Blood Cancers & Disorders Support Group

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Comments (1,035)

I have been taking Hydroxyurea daily for nearly 10 months. I have Langerhans Cell Histiocytosis, skin...

https://connect.mayoclinic.org/comment/146313/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2020

I have MDS. A year ago I was in the same spot you are now. I'd...

https://connect.mayoclinic.org/comment/1402486/

Discussion: Very worried about MDS. I am extremely anxious and feel very alone.

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2025

My husband was diagnosed with MDS in October, 2023. It is high risk; close to AML....

https://connect.mayoclinic.org/comment/1264743/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2025

Good Morning all, yep the wait and watch can be unnerving but it is not a...

https://connect.mayoclinic.org/comment/1242808/

Discussion: Low platelet count of around 120,000: What should be looked at?

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2025

I finally easily found the trial i was in to prevent Graft vs Host disease. *****Adding...

https://connect.mayoclinic.org/comment/1366052/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Aug 7, 2025

Hi there. . I had breast cancer 18 yrs ago and I progressed from MDS for...

https://connect.mayoclinic.org/comment/1451060/

Discussion: My MDS does not respond to treatments. What's next?

Support Group: Blood Cancers & Disorders

Posted: Dec 1, 2025

@nsnipes11, I think you should've gotten a response to your questions on your Portal. I really...

https://connect.mayoclinic.org/comment/988891/

Discussion: MGUS I need help understanding my lab report.

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2023

I'm so sorry. This must feel like you are getting the runaround. I hope you are...

https://connect.mayoclinic.org/comment/797487/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jan 16, 2023

My typo, my current Platelet count is not 192, but 92. Also, additional data that I...

https://connect.mayoclinic.org/comment/1476998/

Discussion: MDS diagnosis with DDX41 Germline and Somatic

Support Group: Blood Cancers & Disorders

Posted: Jan 7 7:22pm

Sally, I had my transplant with a 10/10 donor in April. My hair had just hit...

https://connect.mayoclinic.org/comment/1223489/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jan 28, 2025

I was diagnosed with MDS in Feb, 2024 with an IPSS-R (International prognostic scoring system) risk...

https://connect.mayoclinic.org/comment/1083625/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2024

I intially had MDS but after a bone marrow biopsy, it was found I didn't have...

https://connect.mayoclinic.org/comment/797028/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jan 15, 2023

Thank you so much for your comments. All are very helpful. I was diagnosed 3 weeks...

https://connect.mayoclinic.org/comment/1280752/

Discussion: I have recently been diagnosed with MDS, and have so many questions.

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2025

I have been anemic for many years. I have had surgical procedures such as knee and...

https://connect.mayoclinic.org/comment/1364971/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2025

Today I speak about survivorship at 1 year past transplant. I am officially 464 days past...

https://connect.mayoclinic.org/comment/1350922/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 18, 2025

Hi @girlmidget. Welcome to Connect! You’ve come to the right place to be able to speak...

https://connect.mayoclinic.org/comment/1264801/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2025

Welcome to Connect, @grat1963. Oh my gosh, it’s so sad to hear about your sister and...

https://connect.mayoclinic.org/comment/1342943/

Discussion: MDS now progressing to AML and need to decide if time to start Vidaza

Support Group: Blood Cancers & Disorders

Posted: Jul 7, 2025

@barbwsm, Epoetin Alfa (Procrit) and Darbepoetin Alfa (Aranesp) are both medications given to patients with anemia...

https://connect.mayoclinic.org/comment/1478310/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Jan 9 2:20pm

@loribmt You are very comforting ! Thank you for being here on line . My husband...

https://connect.mayoclinic.org/comment/1524602/

Discussion: What disorders cause low red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Mar 11 10:59am

Interesting topic. I've not been posting for a while. My MF, MDS made a major turn...

https://connect.mayoclinic.org/comment/1057510/

Discussion: Taking supplements with ET

Support Group: Blood Cancers & Disorders

Posted: Apr 26, 2024