Blood Cancers & Disorders Support Group

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Comments (1,103)

Hi again @snakebite , Thank you for responding and sharing your situation so fast! Like you,...

https://connect.mayoclinic.org/comment/1345194/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: 5 days ago

If you are over 60, have JAK2, you are at moderate clot risk and doc will...

https://connect.mayoclinic.org/comment/1147040/

Discussion: Need help newly diagnosed with a high platelet count and the JAK2 gene

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2024

I have PV JAK2 diagnosis in fact I changed hematologists and the second Hematologist asked if...

https://connect.mayoclinic.org/comment/1095124/

Discussion: I was diagnosed with Polycythemia vera last Sept. Is pain normal?

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2024

I was diagnosed with ET and the Jak2 mutation in Feb. 2023. I took iron supplements...

https://connect.mayoclinic.org/comment/941166/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2023

I was misdiagnosed at the VA Hospital on Long Island with ET in early 2018. I...

https://connect.mayoclinic.org/comment/865740/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 24, 2023

I have ET and am CALR + . I was diagnosed at age 60, but onset...

https://connect.mayoclinic.org/comment/786716/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2022

Hello, I'm new to this group and to the ET diagnosis, although I've had high platelet...

https://connect.mayoclinic.org/comment/768111/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2022

I have recently been diagnosed with Essential Thrombocythemia as I had slightly elevated platelets on routine...

https://connect.mayoclinic.org/comment/1260307/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Mar 17 12:00pm

Honestly, I don't know if I have any tips! It was a really rare condition back...

https://connect.mayoclinic.org/comment/334497/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2021

I went to my GP with other issues & checked with him re Sleep Apnea. He...

https://connect.mayoclinic.org/comment/1036484/

Discussion: Polycythaemia Ruba Vera, Jak2 mutation & link to Sleep Apnea

Support Group: Blood Cancers & Disorders

Posted: Mar 19, 2024

Your clot risk depends on age, mutation type, and previous clot history. At 68 with JAK2,...

https://connect.mayoclinic.org/comment/1192772/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2024

Hi @winmil99. Essential thrombocytopenia is part of a blood disorder group referred to as Myeloproliferative neoplasms...

https://connect.mayoclinic.org/comment/1021067/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2024

I had developed bad high blood pressure. I was put on medication to help with that....

https://connect.mayoclinic.org/comment/877194/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 12, 2023

Welcome to Connect, @qbf This is one of those situations where it’s not good to speculate....

https://connect.mayoclinic.org/comment/1008961/

Discussion: Polycythemia Vera - Help getting Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2024

Hi @arti4 When something causes a disruption in the normal function of our bone marrow, such...

https://connect.mayoclinic.org/comment/759044/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Oct 9, 2022

Hi lefsequeen, I am new to this group also. Hope I'm doing this correctly..... I was...

https://connect.mayoclinic.org/comment/334498/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2021

Thank you so much for all your encouragement, you are super positive & determined to keep...

https://connect.mayoclinic.org/comment/966802/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 18, 2023

What we put in our bodies, food or onnour skins, is medicine. Food is medicine, when...

https://connect.mayoclinic.org/comment/1010051/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2024

Hi lynnebgraham, Was that your first bone marrow biopsy or did you have them in the...

https://connect.mayoclinic.org/comment/1244745/

Discussion: Like to know more. Just told I have Triple Negative MPN.

Support Group: Blood Cancers & Disorders

Posted: Feb 24 3:09pm

Diagnosed with ET 5 years ago….high platlets led to Bone Marrow Biopsy to confirm and found...

https://connect.mayoclinic.org/comment/890099/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023