Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

2,411 total results

Comments (2,273)

Do you think the fatigue comes from the HU or the ET or aging or co-morbidities?...

https://connect.mayoclinic.org/comment/946363/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 12, 2023

Sorry to hear you are suffering. My fingers are now aching and I don’t have arthritis...

https://connect.mayoclinic.org/comment/931221/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2023

Welcome to the club! I, too, am cold intolerant and have Reynaulds (which mayor may not...

https://connect.mayoclinic.org/comment/855393/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: May 6, 2023

I too have ET and give myself injections of Besremi every two weeks. I cannot use...

https://connect.mayoclinic.org/comment/1307265/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: May 18, 2025

Me too ; didn’t want to say “cancer” or take HU for the rest of my...

https://connect.mayoclinic.org/comment/1238066/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2025

The first months after diagnosis are so hard. We've all been through it -- and we're...

https://connect.mayoclinic.org/comment/1196355/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2024

Regarding bone pain, there are enough of us commenting on it that it seems to me...

https://connect.mayoclinic.org/comment/1309411/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: May 21, 2025

Hello, carr62! Although it was written last year, I found this article helpful and comprehensive. This...

https://connect.mayoclinic.org/comment/1339253/

Discussion: Question for 2025 and ET Patients

Support Group: Blood Cancers & Disorders

Posted: Jul 1, 2025

Hi dunewalker, Since I really do not know what I actually have, a have not taken...

https://connect.mayoclinic.org/comment/1268772/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2025

Itchy skin comes with ET. As others on this forum have suggested: clean up with a...

https://connect.mayoclinic.org/comment/1259148/

Discussion: ET Jak2 mutation itching

Support Group: Blood Cancers & Disorders

Posted: Mar 16, 2025

ET diagnosis - MPN Hello all, I was diagnosed with ET in 2020 via BMB and...

https://connect.mayoclinic.org/comment/796193/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2023

I have had ET for about four years and have been on Anagrelide the entire time....

https://connect.mayoclinic.org/comment/57936/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Apr 21, 2013

Hi Tessa My mum was diagnosed with ET when she went to routinely donate blood. She...

https://connect.mayoclinic.org/comment/1069140/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: May 16, 2024

I think you were just working too dang hard!!! :) Slow down, chill a bit, lie...

https://connect.mayoclinic.org/comment/1041180/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Mar 27, 2024

Hello! So I was recently diagnosed with ET as my platelets rose from 300-to 650 in...

https://connect.mayoclinic.org/comment/781132/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2022

I would encourage anybody with joint, bone, tooth, or toe pain to mention to doc. MPNs...

https://connect.mayoclinic.org/comment/1394317/

Discussion: Is foot/toe pain a symptom of increasing platelets in ET?

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2025

Hi @1pearl I am also in the US in VA, currently receiving treatment from a specialist...

https://connect.mayoclinic.org/comment/1216366/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2025

My PCP in rural Mississippi urged me to see a hematologist when my CBC on routine...

https://connect.mayoclinic.org/comment/1087613/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2024

Hi there, I also have ET & JAK2 but with no symptoms other than high platelets....

https://connect.mayoclinic.org/comment/257506/

Discussion: ET - Essential Thrombocythemia & Fainting

Support Group: Blood Cancers & Disorders

Posted: Apr 4, 2019

@janeto1357 Hi, I was diagnosed in May 2024with ET and JAK2. My plateletts were initially 554,...

https://connect.mayoclinic.org/comment/1444851/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Nov 22, 2025