avoided a bone marrow biopsy completely. The fact...
https://connect.mayoclinic.org/comment/1088943/
I have polycythemia vera also a jak 2. If this is your diagnosis there is no...
https://connect.mayoclinic.org/comment/1087160/
I am JAK 2 positive with PV and also take the hydroxyurea and one baby aspirin....
https://connect.mayoclinic.org/comment/1086544/
do you have Jak 2 mutation?
https://connect.mayoclinic.org/comment/1023588/
So you had these tests JAK2V617F,JAK2Exon12, BCR ABL-MPL-CALR?which one was positive? I don’t know the medical...
https://connect.mayoclinic.org/comment/1022951/
The only patients I've whose docs allowed them to run platelet levels up to 1,000 were...
https://connect.mayoclinic.org/comment/1010586/
It is hard to understand I was told I have Essential Thrombocytosis with a JAK 2...
https://connect.mayoclinic.org/comment/980116/
Thank you Lori. I think there is a misunderstanding here, you appear to have misunderstood me...
https://connect.mayoclinic.org/comment/936285/
@pumpkin1 I was diagnosed a year and a half ago with ET, Jak 2 positive, and...
https://connect.mayoclinic.org/comment/929117/
No I haven’t had PV. I started in 2016 with ET JAK 2 and was controlled...
https://connect.mayoclinic.org/comment/908930/
I have been diagnosed with PV Jak 2 mutation, 2 years ago this month, started off...
https://connect.mayoclinic.org/comment/900824/
I have had high platelets for three years now, anywhere between 479-530. They sent me to...
https://connect.mayoclinic.org/comment/893062/
I am a breast cancer survivor and a fighter who is not afraid to say the...
https://connect.mayoclinic.org/comment/891548/
Yes I did and it came back positive. for Jak 2 mutation.
https://connect.mayoclinic.org/comment/847160/
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