Blood Cancers & Disorders Support Group | Page 49

I was diagnosed in 2001 with PV/ jak2 mutated with blood withdrawals until 2012 Myelofibrosis diagnosed...

https://connect.mayoclinic.org/comment/794654/

Discussion: Any suggestions for chronic shortness of breath with PV?

Support Group: Blood Cancers & Disorders

Posted: Jan 10, 2023

@tkp22, I can understand you're worried. It sounds like your health care team is being thorough....

https://connect.mayoclinic.org/comment/719785/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2022

@drbart86 hi, I was diagnosed with two mutations in the bone marrow Jak2 and Calr, apparently...

https://connect.mayoclinic.org/comment/1483684/

Discussion: Is anyone involved in clinical trials for ET, specifically for CALR?

Support Group: Blood Cancers & Disorders

Posted: Jan 16 9:13am

@gigi05 My oncologist/hemo also told me it is not hereditary and I was not born with...

https://connect.mayoclinic.org/comment/1412080/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Oct 9, 2025

Katrink, welcome to the Mayo Polycythemia Vera (PV) page. I was diagnosed with PV in 2018...

https://connect.mayoclinic.org/comment/1400143/

Discussion: Diagnosed with Polycythemia Vera in August. I was given Hdroxyurea

Support Group: Blood Cancers & Disorders

Posted: Sep 24, 2025

Might be good to find out what driver mutation you have--JAK2, MPL, or CALR. It makes...

https://connect.mayoclinic.org/comment/1088475/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 17, 2024

I am (living with ET, JAK2 mutation) since April 2025, but I just took my first...

https://connect.mayoclinic.org/comment/1485034/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Jan 17 6:09pm

I also started with platelets over one million at age 39. Now I'm 69. I'm also...

https://connect.mayoclinic.org/comment/1041181/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Mar 27, 2024

I'm 69 years old, JAK2 mutation, and diagnosed with ET this past November with platelets around...

https://connect.mayoclinic.org/comment/1026487/

Discussion: ET: What are acceptable platelet numbers?

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2024

That is such encouraging news. Thank you! I did have a bone marrow biopsy & I...

https://connect.mayoclinic.org/comment/799804/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Jan 21, 2023

Thank you Eileen, before all this occurred (ET, JAK2) I had been discussing with drs about...

https://connect.mayoclinic.org/comment/798340/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2023

I am surprised you are starting on Pegasys first. From what I have read Hydroxyurea is...

https://connect.mayoclinic.org/comment/774166/

Discussion: High platelets, Jak2, ET, and pre-fib new diagnosis

Support Group: Blood Cancers & Disorders

Posted: Nov 17, 2022

I have been on 500mg daily of HU since November 11. Over the years my platelet...

https://connect.mayoclinic.org/comment/1471785/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2025

I just turned 67, and was diagnosed with ET JAK2 a few months ago. Although I’m...

https://connect.mayoclinic.org/comment/1196178/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2024

New to this group. I've been diagnosed with an MPN ET with JAK2. Doctor has put...

https://connect.mayoclinic.org/comment/1192587/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Dec 17, 2024

Hello @sap21981 Welcome to Mayo Connect. I’m sure you’re in panic mode right now! Being a...

https://connect.mayoclinic.org/comment/886233/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2023

Hi shhanks. Welcome to the site. After I had seven vaccines (2 Moderna, 1 booster, 2...

https://connect.mayoclinic.org/comment/798922/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2023

I was diagnosed with JAK2 in early 2021. Taking the drug hydrea has put everything (RBC,...

https://connect.mayoclinic.org/comment/765304/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2022

I have been right where you are. Yes, the words "cancer" and "biopsy" are frightening. Please...

https://connect.mayoclinic.org/comment/995912/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2024

Hi @papa6275 - my diagnosis was JAK2 PV in May ‘22. Like you I did not...

https://connect.mayoclinic.org/comment/913795/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2023