Blood Cancers & Disorders Support Group

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Comments (1,383)

I don’t know if this is pertinent or helpful but I was diagnosed with PV/JAK2 about...

https://connect.mayoclinic.org/comment/1491750/

Discussion: Polycythemia and lack of iron

Support Group: Blood Cancers & Disorders

Posted: Jan 27 10:42am

@JustinMcClanahan hi I too have been recently diagnosed with PV and JAK2 mutation I’ve been on...

https://connect.mayoclinic.org/comment/1452748/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2025

My platelets were 1.4 million in June 2025. My new oncologist at Virginia Cancer Institute performed...

https://connect.mayoclinic.org/comment/1422367/

Discussion: Seeking opinion about where to get a second opinion.

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2025

JAK2+, diagnosed Feb 2024. Counts had been elevated for 3 years, then jumped at annual physical....

https://connect.mayoclinic.org/comment/1191756/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2024

I am have ET (JAK2+). I have been using bio identical hormones for 17 years with...

https://connect.mayoclinic.org/comment/1151761/

Discussion: Thoughts on bio identical hormones and ET?

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2024

Hi I have ET and Jak2 mutation. I have been on HU for 3 weeks. My...

https://connect.mayoclinic.org/comment/1120672/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2024

I am on it for almost a year. I read it takes about six months or...

https://connect.mayoclinic.org/comment/993710/

Discussion: ET, Polycythemia, Jax2: Is this a blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2024

Good morning Pumpkin.....I posted a message to you the other day but I think I touched...

https://connect.mayoclinic.org/comment/774152/

Discussion: Essential thrombocytosis with MPL mutation

Support Group: Blood Cancers & Disorders

Posted: Nov 17, 2022

Hi, I am new to this group. I just found it. I have been diagnosed ET/...

https://connect.mayoclinic.org/comment/1465642/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2025

I have JAK2 and take 1000mg of HU and it has affected my hair. It grows...

https://connect.mayoclinic.org/comment/1317294/

Discussion: Regrowing hair

Support Group: Blood Cancers & Disorders

Posted: May 31, 2025

My husband has just been diagnosed with MDS after having JAK2 for about ten years. His...

https://connect.mayoclinic.org/comment/1201670/

Discussion: MDS and cognitive decline

Support Group: Blood Cancers & Disorders

Posted: Jan 1, 2025

I too had ET due to a JAK2 . Platelet count got to 800,000. I had...

https://connect.mayoclinic.org/comment/1195372/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2024

My experience was the best possible. I arrived, was put in a gown, and given a...

https://connect.mayoclinic.org/comment/1166063/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2024

Welcome to Connect, @pearly, and thank you for sharing your history. Essential thrombocythaemia (ET) is indeed...

https://connect.mayoclinic.org/comment/146291/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2017

You are absolutely correct on doctors taking time before they can figure out the problem with...

https://connect.mayoclinic.org/comment/1064567/

Discussion: Platelets are too high: What can be done to find root cause?

Support Group: Blood Cancers & Disorders

Posted: May 9, 2024

I was diagnoses with ET Jak2 in jaune 2024, I am 70, jog and exercise daily,...

https://connect.mayoclinic.org/comment/1025941/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Mar 2, 2024

My hematologist said it's in the MPN cancer family but it doesn't work like a cancer....

https://connect.mayoclinic.org/comment/995692/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jan 11, 2024

Hello, I am 1.5 years into taking it. My platelets were 950 as well and I...

https://connect.mayoclinic.org/comment/950065/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2023

@eloise999 Why would you push her to go for a bone marrow biopsy? She stated that...

https://connect.mayoclinic.org/comment/1466249/

Discussion: Diagnosed polycythemia vera at 26: Any young PV patients out there?

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2025

Hi, I've been following along, interested because I've had ET w/Jak2 for almost 2 years. Earlier...

https://connect.mayoclinic.org/comment/1174348/

Discussion: Are visual disturbances related to ET or hydroxyurea?

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2024