Blood Cancers & Disorders Support Group

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Comments (941)

I have multiple myeloma. An incurable cancer. My oncologist used the Mayo protocol for treating my...

https://connect.mayoclinic.org/comment/1127526/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Aug 20, 2024

Thanks for your interest, Ginger. I'm male age 67 with a history of heart disease. Mitral...

https://connect.mayoclinic.org/comment/790093/

Discussion: MGRS (monoclonal gammopathy of renal significance): Let's connect

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2022

Dear Frazer 1 (and any other MM patients, family members, and caregivers), I am a 58...

https://connect.mayoclinic.org/comment/73336/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jul 29, 2012

I was diagnosed with multiiple myeloma and light chain amyloidosis in 2021. Did the 2 year...

https://connect.mayoclinic.org/comment/1547516/

Discussion: Anyone have experience with daratumumab (Darzalex) to treat Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Apr 10 8:09pm

I was just diagnosed with Monocolonol Gammathopy. I’m reading there is no treatment however, can progress...

https://connect.mayoclinic.org/comment/992103/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2024

Hi Cindy. I had an appt. with my Doctor on Sept. 18. I still don't know...

https://connect.mayoclinic.org/comment/935833/

Discussion: Low Anion Gap

Support Group: Blood Cancers & Disorders

Posted: Sep 24, 2023

Hola, mi esposo también fue diagnosticado con Mieloma Múltiple, ya está con tratamiento que comenzó con...

https://connect.mayoclinic.org/comment/873105/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2023

@jart When I have had the 24-hour urine test, they are looking for protein levels, so...

https://connect.mayoclinic.org/comment/708543/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: May 15, 2022

Thinking about your comment. Have you had a bmb? I know some renal failure is considered...

https://connect.mayoclinic.org/comment/1356865/

Discussion: MGRS (monoclonal gammopathy of renal significance): Let's connect

Support Group: Blood Cancers & Disorders

Posted: Jul 26, 2025

I don’t know your condition but I have Multiple Myloma. 2 years ago I had two...

https://connect.mayoclinic.org/comment/1245692/

Discussion: Waldenstroms: Can severe neck and shoulder pain be due to meds?

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2025

I understand every feeling you're having and relate to the fact hat it's difficult to find...

https://connect.mayoclinic.org/comment/104705/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Aug 31, 2017

@mpeterson323 I went from MGUS to SMM to Mutiple Myeloma fairly quickly and was told then...

https://connect.mayoclinic.org/comment/1427701/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Oct 31, 2025

Thank you so much @leslie2121 for replying! So your experience was that FLCs went up slightly...

https://connect.mayoclinic.org/comment/1332802/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2025

Hi. I lived with monitoring MGUS from 2002 until 2004, then followed my smoldering myeloma until...

https://connect.mayoclinic.org/comment/74576/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Apr 23, 2018

Hola a todos. Hace algunos meses escribí en este lugar para interactuar con otras personas que...

https://connect.mayoclinic.org/comment/942134/

Discussion: With Waldenstrom, what side effects did you have with ibrutinib?

Support Group: Blood Cancers & Disorders

Posted: Oct 5, 2023

I don’t know a whole lot more. It is all so complicated to me. All I...

https://connect.mayoclinic.org/comment/871467/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jun 3, 2023

Hola Catalina, le saludo cordialmente. Quiero contarle que mi esposo había sido prediagnosticado hace 3 meses...

https://connect.mayoclinic.org/comment/865071/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: May 23, 2023

@loribmt Lori, that was a terrific response you made to @beardog. As you know, we all...

https://connect.mayoclinic.org/comment/726309/

Discussion: Husband diagnosed with smothering myeloma and AI amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2022

@hlmcneely I have needed Cataract and Hernia surgery for a year or so. I am being...

https://connect.mayoclinic.org/comment/1428286/

Discussion: Anyone had cataract surgery living with MDS?

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2025

@sharongkinney1117 MGUS is short for Monoclonal Gammopathy of Undetermined Significance. It is a condition where abnormally...

https://connect.mayoclinic.org/comment/1361698/

Discussion: MGUS and pain

Support Group: Blood Cancers & Disorders

Posted: Aug 1, 2025

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