Blood Cancers & Disorders Support Group

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Comments (1,102)

Hello, I too have Polycythaemia Vera. I was diagnosed just over one year ago when I...

https://connect.mayoclinic.org/comment/787794/

Discussion: Polycythemia Vera: Is there anything I can do for fatigue at home?

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2022

Good morning lindagualtieri. I am from Kentucky. I have had Polycythemia Vera (PV) for 6 years...

https://connect.mayoclinic.org/comment/1148497/

Discussion: Need help newly diagnosed with a high platelet count and the JAK2 gene

Support Group: Blood Cancers & Disorders

Posted: Sep 28, 2024

I'm JAK2 positive as well, and have had high platelets since my 30s. I'm now 64....

https://connect.mayoclinic.org/comment/781250/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2022

Hi all... I am 69 and was diagnosed with ET and some fibrosis so Early PMF...

https://connect.mayoclinic.org/comment/146324/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2021

I have been living with high platelets (500-680 range) since 2016. In 2017 I had a...

https://connect.mayoclinic.org/comment/692090/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2022

Thank you for responding, very appreciated. As of now, knock on wood, the only mutation is...

https://connect.mayoclinic.org/comment/328596/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2021

Hi @cindyem, I’m just double checking your reference to PMDS. Do you possibly mean myelofibrosis (MF)...

https://connect.mayoclinic.org/comment/1043541/

Discussion: Anyone have information about late stages of primary myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 1, 2024

hello. I was diagnosed with ET over 25 years ago, while young and in the Service...

https://connect.mayoclinic.org/comment/890151/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

Was diagnosed with ET and JAK2 positive. Have been taking Hydrea 500mg and 81mg baby aspirin...

https://connect.mayoclinic.org/comment/854019/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 3, 2023

I have MDS/MPN overlap with Thrombocytosis and MF and I've been on Hydrea to reduce my...

https://connect.mayoclinic.org/comment/146301/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2020

It is common for the blood numbers to take awhile to improve. I am Jak2 positive...

https://connect.mayoclinic.org/comment/795618/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2023

Hi DHCarter, I was getting episodes very lightheaded feeling, feeling lousy, heart beating abnormally. About five...

https://connect.mayoclinic.org/comment/813703/

Discussion: PV and atrial fibrillation

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2023

Wow, thank you so very much for your response Lori. I have felt like I am...

https://connect.mayoclinic.org/comment/604306/

Discussion: Hypocellular bone marrow: What do I need to know?

Support Group: Blood Cancers & Disorders

Posted: May 24, 2021

Hi Tom, There are quite a few members in the Connect forum who have been diagnosed...

https://connect.mayoclinic.org/comment/1076631/

Discussion: Is my treatment a bit aggressive?

Support Group: Blood Cancers & Disorders

Posted: May 28, 2024

I have Jak2 positive PV treated with hydrox since October 2023...I noticed my blood values were...

https://connect.mayoclinic.org/comment/1253508/

Discussion: PV and peripheral artery disease PAD

Support Group: Blood Cancers & Disorders

Posted: Mar 8 6:37pm

Hi bikalydy973, I have seen my GP every six months because I have hypertension. I have...

https://connect.mayoclinic.org/comment/797885/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jan 17, 2023

I also read the pamphlet and freaked out but did my research. This drug has been...

https://connect.mayoclinic.org/comment/1026291/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Mar 2, 2024

Mtnlife, I too had no symptoms of anything prior to a routine blood test. in March...

https://connect.mayoclinic.org/comment/783874/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2022

Hi Tammy, I have MDS/MPN overlap with Thrombocytosis and MF. My platelet count was about 800,000...

https://connect.mayoclinic.org/comment/146305/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2020

My Naturopathic Physician suggested I see a Oncologist or Hemotologist in 2013 because my Platelets were...

https://connect.mayoclinic.org/comment/194297/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2019