Blood Cancers & Disorders Support Group

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Comments (2,233)

@pmm Patty, your words are without a doubt, calming for many to read. @steffiney and @milo3986...

https://connect.mayoclinic.org/comment/891288/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2023

MGUS is a condition that involves an abnormal protein produced in the bone marrow by plasma...

https://connect.mayoclinic.org/comment/1135835/

Discussion: How high has anyone seen Lambda free light chain go with Mgus?

Support Group: Blood Cancers & Disorders

Posted: Sep 3, 2024

I am new on this. I have diagnosed with MGUS and iron deficiency and cud stage...

https://connect.mayoclinic.org/comment/856133/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 8, 2023

Hi, Thank you for your postings. I also have MGUS (M-spike protein 0.4) and neuropathy in...

https://connect.mayoclinic.org/comment/754086/

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Sep 26, 2022

@tracypage The study was listed under "Spark Cures". SparkCures is a myeloma and MGUS website that...

https://connect.mayoclinic.org/comment/1497795/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 4 8:41am

@pmm thanks Patty! How long have you had MGUS and how low are your numbers? Just...

https://connect.mayoclinic.org/comment/1492659/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 28 12:42pm

Hi Ginger, That support is really helpful; thanks so much. He just had more CT scans...

https://connect.mayoclinic.org/comment/1249932/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2025

I was thought to have POEMS and was advised to start chemotherapy. Having had a year...

https://connect.mayoclinic.org/comment/1198694/

Discussion: MGUS and Chemotherapy

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2024

Thank you, Patty. Up until now, I have had good luck in getting answers to my...

https://connect.mayoclinic.org/comment/1044098/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2024

Hello, sorry about your diagnosis. I’ve found MGUS/ Smoldering Myeloma or Multiple Myeloma all affect people...

https://connect.mayoclinic.org/comment/1019136/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Feb 20, 2024

I also have the woozines Ever day. It helps me to get out and walk. I...

https://connect.mayoclinic.org/comment/843086/

Discussion: Wooziness and MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2023

Regardless of CT, how do you feel? Are Pft’s/oxygen good? MGUS May be incidental finding due...

https://connect.mayoclinic.org/comment/821060/

Discussion: MGUS + pulmonary sarcoidosis

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2023

I only wish I had second opinion the va won't pay for second opinions so I'm...

https://connect.mayoclinic.org/comment/875723/

Discussion: MGUS with bone pain?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2023

@pcb, I added this discussion to the Endocrine System sypport group as well. @irhon79 has mentioned...

https://connect.mayoclinic.org/comment/852206/

Discussion: Atrophic thyroid, has anyone dealt with this?

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2023

Oh dear. I have diagnosed MGUS and severe osteoporosis of the spine. I’ve been in pain...

https://connect.mayoclinic.org/comment/1248169/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2025

Hi patty thanks for getting back they did routine blood test on me they were looking...

https://connect.mayoclinic.org/comment/977553/

Discussion: Should I be worried about my MGUS diagnosis and my M Spike rising?

Support Group: Blood Cancers & Disorders

Posted: Dec 9, 2023

Unable to type much or scroll through comments due to my MGUS symptoms, can anybody relay...

https://connect.mayoclinic.org/comment/953252/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2023

@greenlantern Welcome to Mayo Clinic Connect. It's good to hear from someone who has has a...

https://connect.mayoclinic.org/comment/1216452/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2025

@nick86 Exactly what @pmm said! MGUS is not a death sentence. I did not follow the...

https://connect.mayoclinic.org/comment/939597/

Discussion: Does anyone have any info on MGUS treatment or risk of progression?

Support Group: Blood Cancers & Disorders

Posted: Sep 30, 2023

Thank you . I’m not too sure on the associated cause of kidney failure (if it’s...

https://connect.mayoclinic.org/comment/915813/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Aug 20, 2023