Blood Cancers & Disorders Support Group

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Comments (2,234)

Hi! You are correct, there is Light Chain MGUS that has no apparent monoclonal antibody or...

https://connect.mayoclinic.org/comment/1266794/

Discussion: MGUS Diagnosis Criteria

Support Group: Blood Cancers & Disorders

Posted: Mar 25, 2025

Do you have a myeloma specialist to advise you and your hematologist? Hematologists treat lots of...

https://connect.mayoclinic.org/comment/1046222/

Discussion: Blood Test: Numbers are up, will doctor not start me on treatment?

Support Group: Blood Cancers & Disorders

Posted: Apr 6, 2024

Hi @gingerbarnes, I'd like to add my welcome along with @debby090 's helpful post to you....

https://connect.mayoclinic.org/comment/982905/

Discussion: MGUS & Thrombocytopenia

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2023

I also have MGUS, some would say high risk. From the moment I was diagnosed, back...

https://connect.mayoclinic.org/comment/958984/

Discussion: MGUS with bone pain?

Support Group: Blood Cancers & Disorders

Posted: Nov 4, 2023

Dr has said that mgus and smoldering I just really need some other people I can...

https://connect.mayoclinic.org/comment/698714/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2022

I just looked up what monoclonal gammopathy is and if you put MGUS in the subject...

https://connect.mayoclinic.org/comment/1364338/

Discussion: blood disorder

Support Group: Blood Cancers & Disorders

Posted: Aug 5, 2025

I am being monitored yearly for MGUS and possibly coincidentally I am osteoporotic in my femur...

https://connect.mayoclinic.org/comment/698850/

Discussion: Anyone have MGUS and being treated for osteoporosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2022

Thank you so much @leslie2121 for replying! So your experience was that FLCs went up slightly...

https://connect.mayoclinic.org/comment/1332802/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2025

I always tell people on here to get a baseline. Full bloodwork, 24/hr urine. Skeletal survey....

https://connect.mayoclinic.org/comment/1308104/

Discussion: Diagnosed with MGUS. What questions should I ask the hematologist?

Support Group: Blood Cancers & Disorders

Posted: May 19, 2025

Hi I have had MGUS for four years! I have labs every 3 months. My brother...

https://connect.mayoclinic.org/comment/957060/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 31, 2023

@freespirit60 Hi, and welcome. As Colleen says, there are so many resources for us here on...

https://connect.mayoclinic.org/comment/1353288/

Discussion: Long term MGUS: What changes have you had? Do's and Don'ts?

Support Group: Blood Cancers & Disorders

Posted: Jul 21, 2025

Hi, @pmm - what to do if the hematologists/oncologists at your clinic "don't treat MGUS"? I...

https://connect.mayoclinic.org/comment/987303/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2023

@tallyteresa My MGUS/myeloma journey started when a new nephrologist recognized concerning blood results. Apparently, they had...

https://connect.mayoclinic.org/comment/793950/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2023

There is no evidence linking cardiac ablation with myeloma. Like any procedure involving radiation - ablation...

https://connect.mayoclinic.org/comment/1457938/

Discussion: Smoldering Multiple Myeloma (SMM). Questions and Answers

Support Group: Blood Cancers & Disorders

Posted: Dec 10, 2025

And some like me have had elevated M spikes for 23 years with no progression to...

https://connect.mayoclinic.org/comment/1201551/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 1, 2025

I was diagnosed with mgus in 2003. I saw a Dr in hematology but since see...

https://connect.mayoclinic.org/comment/74581/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2018

Dr. Urvi Shah at Memorial Sloan Kettering is studying how nutrition may slow the progression of...

https://connect.mayoclinic.org/comment/1030376/

Discussion: M-Spike, High Kappa and Kappa/Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2024

@pmm Patty, your words are without a doubt, calming for many to read. @steffiney and @milo3986...

https://connect.mayoclinic.org/comment/891288/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2023

MGUS is a condition that involves an abnormal protein produced in the bone marrow by plasma...

https://connect.mayoclinic.org/comment/1135835/

Discussion: How high has anyone seen Lambda free light chain go with Mgus?

Support Group: Blood Cancers & Disorders

Posted: Sep 3, 2024

Your hemonco will be the one to actually diagnose you with MGUS. Not that your pcp...

https://connect.mayoclinic.org/comment/1260736/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2025