Blood Cancers & Disorders Support Group

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Comments (1,035)

Day 106 post allogenic transplant for my beloved husband. It’s been quite a ride. His transplant...

https://connect.mayoclinic.org/comment/1185289/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Dec 6, 2024

I thought my husband just had the flu. He had a fever and some chest congestion...

https://connect.mayoclinic.org/comment/1134680/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Sep 1, 2024

Welcome, @terdor! MDS treatments aren’t “one size fits all” because there are variables with each person....

https://connect.mayoclinic.org/comment/1286328/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2025

Not yet; so far, only my platelets have gone down. The rest are still normal. I...

https://connect.mayoclinic.org/comment/1160042/

Discussion: Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2024

To all of you. This road is not easy, and fear is waiting for you. Do...

https://connect.mayoclinic.org/comment/1098199/

Discussion: I am newly diagnosed with AML. with the inv(3) mutation,

Support Group: Blood Cancers & Disorders

Posted: Jul 2, 2024

As I understand it, the SRSF2 mutation is worse than the SBF31 mutation as it relates...

https://connect.mayoclinic.org/comment/328556/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2020

I get it… within the last 3 years my father passed away so the concept of...

https://connect.mayoclinic.org/comment/1386754/

Discussion: High Risk Myelodysplastic Syndrome: What to Expect?

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2025

Good morning, @vng I know what it’s like to plunge into the world of blood cancer...

https://connect.mayoclinic.org/comment/1524541/

Discussion: What disorders cause low red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Mar 11 9:59am

I'm also taking curcumin capsules, 500 mg each, two a day. Natural therapies, that's a pretty...

https://connect.mayoclinic.org/comment/1092156/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2024

It really would be much less worry if you could wait and see if your absolute...

https://connect.mayoclinic.org/comment/622954/

Discussion: Use of Neupogen (or similar) prior to minor surgery

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2021

I live in Houston near the Texas Medical Center. As you may know, TMC is home...

https://connect.mayoclinic.org/comment/1334742/

Discussion: open-minded approach to investigate underrecognized or rare causes

Support Group: Blood Cancers & Disorders

Posted: Jun 25, 2025

j0318- Are you in the "Be a Match" pool? I am not sure your background, but...

https://connect.mayoclinic.org/comment/1168836/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Nov 5, 2024

@loribmt I have 3 doctors. Each have test results and notes from each other. I have...

https://connect.mayoclinic.org/comment/1524358/

Discussion: Anyone experienced constipation or acid reflux taking Hydrea?

Support Group: Blood Cancers & Disorders

Posted: Mar 11 5:38am

@robertp129 I'd recommend seeing an integrative oncologist as well as working with your current physicians to...

https://connect.mayoclinic.org/comment/1424816/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Oct 27, 2025

This message is in response to the Revlimid (Lenalidomide) rash discussion. After two years on Procrit/Retacrit...

https://connect.mayoclinic.org/comment/1244719/

Discussion: Is anyone here taking Revlimid? If so please share with me

Support Group: Blood Cancers & Disorders

Posted: Feb 24, 2025

Oh Lori. I am so happy you Know the treatments I am talking about. I know...

https://connect.mayoclinic.org/comment/1347488/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2025

Hi Lori, I am new here and thankful for all you do. My husband who was...

https://connect.mayoclinic.org/comment/1286105/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2025

There is much to consider before a SCT. Besides the medical aspects, there are also the...

https://connect.mayoclinic.org/comment/1266131/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Mar 24, 2025

@juniperjgin Thank you so much! Yes it's true that the extra long wait time is simply...

https://connect.mayoclinic.org/comment/1113190/

Discussion: 2 weeks for BMB results now Pathology is adding several weeks more

Support Group: Blood Cancers & Disorders

Posted: Jul 28, 2024

Ryan, my husband was diagnosis with MDS and just 1% from AML in August of 22...

https://connect.mayoclinic.org/comment/1062448/

Discussion: 75 year old father just diagnosed with AML

Support Group: Blood Cancers & Disorders

Posted: May 5, 2024