Blood Cancers & Disorders Support Group

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Comments (2,234)

Greetings. So sorry you are having trouble finding a clinical home. I don’t know Scottsdale but...

https://connect.mayoclinic.org/comment/821204/

Discussion: Monoclonal Gammopathy & Granulatomus Disease + new ANA+ in AZ

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2023

Maria, I was looking at your numbers compared to mine. You see, I was born all...

https://connect.mayoclinic.org/comment/749524/

Discussion: Low T-Cell - Bone Marrow Biopsy

Support Group: Blood Cancers & Disorders

Posted: Sep 14, 2022

Hi. I was diagnosed with MGUS IGM lambda in 2014 and have peripheral neuropathy. I understand...

https://connect.mayoclinic.org/comment/1522080/

Discussion: Long term MGUS: What changes have you had? Do's and Don'ts?

Support Group: Blood Cancers & Disorders

Posted: Mar 7 10:28pm

Hi Ginger, Sorry to hear about the progression to SMM. I was curious do they consider...

https://connect.mayoclinic.org/comment/695365/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 1, 2022

I don’t think there is any connection. I saw a recent study out of Dana Farber...

https://connect.mayoclinic.org/comment/1340106/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2025

Many of us are doing watchful checkups with hematologists we like. (First I found four I...

https://connect.mayoclinic.org/comment/714662/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2022

WOW. Glad I just found this group. Lots of info. Like so many, my MGUS was...

https://connect.mayoclinic.org/comment/910564/

Discussion: I am newly Diagnosed with MGUS.

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2023

My hubby has MGUS, a potential precursor to Multiple Myeloma, and has been having nosebleeds --...

https://connect.mayoclinic.org/comment/1178483/

Discussion: How to stop or prevent frequent nosebleeds with Multiple Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Nov 22, 2024

Yes, I would like to know if you and your physicians feel that the plant based...

https://connect.mayoclinic.org/comment/1014622/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Feb 12, 2024

Yes I have MGUS just over a year but when looking back at blood work it...

https://connect.mayoclinic.org/comment/1402761/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2025

I just recently had my mgus testing. My kappa light chains are up to 34.8 a...

https://connect.mayoclinic.org/comment/1056247/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2024

@vera101 Welcome to the forum. I am so sorry about your vision problems. One of the...

https://connect.mayoclinic.org/comment/1000528/

Discussion: Multiple myeloma: When to treat? When not to treat?

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2024

The answer to your question is no. I saw something wrong with my standard bloodwork in...

https://connect.mayoclinic.org/comment/732629/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Jul 31, 2022

Good morning @fayeraye . I was diagnosed with IgA Kappa MGUS on 15 February 2023 -...

https://connect.mayoclinic.org/comment/931766/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 18, 2023

I’m with you, don’t get much from hematologist, just that she will do labs every 6...

https://connect.mayoclinic.org/comment/913929/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2023

Hi. I was just diagnosed with MGUS and am having a lot of anxiety. Could you...

https://connect.mayoclinic.org/comment/1111938/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jul 26, 2024

I was also diagnosed with MGUS in 2019. My primary Dr referred me to a kidney...

https://connect.mayoclinic.org/comment/995194/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 10, 2024

dazlin, I have had MGUS for two years now (also have Waldenström's non-Hodgkin's lymphoma) but my...

https://connect.mayoclinic.org/comment/974476/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2023

I have low blood sugar (hypoglycemia), but have had it for at least 40 years --...

https://connect.mayoclinic.org/comment/880786/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2023

@katytx Welcome to Mayo Clinic Connect. The story you related has many of us nodding in...

https://connect.mayoclinic.org/comment/871259/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Jun 2, 2023