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Comments (1,895)

I found this link to clinical trials open and have yet to open for MGUS: https://www.clinicaltrials.gov/ct2/results?cond=monoclonal+gammopathy+of+undetermined+significance&recrs=b&recrs=a...

https://connect.mayoclinic.org/comment/826485/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 15, 2023

The blood work has been done every six months. My doctor is excellent but does not...

https://connect.mayoclinic.org/comment/771421/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2022

I would not let tender or swollen lymph nodes go by without evaluation by doctor. I...

https://connect.mayoclinic.org/comment/1309335/

Discussion: Multiple lymph nodes throughout body

Support Group: Blood Cancers & Disorders

Posted: May 21 9:40am

Hello, it is my daughter. Previous told it was MGUS/MM, was treated with 3 chemo drugs....

https://connect.mayoclinic.org/comment/851599/

Discussion: Waldenstrom Macroglobulinemia with MYD88-wild type

Support Group: Blood Cancers & Disorders

Posted: Apr 29, 2023

Physical exam, full MGUS blood, and urine workup, and only a BMB if things have gotten...

https://connect.mayoclinic.org/comment/770461/

Discussion: MGUS monitoring: What tests do you have done regularly?

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2022

I was diagnosed with MGUS April of 2020, but my IGM continues to rise and I've...

https://connect.mayoclinic.org/comment/599614/

Discussion: I have MGUS

Support Group: Blood Cancers & Disorders

Posted: May 5, 2021

@remainanonymous Welcome to Connect. Neuropathy is a frequent topic among the MGUS members so there is...

https://connect.mayoclinic.org/comment/1051082/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2024

Hello @award . At 65 I too was diagnosed with MGUS on 15 February 2023. It...

https://connect.mayoclinic.org/comment/959984/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 6, 2023

@treinbold This post is a flashback from when my husband who had been underdiagnosed by his...

https://connect.mayoclinic.org/comment/937332/

Discussion: Does smoldering multiple myeloma or myeloma cause skin problems?

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2023

I consulted with three specialists - one at Mayo Clinic. All are MGUS/MM specialists. Even though...

https://connect.mayoclinic.org/comment/770463/

Discussion: MGUS monitoring: What tests do you have done regularly?

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2022

Can only say that my PCP informed that after 2 Moderna Innoculations + 2 M boosters,...

https://connect.mayoclinic.org/comment/706791/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: May 9, 2022

I was diagnosed with MGUS in 2018. I had labs fun every 6 months to monitor...

https://connect.mayoclinic.org/comment/983075/

Discussion: Day +5 autologous transplant. Hoping to feel better soon

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2023

While not specific to MGUS or multiple myeloma, people in this discussion may also appreciate the...

https://connect.mayoclinic.org/comment/968605/

Discussion: Best Medicare Insurance for MGUS and Multiple Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Nov 21, 2023

SJGray, as I have said before to others, "I have learned far more than I ever...

https://connect.mayoclinic.org/comment/912820/

Discussion: I am newly Diagnosed with MGUS.

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2023

I have Mgus....for over 10 years....I have neuropathy for 10 years. I have diabetes and have...

https://connect.mayoclinic.org/comment/838341/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Apr 5, 2023

Hi got diagnosed with mgus last nov still getting my head around everything loads of things...

https://connect.mayoclinic.org/comment/830470/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2023

@skate Welcome to Mayo Clinic Connect. Your experience seems to follow what many of us have...

https://connect.mayoclinic.org/comment/1182654/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 1, 2024

Good question, but they made it seem like it’s nothing to worry about, and I’ve been...

https://connect.mayoclinic.org/comment/944171/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 8, 2023

Hi, I just joined and saw your post about Evusheld. I was just diagnosed with MGUS...

https://connect.mayoclinic.org/comment/738977/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 18, 2022

I’m 50, was Dx’d with MGUS just over 2 years ago via BMB just under smouldering...

https://connect.mayoclinic.org/comment/976019/

Discussion: Should I be worried about my MGUS diagnosis and my M Spike rising?

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2023