Blood Cancers & Disorders Support Group

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Comments (1,047)

I lived a completely normal confident life before this. I was great. I definitely know that...

https://connect.mayoclinic.org/comment/858897/

Discussion: What might this be? polycythemia vera, PCOS, lupus, something else?

Support Group: Blood Cancers & Disorders

Posted: May 12, 2023

I’m 63. Did you get tested for Jak-2 mutation?

https://connect.mayoclinic.org/comment/846289/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2023

Hi, I just read your post and am sorry that you are having a tough time...

https://connect.mayoclinic.org/comment/820895/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2023

I am on Hydroxyuria for ET. I have the JAK 2 mutation as well. After reading...

https://connect.mayoclinic.org/comment/801334/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Jan 25, 2023

Hi, Karen here. I was diagnosed about a month ago with Essential Thrombocytosemia, the rate type....

https://connect.mayoclinic.org/comment/783499/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2022

I am also jak 2 positive as of 2019 and mgus since 201 3, now smouldering...

https://connect.mayoclinic.org/comment/755881/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2022

My platlets were at over a million and pain in my feet was unbearable. I had...

https://connect.mayoclinic.org/comment/599861/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: May 6, 2021

I'm five mos in from the discovery of JAK 2, started at 680, now hovering above...

https://connect.mayoclinic.org/comment/194365/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2020

Hi again. Thank you for the information. I called the mayo clinics, but not the finance...

https://connect.mayoclinic.org/comment/284521/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2019

Hi. She has ET. It's driver, if I'm saying it right was the mutation of the...

https://connect.mayoclinic.org/comment/1210770/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jan 13 4:01pm

Hello, About a year ago I was diagnosed with antiphospholipid antibody syndrome and JAK 2 Mutation...

https://connect.mayoclinic.org/comment/194326/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2019

@Susan Ellis I take 2 Hydrea a day every day. Up until recently it kept them...

https://connect.mayoclinic.org/comment/194282/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2019

Hi Justin, I have been thinking that maybe I should get another opinion at Mayo because...

https://connect.mayoclinic.org/comment/188873/

Discussion: Is Idiopathic Erythrocytosis (Polycythemia) cancer?

Support Group: Blood Cancers & Disorders

Posted: Mar 8, 2018

hEHello out there. My name is Nancy Bush (shortshot80,net) I arrived on the Mayo Clinic site...

https://connect.mayoclinic.org/comment/132610/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 27, 2017

Thank you for alerting me to the fact that strengthing exercises are essential. My brother also...

https://connect.mayoclinic.org/comment/1011201/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2024

When I was diagnosed with a blood disorder, and very hi Hemocrit levels, my Hemotologist did...

https://connect.mayoclinic.org/comment/1002254/

Discussion: At my wits end. Not sure where to go from here.

Support Group: Blood Cancers & Disorders

Posted: Jan 23, 2024

Yes, it is a blood cancer, but is manageable for many, depending on the treatment that...

https://connect.mayoclinic.org/comment/994654/

Discussion: ET, Polycythemia, Jax2: Is this a blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jan 9, 2024

I have PV Jak 2 positive.

https://connect.mayoclinic.org/comment/993717/

Discussion: ET, Polycythemia, Jax2: Is this a blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2024

For my skin cancer I used immiquod cream which allow the body to attack the cancer...

https://connect.mayoclinic.org/comment/981708/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2023

When I first started on HU I was very tired. Now I am on 500 MG...

https://connect.mayoclinic.org/comment/973596/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Dec 1, 2023