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Comments (1,047)

To eetap, 1) The JAK2 mutation is typically found either after a clotting event or routine...

https://connect.mayoclinic.org/comment/719531/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2022

Mine came out of nowhere - last September I started with severe GI issues after a...

https://connect.mayoclinic.org/comment/1060628/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 2, 2024

Hi @onthejoedock Polycythemia vera is a type of cancer that causes red blood cells to multiply....

https://connect.mayoclinic.org/comment/1009341/

Discussion: How bad is a diagnosis of Polycythemia Vera?

Support Group: Blood Cancers & Disorders

Posted: Feb 4, 2024

I have documented (JAK2 positive) PV and on hydrox..I understand your fear and there are many...

https://connect.mayoclinic.org/comment/1097487/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Jul 1, 2024

Hi Beth, My experience is very similar to yours. BMB in September 2020 favors ET with...

https://connect.mayoclinic.org/comment/840273/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2023

Hi Pink Flamingo, I call this "the scary club". Friends laugh at this and laughter is...

https://connect.mayoclinic.org/comment/836941/

Discussion: Blood Cancer - JAK2 - Autoimmune- Confusion

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2023

Hi Becky, I have MDS/MPN overlap with Thrombocytosis and I'm also in the early stage of...

https://connect.mayoclinic.org/comment/278675/

Discussion: New dx of Post ET-MF

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2019

I was officially diagnosed with ET this spring and tested positive for JAK2. 53 years old,...

https://connect.mayoclinic.org/comment/1194488/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 21, 2024

I’m awaiting my JAK2 V617F status and overwhelmed by so much information. I’ve had several episodes...

https://connect.mayoclinic.org/comment/810105/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2023

As a follow up to my question, I searched for diagnostic criteria for PV (since they...

https://connect.mayoclinic.org/comment/231777/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 11, 2019

Hi chrisatwell I am 65 and was diagnosed with ET on January 10, 2025 which my...

https://connect.mayoclinic.org/comment/1267651/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 26 9:21pm

Thank you for posting these results. It helps to see the actual numbers. I’m not a...

https://connect.mayoclinic.org/comment/1083081/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 8, 2024

I was originally misdiagnosed with Essential Thrombocythemia in 2018 by a hematologist at the VA Hospital...

https://connect.mayoclinic.org/comment/328598/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2021

Anna, I had year fluctuations of platelet levels, all over normal, for almost 30 years before...

https://connect.mayoclinic.org/comment/826050/

Discussion: Persistently Elevated Platelets Fluctuating

Support Group: Blood Cancers & Disorders

Posted: Mar 14, 2023

Hi Lynne, I see @janemc's wise words about the lack of information. There are a couple...

https://connect.mayoclinic.org/comment/1282117/

Discussion: Like to know more. Just told I have Triple Negative MPN.

Support Group: Blood Cancers & Disorders

Posted: Apr 14 10:25pm

Welcome to Connect, @mariaalive. It sounds like you’re very proactive in taking care of your health...

https://connect.mayoclinic.org/comment/1196339/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2024

Oh heck Yeah! Diagnosed with ET and Jak2 was just one of the ten markers I...

https://connect.mayoclinic.org/comment/695189/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Apr 1, 2022

Hi, I had all the classic symptoms of PV and at my annual visit my bloodwork...

https://connect.mayoclinic.org/comment/1024405/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 28, 2024

Hi @ausableriver, Polycythemia Vera is a condition where the bone marrow makes too many red blood...

https://connect.mayoclinic.org/comment/1003392/

Discussion: Secondary polycythemia: What are the treatment options?

Support Group: Blood Cancers & Disorders

Posted: Jan 25, 2024

I was diagnosed with ET at 27. I had been having unusual, extensive bruising and severe...

https://connect.mayoclinic.org/comment/792696/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2023