Blood Cancers & Disorders Support Group

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Thanks @shmerdloff . I would have volunteered quickly for a BMB!! I was so short-of-breath for...

https://connect.mayoclinic.org/comment/1472335/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Jan 1 3:47pm

I do not recall anyone describing her risk factor…her last visit shows diagnosis is MDS- IB2…....

https://connect.mayoclinic.org/comment/1385361/

Discussion: High Risk Myelodysplastic Syndrome: What to Expect?

Support Group: Blood Cancers & Disorders

Posted: Sep 2, 2025

Mom is still feeling great…just had 88th birthday…. I find she’s a little pale some days...

https://connect.mayoclinic.org/comment/1314000/

Discussion: Newly diagnosed MDS-IB2 and vidaza

Support Group: Blood Cancers & Disorders

Posted: May 27, 2025

Hi @drawlings0803. I’m so glad to hear you had such a great visit with your new...

https://connect.mayoclinic.org/comment/1264353/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 22, 2025

deb13, Lori and all This page has been quiet!! I need to say once again that...

https://connect.mayoclinic.org/comment/1165813/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Oct 31, 2024

Good morning, @marnix! I remember about 25? years ago, a close friend’s mother was diagnosed with...

https://connect.mayoclinic.org/comment/1072120/

Discussion: Why are there no discussions about cancer of the blood?

Support Group: Blood Cancers & Disorders

Posted: May 21, 2024

Brenda, indeed I have (had) a very full life, and continue to be busy. But (there...

https://connect.mayoclinic.org/comment/963920/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 13, 2023

Hi @sap21981, from my research and understanding, a stem cell transplant for PV is rarely used....

https://connect.mayoclinic.org/comment/893527/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2023

Hi Lori -- Thanks for asking about my sweet wife. There's a story to tell, but,...

https://connect.mayoclinic.org/comment/1366412/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2025

rayj- I had a TP53 gene mutation. It is amazing to learn about new drug therapies....

https://connect.mayoclinic.org/comment/1087389/

Discussion: Husband with AML facing a stem cell transplant

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 15, 2024

Good morning, @asarnesejr. It sounds like you and your hematologist had a productive conversation this week....

https://connect.mayoclinic.org/comment/1504677/

Discussion: MDS diagnosis with DDX41 Germline and Somatic

Support Group: Blood Cancers & Disorders

Posted: Feb 13 9:02am

@carolgk Hi Carol, You have a bit of an adventure ahead with the upcoming allo-stem cell...

https://connect.mayoclinic.org/comment/1511032/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Feb 21 8:58am

Mom has well controlled hypertension (but recently her meds were doubled). I have read that increased...

https://connect.mayoclinic.org/comment/1185598/

Discussion: Newly diagnosed MDS-IB2 and vidaza

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2024

I have been in hydroxy for 6 weeks now. I take 2(500mg) a day. I was...

https://connect.mayoclinic.org/comment/1119123/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2024

Hi Howard, I’d been wondering how you’re doing on the chemo. You asked me in another...

https://connect.mayoclinic.org/comment/879927/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2023

Hi Janet. I understand your desire for quality of life over quantity. There were days I...

https://connect.mayoclinic.org/comment/986383/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 25, 2023

Hi Mary, Boy do I ever have memories flooding my brain this morning. Those months before,...

https://connect.mayoclinic.org/comment/1072253/

Discussion: Husband with AML facing a stem cell transplant

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: May 21, 2024

Brenda, you had asked me three questions a "while" back: 1- Could you explain what your...

https://connect.mayoclinic.org/comment/963237/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2023

I am 66 years young and was diagnosed with MDS syndrome #5 , I am asymptomatic...

https://connect.mayoclinic.org/comment/1243996/

Discussion: Low platelet count of around 120,000: What should be looked at?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2025

I will answer the bone marrow test. First let me say I had MDS, and I...

https://connect.mayoclinic.org/comment/1108465/

Discussion: should I do more testing?

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2024